dftals.blogspot.com
Defeat ALSA collection of thoughts on living and dying with ALS and the new path as a survivor.
http://dftals.blogspot.com/
A collection of thoughts on living and dying with ALS and the new path as a survivor.
http://dftals.blogspot.com/
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Defeat ALS | dftals.blogspot.com Reviews
https://dftals.blogspot.com
A collection of thoughts on living and dying with ALS and the new path as a survivor.
dftals.blogspot.com
Defeat ALS: October 2009
http://dftals.blogspot.com/2009_10_01_archive.html
Wednesday, October 28, 2009. Bill turns 49 1/2. In January 2005, in the midst of building a ramp for the house, getting Bill ready for his wheelchair and who even remembers what else, our friend Connie asked, "Bill will be 50 this year, right? Indeed, his odometer would turn to 50 in October. Always up for a party, Connie suggested we start planning! I told you.she's a party girl! Every picture tells a story! This one tells of an amazing group of friends, who quickly organized before ALS could snatch the...
Defeat ALS: February 2010
http://dftals.blogspot.com/2010_02_01_archive.html
Friday, February 19, 2010. Rock on Carla Z! If you've not discovered and/or taken the time to read the blog. She is a gifted writer, gamely sharing her ALS journey in full, out loud, living and breathing, color. Late to the game, but yes.I am a fan! With that in mind, you should not be surprised to hear that she's written an informative and (it wouldn't be Carla's if it wasn't! Irreverant guide to living (with a capital "L") with ALS instead of waiting around to die from it. While the. This BLOG is dedic...
Defeat ALS: November 2009
http://dftals.blogspot.com/2009_11_01_archive.html
Wednesday, November 18, 2009. Angels Among Us.continued. So…hospice is a little tricky, psychologically. Timing is everything! When you turn to hospice, you are admitting that the end of your physical life is somewhat imminent and that you do not want to take any extraordinary measures to extend it. You are going to die. Soon. And you are ok (more or less) with the next steps. Not a decision to be considered lightly! Chaplains can address spiritual needs. Social workers can bring in community resources.
Defeat ALS: January 2013
http://dftals.blogspot.com/2013_01_01_archive.html
Friday, January 11, 2013. One of the BEST daily emails I subscribe to is called Peaceful Daily. Thank you Sandy for your daily wisdom, and especially for this story.a reminder to me of all the "shit" that's been shoveled my way. it doesn't have to bury me, it can be a way up and out. How are you shaking off the dirt and stepping into your freedom. It's always a choice! With each shovel of dirt that hit his back, the donkey was doing something amazing. He would shake it off and take a step up. As ...MORAL...
Defeat ALS: August 2010
http://dftals.blogspot.com/2010_08_01_archive.html
Thursday, August 5, 2010. Hospital Gown Confidence = Oxymoron. With my confidence boosted, I was ready for surgery! At 5:30AM, the pre-op nurses, put a quick and decisive end to my adorable-ness when they handed me a bluish-gray, standard-issue, one-size-fits-none, hospital gown w/unmatched robe, white compression stockings, gray slipper socks with white grippey stuff on the top AND the bottom and an over sized "hat" that most self respecting cafeteria workers would not be caught dead in! It will probabl...
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Carlamuses: “I’m Singing”
http://carlamuses.blogspot.com/2010/05/im-singing.html
Carla is a mother, humorist and writer. She writes about life, art, politics and the things that scare her. Wednesday, May 12, 2010. 8220;I’m Singing”. The Penultimate Musing on Carla Zilber-Smith’s blog, by Mac Zilber. 8220;My arm is all fucked up,” she weeps, her face a cacophony of agony. I am assured by her nighttime caregiver, Alexa, that all is well, and that I can go back to sleep. Alexa moves her bed into Carla’s room. I go back to sleep. There’s a knock on the door. Carla wants to see you. 8220;...
Carlamuses: Maclen Muses: A quick update
http://carlamuses.blogspot.com/2010/04/maclen-muses-quick-update.html
Carla is a mother, humorist and writer. She writes about life, art, politics and the things that scare her. Saturday, April 17, 2010. Maclen Muses: A quick update. The first, and most important thing you need to know about Carla's current physical state, is that the 'S' key on her keyboard is out of commission. Now, it was one thing when she lost her ability to walk, and another thing when she lost her ability to croon like so many songbirds, but imagine losing your ability to pluralize! You both have be...
