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Cameran's Infantile SpasmsWelcome to Cami's Page!
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Cameran's Infantile Spasms: January 2011
http://camsinfantilespasms.blogspot.com/2011_01_01_archive.html
Wednesday, January 26, 2011. New IEP draft for 2011. Cameran will be turning 6 in a few weeks so that means its time for a new IEP and here is the draft for her meeting this coming Friday:. Pre Vocational: 22 out of 30 skills, she has skills of independence. She needs to improve her functional academics and social skills. Communication: mastered 46.9% of the skills. She uses words and phrases. She needs to improve her ability to answer questions and understanding of conversational rules. Gross Motor she ...
Cameran's Infantile Spasms: New IEP draft for 2011
http://camsinfantilespasms.blogspot.com/2011/01/new-iep-draft-for-2011.html
Wednesday, January 26, 2011. New IEP draft for 2011. Cameran will be turning 6 in a few weeks so that means its time for a new IEP and here is the draft for her meeting this coming Friday:. Pre Vocational: 22 out of 30 skills, she has skills of independence. She needs to improve her functional academics and social skills. Communication: mastered 46.9% of the skills. She uses words and phrases. She needs to improve her ability to answer questions and understanding of conversational rules. Gross Motor she ...
Cameran's Infantile Spasms: June 2010
http://camsinfantilespasms.blogspot.com/2010_06_01_archive.html
Tuesday, June 22, 2010. Man the fist day of summer was yesterday and it was another scorcher of a day! Poor kiddos have been stuck in the house because its too hot to be outisde. So when indoors you just have to make do. Right now they are pretending they are in a car driving through different states (Caleb is also the GPS) and Cami keeps putting her stinky feet in his face.LOL! I also have a 9.5 month old that is trying to walk. Anyday now she will literally be into everything! He and my mom would have ...
Cameran's Infantile Spasms: November 2009
http://camsinfantilespasms.blogspot.com/2009_11_01_archive.html
Sunday, November 01, 2009. Well since Ive got an extra hour I figured I blog with it.LOL! This day has seemed to really drag on and has taken its toll on the kids. Cami was begging for bedtime at 6:30 and Caleb said how much longer till bedtime I say its not even 7:00 yet.awwwww he said.that was a first, normally he is my night owl! But with it being so dark out so early it has really thrown us all off! Besides the time change being a bummer we did enjoy the beautiful bright sun shine of a day today!
Cameran's Infantile Spasms: September 2010
http://camsinfantilespasms.blogspot.com/2010_09_01_archive.html
Thursday, September 23, 2010. Still here.Still breathing. Man how time gets away from you! Cant believe I havent posted since June! And so much has happened since then. One main thing is the kids have started back to a new school and they LOVE it! Its so great to have them at the same school, Cami really took to it well, she loves all her new friends and her new teachers! Couldnt help but laugh and feel sorry for them in all the same, shes a busy gal! A few weeks back she brought some pictures home and I...
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The Gracie Update: June 2012
http://thegracieupdate.blogspot.com/2012_06_01_archive.html
The story of a girl with Infantile Spasms. What is I-S (aka West Syndrome)? Send us an Email. Healthy, Happy, and Having Fun! The Stomach Flu.EWWWW! Schools Out for Summer! Gracie and Mommy Weekend. Wednesday, June 27, 2012. Gracie has been in a great mood all week and she has been so well behaved at daycare. Everyone at daycare has been commenting on it. She's been helpful, cooperative, and a good friend. Lisa, Jeff, and Great Mood Gracie. Posted by Gracie and the Fam. Tuesday, June 26, 2012. Then she w...
The Gracie Update: October 2012
http://thegracieupdate.blogspot.com/2012_10_01_archive.html
The story of a girl with Infantile Spasms. What is I-S (aka West Syndrome)? Send us an Email. A Trip to the Pumpkin Patch. Monday, October 22, 2012. A Trip to the Pumpkin Patch. She was right there helping me every step of the way. But when it came time to actually eat the donuts, I don't think she was all that impressed. Jeff and I thought they were pretty good though. She also said "This is fun! We got three pumpkins.one for dad, one for mom, and a smaller one for Gracie. She especially likes t...While...
The Gracie Update: May 2012
http://thegracieupdate.blogspot.com/2012_05_01_archive.html
The story of a girl with Infantile Spasms. What is I-S (aka West Syndrome)? Send us an Email. Healthy, Happy, and Having Fun. Thursday, May 31, 2012. Healthy, Happy, and Having Fun. Gracie is healthy again which makes for a much happier girl. Here are a few highlights of Gracie's life since I last posted:. Gracie had a dentist appointment and even let the dentist clean her teeth and apply a little flouride! Gracie attended the graduation parties for two of her cousins. She loved taking all of her cou...
