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Stark Life: Stark Enterprises
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All About Goltz Syndrome. Dirty Dash Flyer Fundraiser. I can't get enough of my Maximus! Met Little Bee in 2008, and was doomed from there. He is named Tony because he has a lot of atributes Tony Stark has in the movie Iron Man, he just hasn't figured out how to make that multi-million dollar super hero suit yet. LOL. Tony is everything GEEKY. He loves Apple everything! He is also very happy being a daddy! We know we have a long road ahead of us and Maximus but so far, he is a fighter and our little hero!
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Stark Life: All About Goltz Syndrome
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All About Goltz Syndrome. Dirty Dash Flyer Fundraiser. All About Goltz Syndrome. Rare disorder (actual frequency in the population is unknown). Most cases ( 95%) are isolated (sole occurrence in the family). Few familial occurrences have been published, almost exclusively female-to-female transmission. Most affected cases ( 90 %) are girls. A few (10%) males have been affected; those males are all new genetic events (new mutations). No father-to-son transmission has ever occurred. Genes are on chromosomes.
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Stark Life: Miracle Maximus Fundraiser
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All About Goltz Syndrome. Dirty Dash Flyer Fundraiser. Sunday, May 17, 2015. I wanted to share why this fundraiser we are doing is so important to me and our family (warning you its kind of a long post). I was so lost for the first 11 months of Maximus life. It. I was quickly added and I cannot tell you the relief that it brought me! I've found a group on Facebook and you will not believe the similarities between stories! We met 20 others affected by Goltz Syndrome and their families! I will never forget...
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Stark Life: May 2015
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All About Goltz Syndrome. Dirty Dash Flyer Fundraiser. Friday, May 22, 2015. How cute is he? I took this picture this morning! I just love this boy of mine! Even if he's a defiant 3.5 year old who won't listen and pushes my buttons to the point of breaking. Spent some time at the mall today with mom, and let the kids ride a few of the rides. They loved it! Sunday, May 17, 2015. I wanted to share why this fundraiser we are doing is so important to me and our family (warning you its kind of a long post).
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Stark Life: June 2015
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All About Goltz Syndrome. Dirty Dash Flyer Fundraiser. Monday, June 1, 2015. It's been a long 2 months with this kiddo! And sent us home. We got home about 1:15am. At 2:30 he woke up having another seizure. This time no fever at all. But I know if it's not daddy will take good care of him and it will be ok. He did not want these on at all! I don't blame him. Sleeping after crying most of the ER visit. Sweating profusely after his fever broke. Poor kid! Let's hope to get some sleep tonight! This blog is t...
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Stark Life: My Brave Boy
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All About Goltz Syndrome. Dirty Dash Flyer Fundraiser. Wednesday, January 7, 2015. This brave little boy of mine started preschool yesterday! I cannot believe he is 3 years old and has graduated from Kids On The Move and moved on to early head start. I've struggled with the emotion for the past couple weeks and tried to brave and prepare myself but it didn't make it any easier. He did end up having fun and when we picked him up he was happy to see us! Then today was the first bus ride to and from school!
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Stark Life: July 2013
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All About Goltz Syndrome. Dirty Dash Flyer Fundraiser. Thursday, July 25, 2013. It's been a packed two days at the family conference! Tuesday night we got to have some fun and go to an aquarium! Here are a few pics at the aquarium. Maximus watching the fish. Maximus with his new little girl friend. She is 16 months old and affected by Goltz they are very similar to each other. She is from Iceland and we have been loving getting to know them! A huge fish and a green eel. One of my favorites! I'm sorry it'...
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Stark Life: December 2013
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All About Goltz Syndrome. Dirty Dash Flyer Fundraiser. Sunday, December 22, 2013. Day 16, 17, 18. Day # 16 - me. Day #18 - me again. Day 19 - me again! If I have time I'll blog about Maximus's big 2nd birthday tomorrow! PS I'm pretty sure bambino skipped a day and didn't come back, I'm blaming it on the weather. Thursday, December 19, 2013. Day 14 and 15. Day 14 - My turn. Day #15 - Tony's turn. We are remodeling the basement or trying to finish! Like an inch and a half of it! Can't believe he will be 2!
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Stark Life: July 2015
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All About Goltz Syndrome. Dirty Dash Flyer Fundraiser. Thursday, July 9, 2015. The kids went to the Zoo today for Grandma Day (every Thursday is Grandma Day where the kids go with Grandma or to Grandma's all day). I went along today and it was so fun! Here are the pics:. Looking at the Zebra's and Giraffe's. It's Zoorassic Park right now, they have all the dinosaurs around the park. Baby Orangutan. He was so little and so cute! Video at the end. Elephants (video at the end). Some type of bird, very cool.
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Stark Life: Bambino
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All About Goltz Syndrome. Dirty Dash Flyer Fundraiser. Wednesday, December 24, 2014. I need to do a major update! I promise one soon! Subscribe to: Post Comments (Atom). To donate to Maximus's Goltz Research. Walk into any Mountain America Branch and tell them you'd like to donate to the Miracle Maximus fund. There was an error in this gadget. Tony and I met in 2008, dated for 2 years and married in June of 2010. We love the outdoors, being with our families and learning new things in life!
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