sweetsweetangels.blogspot.com
Angelman Syndrome, Life as an Angel: Minocycline results are out!
http://sweetsweetangels.blogspot.com/2014/12/minocycline-results-are-out.html
Friday, December 12, 2014. Minocycline results are out! Well it's been a while since we posted but we have news! Many of you may remember that, in 2012, Brady took part in a clinical trial for a potential treatment for Angelman Syndrome. The medication was an antibiotic called minocycline. We have been fairly quiet while we anxiously awaited the results to be published.now they have been published and we can speak freely about our experience. His communication is amazing and we have gone from 10 words pr...
sweetsweetangels.blogspot.com
Angelman Syndrome, Life as an Angel
http://sweetsweetangels.blogspot.com/2015/03/okay-so-i-often-hear-phrase-i-hate.html
Tuesday, March 24, 2015. Okay, so I often hear the phrase "I hate Angelman Syndrome".I have mixed emotions about how I feel when I hear or read this statement. Angelman Syndrome is not who my child is but it is a big part. He is this handsome, stubborn, strong-willed, happy, quirky, silly little boy. He can be a bit rebellious like any preteen and I don't believe any of this comes from AS.this is who he would have been with or without this disorder. Posted by angelwings @ 12:38 AM. Read Brady's Story Here.
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Angelman Syndrome, Life as an Angel: Eegs before and after mino.
http://sweetsweetangels.blogspot.com/2014/12/eegs-before-and-after-mino.html
Saturday, December 13, 2014. Eegs before and after mino. These need no explanation :). Posted by angelwings @ 9:47 AM. Read Brady's Story Here. See my complete profile. What is Angelman Syndrome? Minocycline results are out! Brady riding the jetski. Chatting in the car. Brady chatting in bed. Celebrating 3yrs of no seizures. Part 1 of July 11, 2011. Part 2 of July 11 2011. Angelman Forum and Chat. Cure Angelman Syndrome - FAST. Information on Angelman Syndrome at the Wikipedia Website. Angel Site by a Dad.
sweetsweetangels.blogspot.com
Angelman Syndrome, Life as an Angel: Celebrating 3yrs of no seizures
http://sweetsweetangels.blogspot.com/2014/07/httpyoutu.html
Wednesday, July 30, 2014. Celebrating 3yrs of no seizures. Posted by angelwings @ 1:53 AM. Read Brady's Story Here. See my complete profile. What is Angelman Syndrome? Part 1 of July 11, 2011. Part 2 of July 11 2011. Well we are getting ready for a big week :) Our C. So today I am cleaning, getting ready for a case m. Such powerful messages in these pics. Bracelets and cookbooks for FAST. Just got a reminder about our blo. So just a quick post. Things are going very well h. Angelman Forum and Chat.
sweetsweetangels.blogspot.com
Angelman Syndrome, Life as an Angel: Such powerful messages in these pics.
http://sweetsweetangels.blogspot.com/2014/06/such-powerful-messages-in-these-pics.html
Tuesday, June 24, 2014. Such powerful messages in these pics. Brady, Chels, and Sierra all believing in a cure. July 2011 running for Brady as he fought for his life in a coma due to seizures. Brady's running buddies running for awareness and believing in a cure. Posted by angelwings @ 1:02 AM. Read Brady's Story Here. See my complete profile. What is Angelman Syndrome? Bracelets and cookbooks for FAST. Just got a reminder about our blo. So just a quick post. Things are going very well h.
sweetsweetangels.blogspot.com
Angelman Syndrome, Life as an Angel
http://sweetsweetangels.blogspot.com/2014/02/so-just-quick-post.html
Tuesday, February 18, 2014. They have shown us that a cure is "not only likely, but eminent". I promise to share trials results when the results are released ;) Anyway, Im tired so thats it for tonight. Keep watching our blog because I will be posting a firstgiving fundraiser link for FAST. Will post more soon! Posted by angelwings @ 10:19 PM. Read Brady's Story Here. See my complete profile. What is Angelman Syndrome? Well its been a while but I wanted to let everyone. Tampa Bound NEXT WEEK!
sweetsweetangels.blogspot.com
Angelman Syndrome, Life as an Angel: Bracelets and cookbooks for FAST
http://sweetsweetangels.blogspot.com/2014/06/bracelets-and-cookbooks-for-fast.html
Tuesday, June 24, 2014. Bracelets and cookbooks for FAST. To hearing about the awesome recipes that you try out from the books and to seeing pics of those bracelets on your arms. #cureangelman. Posted by angelwings @ 12:32 AM. Read Brady's Story Here. See my complete profile. What is Angelman Syndrome? Just got a reminder about our blo. So just a quick post. Things are going very well h. Well its been a while but I wanted to let everyone. Tampa Bound NEXT WEEK! Brady will be participati.
sweetsweetangels.blogspot.com
Angelman Syndrome, Life as an Angel: Part 1 of July 11, 2011
http://sweetsweetangels.blogspot.com/2014/07/part-1-of-july-11-2011.html
Saturday, July 12, 2014. Part 1 of July 11, 2011. So July 11th was a very memorable day for us, with lots of reasons to celebrate life. Three years ago, a nightmare was beginning for our family. I called my husband at work because I just had a bad feeling that something was about to happen to Brady. Posted by angelwings @ 2:14 AM. Read Brady's Story Here. See my complete profile. What is Angelman Syndrome? Part 2 of July 11 2011. Well we are getting ready for a big week :) Our C. Interactive Seizure Diar...
sweetsweetangels.blogspot.com
Angelman Syndrome, Life as an Angel: Brady chatting in bed
http://sweetsweetangels.blogspot.com/2014/07/brady-chatting-in-bed.html
Wednesday, July 30, 2014. Brady chatting in bed. Posted by angelwings @ 2:03 AM. Read Brady's Story Here. See my complete profile. What is Angelman Syndrome? Celebrating 3yrs of no seizures. Part 1 of July 11, 2011. Part 2 of July 11 2011. Well we are getting ready for a big week :) Our C. So today I am cleaning, getting ready for a case m. Such powerful messages in these pics. Bracelets and cookbooks for FAST. Angelman Forum and Chat. Cure Angelman Syndrome - FAST. Angel Emma Lynn's Blog.
sweetsweetangels.blogspot.com
Angelman Syndrome, Life as an Angel: Part 2 of July 11 2011
http://sweetsweetangels.blogspot.com/2014/07/part-2-of-july-11-2011.html
Saturday, July 12, 2014. Part 2 of July 11 2011. Brady was struggling to breathe. The nurses and docs were huddled around him, baffled as to what was going on. They mentioned putting the tube back but we shuttered at the thought of that. They thought that maybe I could calm him down and it would help his breathing, we they handed him to me and I sat holding him in a chair. He was taken down for surgery and came back a new kid. This time the docs asked us to stay with Brady while the tube was removed.