The Gracie Update: August 2012
http://thegracieupdate.blogspot.com/2012_08_01_archive.html
The story of a girl with Infantile Spasms. What is I-S (aka West Syndrome)? Send us an Email. Wednesday, August 29, 2012. Dear Mommy, I love you. Love, Gracie. Dear Daddy, STAY HOME! And I thought it said "seizure disorder and allergic to tree nuts". She is a little comedian sometimes.and of course since I laughed, she's been going around the house saying that alot! Lisa, Jeff, and Gracie the germ fighter. Posted by Gracie and the Fam. Wednesday, August 15, 2012. Here are a few updates:. Then she sat dow...
A Day in the Life of Reagan Leigh: Great day
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Saturday, August 8, 2015. Reagan had a really great day today! She slept well, waking up around 7:30am, and she was all smiles! Her body was also very relaxed, but she was alert! Big giant eyes, hands easily controlled, super sweet.it would've been the perfect day for pictures! Well, except the heat and the fact that our photographer is booked up on weekends. Oh well.eventually we will get that family photoshoot done! Reagan was a doll though and we were all loving it (Grandma included)! We were in for a...
Lily Bean's Infantile Spasms Journey: I have much to catch up on...
http://lily-bean.blogspot.com/2009/05/i-have-much-to-catch-up-on.html
Lily Bean's Infantile Spasms Journey. Tuesday, May 26, 2009. I have much to catch up on. I have so much to catch up on. Mostly, Lily is just doing amazing right now. She's really exploding with development, and I just couldn't be prouder. But my dear friend Danielle reminds me in her post. That we need to write about and share it all, because that *IS* life. Life is up and down, and it's not right to just paint a pretty picture of what life with my little epilepsy, autistic baby is like. How many hours a...
Lily Bean's Infantile Spasms Journey: August 2009
http://lily-bean.blogspot.com/2009_08_01_archive.html
Lily Bean's Infantile Spasms Journey. Sunday, August 30, 2009. About a month ago, my wonderful cousin gave us a Seattle Sounders. Jersey signed by all the players on the team to auction off on eBay, and use that money for Lily's hippotherapy. I asked my brother for a little help writing the auction description, and he had an idea to actually run a raffle for the jersey. He took the idea and ran with it, and tonight we pulled the winning ticket. John raised $525, enough for FIVE hippotherapy. I would love...
Lily Bean's Infantile Spasms Journey: So much going on...
http://lily-bean.blogspot.com/2009/09/so-much-going-on.html
Lily Bean's Infantile Spasms Journey. Tuesday, September 1, 2009. So much going on. We visited our neurologist today. We're going to increase Lily's vigabatrin dose a little bit, and then we are having an MRI on Friday to make sure that the side effects she experienced last time on vigabatrin are not present this time. We probably won't do an EEG unless we stop seeing spasms. Sigh. That seems so unattainable to me, and it's hard not knowing if Lily still has hypsarrhythmia. Done during the MRI, and Dr...
The Gracie Update: May 2013
http://thegracieupdate.blogspot.com/2013_05_01_archive.html
The story of a girl with Infantile Spasms. What is I-S (aka West Syndrome)? Send us an Email. Wednesday, May 22, 2013. We are mid-way through May and the theme of this month has been time outdoors, whether it has been needing snowboots (for the big 15-1/2 inches of snow we got on May 2nd) or puddle stomping in our tennis shoes, or hanging out in shorts and tank tops once the temps got warmer. Gracie loves to be outside. Here are a few highlights from May:. I hope May has treated you well. Subscribe to: P...
Lily Bean's Infantile Spasms Journey: So much going on!
http://lily-bean.blogspot.com/2009/04/so-much-going-on.html
Lily Bean's Infantile Spasms Journey. Wednesday, April 15, 2009. So much going on! Wow, what a few weeks it has been. Lots to share! Todd and drove to Jordan's memorial service on March 28. I'd never met Leslie or Devon in person, so it maybe seemed a little odd to spend a day travelling to support their family. But that's the weird thing with this community of IS parents.you don't need. Devon read an incredibly moving eulogy during the service, and the text can be read here. Sometimes, I don't know!
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Cameran's Infantile Spasms
Tuesday, June 28, 2011. Yes thats right our girl is most certainly growing up right before our eyes. Cami has been up to so much here lately. She had her big 6th bday party in Hello Kitty of course her current favorite! We signed her up on a team to play T-Ball, she finished Kindergarden, lost her first 2 teeth, and has gotten her ears pierced! Busy lil gal she is ;). Some other things she learned this year was what state she lives in, Tennessee! What planet she lives on Earth or as she calls it is ERF!
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