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Biobank Research | Maximizing the utility and sustainability of tissue banks: Supporting translational research in Australia through informed regulation and community engagement.

When is a medical finding “incidental”? Recent guidelines from the American College of Medical Genetics. Who should control genomic data? Why does it matter how we regulate the use of human body parts? The Value of Banked Samples for Oncology Drug Discovery and Development. You Are Born with Your Genes: Justice and Protection Against Discrimination in the Use of Genetic Information. March 14, 2014. Works in progress: new technologies and the European Court of Human Rights. March 14, 2014. March 14, 2014.

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Biobank Research | Maximizing the utility and sustainability of tissue banks: Supporting translational research in Australia through informed regulation and community engagement. | biobankresearch.org Reviews

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When is a medical finding “incidental”? Recent guidelines from the American College of Medical Genetics. Who should control genomic data? Why does it matter how we regulate the use of human body parts? The Value of Banked Samples for Oncology Drug Discovery and Development. You Are Born with Your Genes: Justice and Protection Against Discrimination in the Use of Genetic Information. March 14, 2014. Works in progress: new technologies and the European Court of Human Rights. March 14, 2014. March 14, 2014.

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Biobank Research | Maximizing the utility and sustainability of tissue banks: Supporting translational research in Australia through informed regulation and community engagement. | biobankresearch.org Reviews

https://biobankresearch.org

When is a medical finding “incidental”? Recent guidelines from the American College of Medical Genetics. Who should control genomic data? Why does it matter how we regulate the use of human body parts? The Value of Banked Samples for Oncology Drug Discovery and Development. You Are Born with Your Genes: Justice and Protection Against Discrimination in the Use of Genetic Information. March 14, 2014. Works in progress: new technologies and the European Court of Human Rights. March 14, 2014. March 14, 2014.

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biobankresearch.org

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Case Law | Biobank Research

http://www.biobankresearch.org/case-law

1908) 6 CLR 406. A majority of the High Court found that the preserved foetus of a two-headed child may constitute ‘property’ if it has been altered by a process of labour. The majority of the court found that if the corpse (or part thereof) had been altered for the purpose of medical or scientific purposes it acquired a value and became property. Pecar v National Australia Trustees Ltd (Estate of Urlich Deceased). Unreported, 27 November 1996) NSW. 2002] NSWSC 301 NSW. Bazley v Wesley Monash IVF Pty Ltd.

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About the project | Biobank Research

http://www.biobankresearch.org/about-the-project

Tissue banks in Australia provide critical conduits between cancer patients and researchers, improving health outcomes for all Australians. Provide empirical evidence to inform strategies towards ensuring the sustainability of tissue banks in Australia by elaborating on:. Effective policy and practice;. Recommendations for harmonised regulatory reform; and. Mechanisms to stimulate public awareness, trust and support through increased community engagement. Disclosure of (incidental) research findings,.

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Biobank Research | Maximizing the utility and sustainability of tissue banks: Supporting translational research in Australia through informed regulation and community engagement. | Page 124

http://www.biobankresearch.org/page/124

Access to the UK Biobank Resource: Concepts of the Public Interest and the Public Good. March 14, 2014. In this Report, we discuss how the concepts of ‘public interest’ and ‘public good’ might be applied to decisions regarding access to the UK Biobank. The Report is Read More. Access to the UK Biobank Resource: Advising on the Public Interest and the Public Good. March 14, 2014. 8216;Access Arrangements’ for Biobanks: A Fine Line Between Facilitating and Hindering Collaboration. March 14, 2014. Patients ...

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Why does it matter how we regulate the use of human body parts? | Biobank Research

http://www.biobankresearch.org/access/why-does-it-matter-how-we-regulate-the-use-of-human-body-parts

Why does it matter how we regulate the use of human body parts? Journal of Medical Ethics. Http:/ jme.bmj.com/content/40/1/3.abstract. Managing incidental findings in human subjects research: analysis and recommendations. Mar 14, 2014. Making something into nothing: Reforming the no property rule for human tissue. Mar 14, 2014. Human tissue bank regulations. Mar 14, 2014. Mar 14, 2014. A substantial portion of the material provided in the database on this website was collected for a project on personaliz...

