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Sugar-free Sweetie Pie

Thursday, March 31, 2011. I Love a Tubie! This is the motto of a website I stumbled upon the other day. It is called Feeding Tube Awareness. I especially love their Facebook page! I don't know if there are any others affected by Glycogen Storage Disease, but I hope to find out soon. Posted by The Girls' Mom. I really wish I had found these about 9 months ago! The website has lots of things that help medical visits/procedures/stays a little more enjoyable for little ones. Posted by The Girls' Mom. Pompe w...

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Sugar-free Sweetie Pie | gsd1a.blogspot.com Reviews
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Thursday, March 31, 2011. I Love a Tubie! This is the motto of a website I stumbled upon the other day. It is called Feeding Tube Awareness. I especially love their Facebook page! I don't know if there are any others affected by Glycogen Storage Disease, but I hope to find out soon. Posted by The Girls' Mom. I really wish I had found these about 9 months ago! The website has lots of things that help medical visits/procedures/stays a little more enjoyable for little ones. Posted by The Girls' Mom. Pompe w...
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1 about us
2 what is gsd
3 sweetie pies story
4 our food list
5 no comments
6 email this
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8 share to twitter
9 share to facebook
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Sugar-free Sweetie Pie | gsd1a.blogspot.com Reviews

https://gsd1a.blogspot.com

Thursday, March 31, 2011. I Love a Tubie! This is the motto of a website I stumbled upon the other day. It is called Feeding Tube Awareness. I especially love their Facebook page! I don't know if there are any others affected by Glycogen Storage Disease, but I hope to find out soon. Posted by The Girls' Mom. I really wish I had found these about 9 months ago! The website has lots of things that help medical visits/procedures/stays a little more enjoyable for little ones. Posted by The Girls' Mom. Pompe w...

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1

Sugar-free Sweetie Pie: November 2010

http://www.gsd1a.blogspot.com/2010_11_01_archive.html

Monday, November 8, 2010. Sweetie Pie's meal times don't look like most peoples'. 85% of it doesn't involve his mouth. Previous to his diagnosis, I noticed that despite his insatiable hunger he refused any solid foods. I remember being so happy the day he turned four months because I could start feeding him rice cereal and and giving him some things in a bottle. I was looking forward to him feeling full and letting me get some sleep and anything else done for that matter. That was not to be. Cornstarch i...

2

Sugar-free Sweetie Pie: Our Food List

http://www.gsd1a.blogspot.com/p/our-food-list.html

This is a food list that we have complied and will be adding to. These are what works for our Sweetie Pie. Please always consult your doctor if you have a question about adding it to your diet. All veggies are safe for consumption accept for tomatoes and sweet potatoes as they contain fructose. Carrots, peas, and corn also have a small amount of fructose and should be consumed in small amounts. So far Evan's favorites are cucumber and celery. Subscribe to: Posts (Atom). YOU SEARCH OR SHOP. I Love a Tubie!

3

Sugar-free Sweetie Pie: Sweetie Pie's Story

http://www.gsd1a.blogspot.com/p/sweetie-pies-story.html

August 8th 2010, Evan came in to our world and broke the mold. He is our fifth child and only son, our little prince. We had anxiously awaited his arrival not to realize the journey he would take us on. Looking back now and the hours that were to follow, I wouldn't have had it any other way! He may not have survived a longer delivery. Normal, fasting blood sugar should be between 70-100. The nurses and doctors had never experienced such a low before. In fact our OB commented "dead people have a b...He sp...

4

Sugar-free Sweetie Pie: Awesome tube accessory!

http://www.gsd1a.blogspot.com/2011/03/awesome-tube-accessory.html

Thursday, March 31, 2011. I really wish I had found these about 9 months ago! When Evan had his NG tube I always hated the tape on his face, I think besides the tube in his nose the tape made people stare just as much. These cute little "stickers" made from special medical tape would have made the experience a little more whimsical! The website has lots of things that help medical visits/procedures/stays a little more enjoyable for little ones. Posted by The Girls' Mom. April 1, 2011 at 11:01 AM.

5

Sugar-free Sweetie Pie: "Do not fear your destiny"

http://www.gsd1a.blogspot.com/2011/03/do-not-fear-your-destiny.html

Saturday, March 5, 2011. Do not fear your destiny". Last week I read a beautiful email. I wanted to share something it read. It was written by a man from Brazil named Ismael Portilho. I do not know him personally but he posts often on a email list I belong to for Glycogen Storage Diseases. He has Type II, known as Pompe Disease. Do not fear your destiny", he said, "If you'll be bound to a bed or if you'll be cured, be happy for the life you'll have. Do not tie your happiness to things that are not on...

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alaskanicecubes.blogspot.com alaskanicecubes.blogspot.com

The Neilsons: February 2010

http://alaskanicecubes.blogspot.com/2010_02_01_archive.html

Sunday, February 7, 2010. Wyatt James Neilson aka Thomas turned 4 in December! Posted by Baden and Emily. Our little raccoon turned 2 in November! I can't believe how fast time moves. We are so blessed(and yes, sometimes cursed) to have Troy in our family! He is a fun loving, playful, helpful, and tough little guy. He is add more words to his vocabulary every day and his tiny voice is the cutest. He gives the best hugs and kisses ( his other nickname is 'Frenchie'). Posted by Baden and Emily.

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The Neilsons: January 2010

http://alaskanicecubes.blogspot.com/2010_01_01_archive.html

Sunday, January 24, 2010. Homemade Rootbeer and Gingerbread Houses. One of the things we did together this Christmas Break was make homemade root beer. All of the boys were really curious and loved to watch the mist bubbles created by the dry ice. Another tradition we have is making gingerbread houses. This is our gingerbread mobile home complete with our shed, flamingo and soon to be pool:). Posted by Baden and Emily. Saturday, January 16, 2010. This is my little raccoon in a tree in the front yard!