Carlamuses: Megan
http://carlamuses.blogspot.com/2010/04/megan.html
Carla is a mother, humorist and writer. She writes about life, art, politics and the things that scare her. Tuesday, April 13, 2010. I myself am not much of a "prayer" but if you are would you please save room in your prayers for my friend Megan Mishork. She is a feisty, wonderful 25 year old with ALS who is now in ICU battling double pneumonia. Trust me pneumonia and ALS are a very dangerous combination so she needs all our good energy. Thank you. I love you, Carla. Good thoughts, energy and love to you...
fashionablegiving.blogspot.com
Fashionable Giving: Gift Giving – a New Perspective
http://fashionablegiving.blogspot.com/2009/10/gift-giving-new-perspective.html
Make your gift giving matter! Friday, October 23, 2009. Gift Giving – a New Perspective. Giving gifts is a time honored tradition in almost every culture. We celebrate milestones like birthdays, weddings, anniversaries, graduation, bar/bat mitzvahs, Quincineras, engagements, new babies and more with gifts. Winter holidays such as Kwanzaa, Hanukkah and Christmas are typically ALL about the gifts! Giving mood. I hope that you will keep the Heart of Hope bracelets. How do you offer your services and have th...
fashionablegiving.blogspot.com
Fashionable Giving: Calm in the midst of a storm.
http://fashionablegiving.blogspot.com/2009/09/calm-in-midst-of-storm.html
Make your gift giving matter! Saturday, September 26, 2009. Calm in the midst of a storm. I have two hats when I write. When I wear my Fashionable Giving hat, the writing is dedicated to my business and the people I love. I work to maintain a journalist's perpective, more curious, expressive and committed to learning and sharing information about causes that have touched me directly or, to those closest to me. When I wear my. Because what has my attention applies equally to both audiences. Please share y...
fashionablegiving.blogspot.com
Fashionable Giving: Off the bench....Back in the lineup again!!
http://fashionablegiving.blogspot.com/2010/07/off-benchback-in-lineup-again.html
Make your gift giving matter! Wednesday, July 21, 2010. Off the bench.Back in the lineup again! I am a huge baseball fan! And…even though they regularly break my heart, I remain true (29 years and counting) to the orange and black jerseys worn by the San Francisco Giants. My brother, an equally devoted Oakland A’s fan, and a few other friends have offered to pay for therapy! Hopefully, this bit of insight into my psyche sets a context for this post. It’s a team game that takes 9 players, plus a cas...
fashionablegiving.blogspot.com
Fashionable Giving: August 2009
http://fashionablegiving.blogspot.com/2009_08_01_archive.html
Make your gift giving matter! Friday, August 21, 2009. What can 1 person do? I'm about to find out! I am passionately committed to the premise that one person, can indeed make a significant difference in the world! Inspired by Danny Brown and the. 12 for 12K Challenge. Please join me. 1 1 = unlimited possibility! Jewelry with a conscience. Subscribe to: Posts (Atom). 8220;Be the change you want to see in the world.” Gandhi. Heart of Hope Bracelet benefiting ALS. Kathie Lichtig Studio Fans.
fashionablegiving.blogspot.com
Fashionable Giving: School was NEVER this much fun!
http://fashionablegiving.blogspot.com/2010/07/school-was-never-this-much-fun.html
Make your gift giving matter! Friday, July 23, 2010. School was NEVER this much fun! I'm a student again! I've returned to a learning mode, working to learn the craft of blogging. In the past few weeks, I've read a number of blogs and have stumbled onto some great practical resources. One of them is pro-blogger.net. So, while it's a little after the fact, here is my entry for Darren's challenge:. Your first post: What One Person Can Do. A post you enjoyed writing the most: Angels Among Us. 8220;Be the ch...
fashionablegiving.blogspot.com
Fashionable Giving: What can 1 person do?
http://fashionablegiving.blogspot.com/2009/08/what-can-1-person-do.html
Make your gift giving matter! Friday, August 21, 2009. What can 1 person do? I'm about to find out! I am passionately committed to the premise that one person, can indeed make a significant difference in the world! Inspired by Danny Brown and the. 12 for 12K Challenge. Please join me. 1 1 = unlimited possibility! Jewelry with a conscience. Subscribe to: Post Comments (Atom). 8220;Be the change you want to see in the world.” Gandhi. Heart of Hope Bracelet benefiting ALS. Kathie Lichtig Studio Fans.
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Music | Duet for Theremin and Lap Steel
DfTaLS with Bill Brovold - Anagram. DfTaLS with Helton and Bragg. Live at Pine Lake June 2015. May 19, 2015 Bells from Saturn. Creative Music in Hapeville Sept 2014. Duet for Theremin and Lap Steel with The Shaking Ray Levis and friends. Live in Studio with Rob Rushin. TOJO with Shaking Ray Levis and friends. Duet for Theremin and Lap Steel with Shaking Ray Levis and friends. Duet for Theremin and Lap Steel with Andrew Weathers - Thread. Live in Studio Nov 1 2013 part 1. Live in Studio Nov 1 2013 part 2.
Defeat ALS
Friday, January 11, 2013. One of the BEST daily emails I subscribe to is called Peaceful Daily. Thank you Sandy for your daily wisdom, and especially for this story.a reminder to me of all the "shit" that's been shoveled my way. it doesn't have to bury me, it can be a way up and out. How are you shaking off the dirt and stepping into your freedom. It's always a choice! With each shovel of dirt that hit his back, the donkey was doing something amazing. He would shake it off and take a step up. As ...MORAL...
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