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A Window into Third-Generation Sequencing | Biobank Research

http://www.biobankresearch.org/cost-recovery-funding/a-window-into-third-generation-sequencing

A Window into Third-Generation Sequencing. Schadt, Eric E -Turner, Steve -Kasarskis, Andrew. Http:/ hmg.oxfordjournals.org/content/19/R2/R227.abstract. Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research. Mar 14, 2014. Biobanks look to software solutions to handle data deluge. Mar 14, 2014. The Use of Human Tissue in Epidemiological Research; Ethical and Legal Considerations in Two Biobanks in Belgium. Mar 14, 2014. Mar 14, 2014. A substantial...

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cancerbiobanksnsw.org

Biobanking websites | CANCER BIOBANKS NSW

https://cancerbiobanksnsw.org/resources

A site for the biobanking community to share biobank details, events and resources. Skip to primary content. Biobanking Stakeholder Network (BSN). Biobanking Stakeholder Network Symposium. Example of Biobank Newsletter for Participants. This page provides links to websites about biobanking and related activities. Each link also includes a short description of the website to give you an overview of the content, and help you decide if you’d like to read further. Cancer Institute New South Wales (CINSW).

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Telethon Network of Genetic Biobanks :: Telethon Network of Genetic Biobanks

Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patients’ Associations. At present, the Network is constituted of 11 Biobanks. Project aimed a...

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Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patients’ Associations. At present, the Network is constituted of 11 Biobanks. Project aimed a...

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Telethon Network of Genetic Biobanks :: Telethon Network of Genetic Biobanks

Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patients’ Associations. At present, the Network is constituted of 11 Biobanks. Project aimed a...

biobanknetwork.telethon.it

Telethon Network of Genetic Biobanks

Telethon Network of Genetic Biobanks. Telethon Network of Genetic Biobanks (TNGB). Has been founded in 2008 by 7 Biobanks supported by Telethon Foundation. Whose purpose is to collect, preserve and offer to the Scientific Community biological samples and related clinical data from individuals affected by genetic diseases, from their relatives or from healthy control individuals. TNGB also offers its services to Patient Organisations. At present, the Network is constituted of 11 Biobanks. Project aimed at...

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An open community registry of biobanks, biospecimen suppliers, collaborators, and consumers such as researchers and clinicians of biospecimen. Welcome to Bio Bank Registry. Register to be on the World Map. FIND A BIO RESOURCE NEAR YOU. Select a bioresource through entering a product/service or address. Dataworks Development - Freezerworks. LRIG San Diego Chapter. University of Alabama Tissue Collection and Banking Facility. Conversant Bio / Hudson-Alpha Institute for Bio-Technology. LRIG San Diego Chapter.

biobankresearch.org

Biobank Research | Maximizing the utility and sustainability of tissue banks: Supporting translational research in Australia through informed regulation and community engagement.

When is a medical finding “incidental”? Recent guidelines from the American College of Medical Genetics. Who should control genomic data? Why does it matter how we regulate the use of human body parts? The Value of Banked Samples for Oncology Drug Discovery and Development. You Are Born with Your Genes: Justice and Protection Against Discrimination in the Use of Genetic Information. March 14, 2014. Works in progress: new technologies and the European Court of Human Rights. March 14, 2014. March 14, 2014.

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Skip to main navigation. Skip to first column. Skip to second column. Member of the Biobanking and Biomolecular Resources Infrastructure project. Welcome to our website. Tuesday, 31 March 2009 18:19. We started the renewal of this portal recently. It is partially due to the fact that the National Innovation Office (NIH),. According to previous plans,. And expand the National Research Infrastructure Register. Http:/ www.bbmri-lpc.org/. Az MTA rendes tagja. Last Updated on Tuesday, 29 July 2014 19:23.

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