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The Neilsons: Parker's Birthday! ....finally

http://alaskanicecubes.blogspot.com/2010/03/parkers-birthday-finally.html

Sunday, March 28, 2010. Parker turned 6 this February! He has grown and changed so much this past year it still amazes me. We all had a rough time adjusting to our new surroundings last April, but things have calmed down for the most part as far as the boys learning their new boundries. Of course there is always room for improvement:) Thanks Bunkers for being so patient;). We celebrated Parker's birthday twice! At home we sang to him with Rocky Road ice cream. (Pawpaw Murray would be proud:). Also, that ...

alaskanicecubes.blogspot.com alaskanicecubes.blogspot.com

The Neilsons: What A Fun Age!

http://alaskanicecubes.blogspot.com/2010/04/what-fun-age.html

Thursday, April 1, 2010. What A Fun Age! Napoleon Dynamite meets Michael Jackson? So I think God made two- year- olds so cute and funny to counter all of the frustration parents feel during the "terrible twos". This was one of those times when I wished Troy would stay this way forever. In his own language of course:) He drug be by my hand into the kitchen stopped and pointed excitedly at my shelf and shouted,"HAPPY BIRDAY TO YOU! Posted by Baden and Emily. This one cracks me up! April 4, 2010 at 5:58 PM.

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The Neilsons: November 2009

http://alaskanicecubes.blogspot.com/2009_11_01_archive.html

Thursday, November 12, 2009. I am so proud of Baden. I always told him that I never worried about starving around him because he was so good at catching fish. Now I know for SURE we won't starve. Baden shot a beautiful 12 lb wild turkey in the head with a .22 from our deck. AWESOME! What's even better is that it actually tastes like a regular store bought turkey. I was always worried that wild birds would taste weird, but it was so yummy! Posted by Baden and Emily. Just a cute pic. Most of my family atte...

alaskanicecubes.blogspot.com alaskanicecubes.blogspot.com

The Neilsons: October 2008

http://alaskanicecubes.blogspot.com/2008_10_01_archive.html

Thursday, October 2, 2008. So I am pretty pumped about conference this weekend. I really need a spiritual shot in the arm. My sister Bethany. Posted this Conference Packet. On her blog and I thought it would be a really cool way to keep notes and make conference fun for kids. Posted by Baden and Emily. Subscribe to: Posts (Atom). Ruby and Kevin II. Picture Window template. Powered by Blogger.

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The Neilsons: Coon Skin Caps and Superheroes!

http://alaskanicecubes.blogspot.com/2010/03/coon-skin-caps-and-superheroes.html

Tuesday, March 9, 2010. Coon Skin Caps and Superheroes! We found these caps in Murdochs and we couldn't resist:). Ya gotta love bunny boots! Meet "Superfaster" This is the superhero named by Parker himself. It cracks me up. Author of all chaos during school:). Posted by Baden and Emily. I love how hes wearing the mask upsidedown! Hes the cutest bandit ever! March 11, 2010 at 8:35 PM. And we are totally loving superfaster! Holy cow, im still recovering from laughing so hard! March 11, 2010 at 8:36 PM.

alaskanicecubes.blogspot.com alaskanicecubes.blogspot.com

The Neilsons: December 2008

http://alaskanicecubes.blogspot.com/2008_12_01_archive.html

Sunday, December 28, 2008. While teaching the boys about the history of the "First Thanksgiving" we decided to make native head bands. The boys cut feathers and colored the headbands. As soon as they tried them on they began running around. It was soo fun to watch but they didn't want their picture taken so I had to chase them down. Posted by Baden and Emily. Sunday, December 21, 2008. This year we celebrated Thanksgiving by partying out at Brian and Lorna's house. Posted by Baden and Emily.

alaskanicecubes.blogspot.com alaskanicecubes.blogspot.com

The Neilsons: October 2009

http://alaskanicecubes.blogspot.com/2009_10_01_archive.html

Friday, October 23, 2009. Marmie and Papaw's House. The US. border in Washington. So that we could see my parents and my brother Stephen's family before we continued on to Montana. While we were in Quincy, we went up to Leavenworth . Its a really cool Bavarian. My dad took us to his gun club range so we could all shoot. I thought the boys would be more excited but they didn't like the loud noises and comforted themselves by collecting shot gun shells. Baden and I had lots of fun though. One only has to l...

alaskanicecubes.blogspot.com alaskanicecubes.blogspot.com

The Neilsons: April 2010

http://alaskanicecubes.blogspot.com/2010_04_01_archive.html

Thursday, April 1, 2010. While all the boys where playing outside Troy came running over frantic and started pulling me toward the swing set. By then I heard Wyatt's yell for help. Baden and I ran over thinking the worst when we found Wyatt stuck in the swing with his head in the mud. Posted by Baden and Emily. This is some of the fun the boys have with daddy while I am at Primary meetings! Posted by Baden and Emily. What A Fun Age! Napoleon Dynamite meets Michael Jackson? Posted by Baden and Emily.

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Sugar-free Sweetie Pie

Thursday, March 31, 2011. I Love a Tubie! This is the motto of a website I stumbled upon the other day. It is called Feeding Tube Awareness. I especially love their Facebook page! I don't know if there are any others affected by Glycogen Storage Disease, but I hope to find out soon. Posted by The Girls' Mom. I really wish I had found these about 9 months ago! The website has lots of things that help medical visits/procedures/stays a little more enjoyable for little ones. Posted by The Girls' Mom. Pompe w...

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