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Registration | Hirschsprung Disease Research Collaborative

Hirschsprung Disease Research Collaborative. Thank you for your interest in joining the Hirschsprung Disease Research Collaborative (HDRC)! Recruiting participants and their families for Hirschsprung disease research. Providing input into research methods and questions. Accessing de-identified HDRC data for ancillary studies. Will allow great advancements in our understanding of Hirschsprung disease. Denotes a required field. Secondary Contact at Institution. What code is in the image?

http://www.hdrcstudy.org/

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CONTACTS AT HDRCSTUDY.ORG

Johns Hopkins University

Maria Sosa

733 N●●●●●adway

Bal●●●ore , Maryland, 21205

US

1.41●●●●7536
ms●●●●@jhmi.edu

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Johns Hopkins University

Maria Sosa

733 N●●●●●adway

Bal●●●ore , Maryland, 21205

US

1.41●●●●7536
ms●●●●@jhmi.edu

View this contact

Johns Hopkins University

Maria Sosa

733 N●●●●●adway

Bal●●●ore , Maryland, 21205

US

1.41●●●●7536
ms●●●●@jhmi.edu

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Registration | Hirschsprung Disease Research Collaborative | hdrcstudy.org Reviews
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Hirschsprung Disease Research Collaborative. Thank you for your interest in joining the Hirschsprung Disease Research Collaborative (HDRC)! Recruiting participants and their families for Hirschsprung disease research. Providing input into research methods and questions. Accessing de-identified HDRC data for ancillary studies. Will allow great advancements in our understanding of Hirschsprung disease. Denotes a required field. Secondary Contact at Institution. What code is in the image?
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1 jump to content
2 hdrc protocols
3 study documents
4 hirschsprung publications
5 conference calls
6 faqs
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Registration | Hirschsprung Disease Research Collaborative | hdrcstudy.org Reviews

https://hdrcstudy.org

Hirschsprung Disease Research Collaborative. Thank you for your interest in joining the Hirschsprung Disease Research Collaborative (HDRC)! Recruiting participants and their families for Hirschsprung disease research. Providing input into research methods and questions. Accessing de-identified HDRC data for ancillary studies. Will allow great advancements in our understanding of Hirschsprung disease. Denotes a required field. Secondary Contact at Institution. What code is in the image?

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hdrcstudy.org hdrcstudy.org
1

Pages that link to Registration | Hirschsprung Disease Research Collaborative

https://www.hdrcstudy.org/node/7/backlinks

Hirschsprung Disease Research Collaborative. Raquo; Pages that link to Registration. Pages that link to Registration. What links here (active tab). Username or e-mail *.

2

Study Documents | Hirschsprung Disease Research Collaborative

https://www.hdrcstudy.org/documents

Hirschsprung Disease Research Collaborative. Raquo; Study Documents. To help you learn more about the HDRC, here you can view the study questionnaire and the consent form used for enrollment at Johns Hopkins. Registered HDRC Collaborative Champions will also have access to example text for IRB submission at their institution and more detailed study protocols. The HDRC has been approved by the Johns Hopkins Medical Institutions IRB, and the most recent approval is also attached here. Username or e-mail *.

3

HDRC Participation Protocols | Hirschsprung Disease Research Collaborative

https://www.hdrcstudy.org/protocols

Hirschsprung Disease Research Collaborative. Raquo; HDRC Participation Protocols. Two options exist for participation in the HDRC, including active enrollment and referral of patients to the coordinating center. Brief overviews of the requirements for each type of participation are provided below. Registered Collaborative Champions have access to IRB templates and all study materials for participation. 2 Referral to Coordinating Center. Username or e-mail *.

4

Membership | Hirschsprung Disease Research Collaborative

https://www.hdrcstudy.org/membership

Hirschsprung Disease Research Collaborative. Below is a list of Collaborative Champions, and their institutions, that are currently actively enrolling or referring patients to the HDRC. Collaborative Champions at Actively Enrolling Sites. Nicole Chandler, All Children's Hospital. Phillip Frykman, Cedars-Sinai Medical Center. Megan Durham, Children's Healthcare of Atlanta. Douglas Tamura, Children's Hospital of Central California. Belinda Dickie, Cincinnati Children's Hospital Medical Center. Allan Goldst...

5

User account | Hirschsprung Disease Research Collaborative

https://www.hdrcstudy.org/user/password

Hirschsprung Disease Research Collaborative. Raquo; User account. Raquo; User account. Request new password (active tab). Username or e-mail address *.

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Registration | Hirschsprung Disease Research Collaborative

Hirschsprung Disease Research Collaborative. Thank you for your interest in joining the Hirschsprung Disease Research Collaborative (HDRC)! Recruiting participants and their families for Hirschsprung disease research. Providing input into research methods and questions. Accessing de-identified HDRC data for ancillary studies. Will allow great advancements in our understanding of Hirschsprung disease. Denotes a required field. Secondary Contact at Institution. What code is in the image?

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