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Rolling through life on wheels | The battle of a chronic illness and the challenges it brings with it.

The battle of a chronic illness and the challenges it brings with it.

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Rolling through life on wheels | The battle of a chronic illness and the challenges it brings with it. | 21yolo2014.wordpress.com Reviews
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Rolling through life on wheels | The battle of a chronic illness and the challenges it brings with it. | 21yolo2014.wordpress.com Reviews

https://21yolo2014.wordpress.com

The battle of a chronic illness and the challenges it brings with it.

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1

Every little counts – Wearing RED for Vascular EDS (post day ‘few days late..) – Rolling through life on wheels

https://21yolo2014.wordpress.com/2015/05/24/74

Rolling through life on wheels. Rolling through life on wheels. May 24, 2015. May 24, 2015. Every little counts – Wearing RED for Vascular EDS (post day ‘few days late.). True fact – Laughter is the best medicine. Will update in another post in more detail how things are as so exhausted tonight but wanted to write something now and show a little photo that I wanted to share. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. What would you wish?

2

October 2014 – Rolling through life on wheels

https://21yolo2014.wordpress.com/2014/10

Rolling through life on wheels. Rolling through life on wheels. October 23, 2014. October 23, 2014. It’s okay not be okay. 8216;It’s okay not to be okay’. Just waiting for meds, antibiotics and the medical night gear and then hopefully some rest. Woke up at 3:30 last night in a lot of pain so hopefully we can get a control on the pain tonight so I can get some rest. Fingers crossed. October 21, 2014. There is no magical cure. Sometimes the reality of what is happening doesn’t sink in? One day at a time.

3

May 2015 – Rolling through life on wheels

https://21yolo2014.wordpress.com/2015/05

Rolling through life on wheels. Rolling through life on wheels. May 28, 2015. May 28, 2015. Red faced like a bull and raging. The bloodstream filled with anger. Emotions running widely through the veins. Am I actually going insane. My mind feels confused but full of hatred. For this disease that controls my life and it’s traits. A future snapping away from me in a flash. Not gaining anything back. Long hospital stays and treatment. Lines, medicines IV’S and infusions. 40 pills, oxygen, monitoring and that.

4

April 2015 – Rolling through life on wheels

https://21yolo2014.wordpress.com/2015/04

Rolling through life on wheels. Rolling through life on wheels. April 18, 2015. April 18, 2015. What would you wish? This is a recent poem written in early March just before I went to ICU. Waiting for a miracle. A cure across the seas. With a merry dance. And a pint of chance. In an all glazed trance. Just not my reality. So much research to be done. But they say decades to come. With the future planned ahead. With many a concerning. A girl trapped in EDS. With POTS and excess. Wrapped by faulty genes.

5

What would you wish? – Rolling through life on wheels

https://21yolo2014.wordpress.com/2015/04/18/what-would-you-wish

Rolling through life on wheels. Rolling through life on wheels. April 18, 2015. April 18, 2015. What would you wish? This is a recent poem written in early March just before I went to ICU. Waiting for a miracle. A cure across the seas. With a merry dance. And a pint of chance. In an all glazed trance. Just not my reality. So much research to be done. But they say decades to come. With the future planned ahead. With many a concerning. A girl trapped in EDS. With POTS and excess. Wrapped by faulty genes.

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Rolling through life on wheels | The battle of a chronic illness and the challenges it brings with it.

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