withoutacrystalball.com
The 5 Reasons it’s Difficult to be Employed and Raise a Child with Special Needs | Without a Crystal Ball
https://withoutacrystalball.com/2017/01/02/the-5-reasons-its-difficult-to-be-employed-and-raise-a-child-with-special-needs
Follow me on Facebook. Learn About Adrenal Insufficiency. Follow me on Twitter. Without a Crystal Ball. Our Journey through Chronic Illness. The 5 Reasons it’s Difficult to be Employed and Raise a Child with Special Needs. January 2, 2017. 1 Lack of Daycare facilities for children with Special Needs. 2 Our Children have a lot of Appointments. 3 Unexpected Emergencies Happen A Lot. 4 All Employees are expendable. 5 We spend a lot of time managing and organizing the Care. January 2, 2017 at 10:32 am. Tomor...
withoutacrystalball.com
Oh the places we will Go! | Without a Crystal Ball
https://withoutacrystalball.com/2016/12/23/oh-the-places-we-will-go
Follow me on Facebook. Learn About Adrenal Insufficiency. Follow me on Twitter. Without a Crystal Ball. Our Journey through Chronic Illness. Oh the places we will Go! December 23, 2016. For a long time, my son has simply been not only my child but he’s also been my full time job. I’m not even kidding about that! Also, I’m going to be learning how to bake this year! My father will be passing down generations old recipes, and I’m planning on sharing the process right here! Blessings to you all! Miracles Do...
withoutacrystalball.com
Uncategorized | Without a Crystal Ball
https://withoutacrystalball.com/category/uncategorized
Follow me on Facebook. Learn About Adrenal Insufficiency. Follow me on Twitter. Without a Crystal Ball. Our Journey through Chronic Illness. Stop Parent Shaming in Online Parent Support Groups. January 18, 2017. For 4 years, I have been a part of a community I never wanted to be in. I never wanted to be a parent to a child that was medically fragile or had special needs. I realize that in and of itself sounds terrible but it’s the truth. I, like most parents, prayed and hoped …. January 13, 2017. Dear Se...
withoutacrystalball.com
The Real Fear of Losing Medicaid – One Mother’s Perspective | Without a Crystal Ball
https://withoutacrystalball.com/2017/01/06/the-real-fear-of-losing-medicaid-one-mothers-perspective
Follow me on Facebook. Learn About Adrenal Insufficiency. Follow me on Twitter. Without a Crystal Ball. Our Journey through Chronic Illness. The Real Fear of Losing Medicaid – One Mother’s Perspective. January 6, 2017. Are we telling them that they no longer matter? Are we telling them that they will have to go in to poverty and bankrupt? Are we telling them they no longer deserve medication and to live? Furthermore, what happens to all the people that become disabled in the future? We live in Texas and ...
withoutacrystalball.com
The Top 5 Reasons being a Friend with a Special Needs Mom is Awesome | Without a Crystal Ball
https://withoutacrystalball.com/2017/01/12/the-top-5-reasons-being-a-friend-with-a-special-needs-mom-is-awesome
Follow me on Facebook. Learn About Adrenal Insufficiency. Follow me on Twitter. Without a Crystal Ball. Our Journey through Chronic Illness. The Top 5 Reasons being a Friend with a Special Needs Mom is Awesome. January 12, 2017. We come with a ton of experience and knowledge. Most of us have been dealing with it for years, and we can share all the tips we have acquired from our therapists and doctors. We can also recommend when to seek therapy and what centers are the BEST in your area. Liked by 1 person.
withoutacrystalball.com
A Portrait of a Family with a Disabled Son – A letter to the GOP Senate | Without a Crystal Ball
https://withoutacrystalball.com/2017/01/10/a-portrait-of-a-family-with-a-disabled-son-a-letter-to-the-gop-senate
Follow me on Facebook. Learn About Adrenal Insufficiency. Follow me on Twitter. Without a Crystal Ball. Our Journey through Chronic Illness. A Portrait of a Family with a Disabled Son – A letter to the GOP Senate. January 10, 2017. Dear Senators of the GOP,. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Notify me of new comments via email. Enter your e...
withoutacrystalball.com
What it’s like to Be Special Needs Mom with Anxiety | Without a Crystal Ball
https://withoutacrystalball.com/2017/01/09/what-its-like-to-be-special-needs-mom-with-anxiety
Follow me on Facebook. Learn About Adrenal Insufficiency. Follow me on Twitter. Without a Crystal Ball. Our Journey through Chronic Illness. What it’s like to Be Special Needs Mom with Anxiety. January 9, 2017. You can’t handle this. This is another disease that could end his life. This can’t be happening. What if he dies in his sleep? What if he doesn’t wake up? What if he falls off his bed, I don’t hear it and he goes in to shock? What if I don’t know how to help him? What if I’m not capable? Even thou...
cushingsmoxie.blogspot.com
Cushing's with Moxie: Fighting The Worst Disease You've Never Heard Of: Lessons of Alexis Shapiro: Texas Girl's Ordeal Spotlights Silent Crisis
http://cushingsmoxie.blogspot.com/2014/09/lessons-of-alexis-shapiro-texas-girls.html
Cushing's with Moxie: Fighting The Worst Disease You've Never Heard Of. 8220;Genetics and runaway appetite are not the only causes of obesity. Sometimes, your own body can turn against you in ways you never thought possible.” The Science of Obesity. Sunday, September 14, 2014. Lessons of Alexis Shapiro: Texas Girl's Ordeal Spotlights Silent Crisis. Lessons of Alexis Shapiro: Texas Girl's Ordeal Spotlights Silent Crisis. Alexis' condition must be painstakingly managed via oral steroids and 24/7 access to ...
cahisus.co.uk
CAH is us - Links
http://cahisus.co.uk/links.htm
Great Ormond Street Hospital Website. Congenital Adrenal Hyperplasia Education and Support Network. Please note that any data/ information contained on this website cannot be copied or used in any way without the prior permission of the owner/ author Professor Peter Hindmarsh.
blog.rareconnect.org
List of #RareDisease Hashtags | RareConnect Support & Capacity Building
http://blog.rareconnect.org/social-media-case-studies/raredisease-list-of-hashtags
Social media case studies. Updates to RareConnect.org. List of #RareDisease Hashtags. March 24, 2016. Social media case studies. Hashtags make it easy to follow a conversation and unite a community around a particular rare disease, or just the #RareDisease. Topic in general. Here is a list of just some of the many rare disease hashtags that exist. Don’t see yours in the list? CMD (congenital muscular dystrophy). CRPS (Complex Regional Pain Syndrome). IPF (Idiopathic Pulmonary Fibrosis). Some people use t...
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