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Welcome to ASAP | hurtingbuthopeful.org Reviews

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Welcome to ASAP

http://www.hurtingbuthopeful.org/mission.html

We are a community of patients, family members, and friends dedicated to raising awareness of ankylosing spondylitis and related diseases in both the general public and the medical community. We support the mission of the Spondylitis Association of America. Most people have never heard of ankylosing spondylitis. Unfortunately, medical professionals and researchers are no exception. This is surprising because a relatively large number of people, estimated. We believe it is a problem of awareness. On Faceb...

2

Welcome to ASAP

http://www.hurtingbuthopeful.org/projects.html

April is Spondylitis Awareness Month, Tell Us Your Story! April 4, 2011. Please see Kelly's Blog to learn how to participate:. Http:/ hurtingbuthopeful.wordpress.com/2011/04/01/hope-apples/. HurtingButHopeful.org is proud to announce a partnership with TheFeedingEdge.com with the launch of a joint effort. Our Hope and Apples Campaign is only the first project of many to come. April is Spondylitis Awareness Month Poster Project. April 1, 2010. As you all know, April is spondylitis awareness month. One...

3

Welcome to ASAP

http://www.hurtingbuthopeful.org/links.html

Spondylitis Associaiton of America. The largest non-profit organization in the US dedicating all of its resources to fighting AS. The site contains invaluable information for spondylitis patients and their families. There you will find ways to support AS research, information on becoming an AS advocate, and a forum where you can ask and receive advice on AS-related issues. The spondylorathritis research and training network is a site for medical professionals dedicated to AS research, awareness, and trai...

4

Welcome to ASAP

http://www.hurtingbuthopeful.org/about_AS.html

Basic Information about Ankylosing Spondylitis. One mission of ASAP is to raise awareness about Ankylosing Spondylitis in order to stimulate research into the disease. The critical goals in AS research are as follows:. 1 Improve our ability to diagnose the disease. 2 Determine the cause of the disease. 3 Understand the mechanism by which fusion takes place. 4 Develop therapies that treat the source, rather than the symptoms, of the disease. Consortium. Please see below for more details.

5

Welcome to ASAP

http://www.hurtingbuthopeful.org/home.html

On Facebook and join in on the discussion. Suggest an awareness project and get involved! Store, all sale profits are donated directly to the Spondylitis Association of America. ASAP started as a Facebook page in December, 2009. Our goal is to promote AS awareness by devising media projects, fund raisers, and other activities in support of the SAA. You don't have to be a patient to get involved, you just have to care! Supports AS research and patient education. They are a four star.

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endlesstrax.com endlesstrax.com

The Ambivalence of Change |

https://endlesstrax.com/2014/06/13/ambivalence-of-change

My Endless struggle with Ankylosing Spondylitis, and the things that keep me straight. The Ambivalence of Change. June 13, 2014. Change can be scary, provocative, and hysteria inducing. Change can also be exciting and positive! In a few short months I will encountering the biggest change of my life. And yes, that means to me at least even bigger than being diagnosed with a chronic illness like Ankylosing Spondylitis. I most certainly have done a lot of homework! Do you have any advice for me? Click to em...

endlesstrax.com endlesstrax.com

2016 Calendar – Raising Money for Auto-Immune Arthritis |

https://endlesstrax.com/2015/05/08/2016-calendar

My Endless struggle with Ankylosing Spondylitis, and the things that keep me straight. 2016 Calendar – Raising Money for Auto-Immune Arthritis. May 8, 2015. In Exercise and Sport. Something amazing has happened. Something I would have never dreamed could happen to me. Guessed it yet? That’s right, I’m now a pin up calendar model! Well maybe not exactly in the traditional sense. After all I do have my clothes on. Why are you in a calendar you may ask? Helgi is a legend. The calendar features 12 individual...

endlesstrax.com endlesstrax.com

About Me |

https://endlesstrax.com/about

My Endless struggle with Ankylosing Spondylitis, and the things that keep me straight. I never got the hang of smiling. Welcome to my blog. I hope you enjoy your visit. In the beginning of 2007 I began to suffer with back pain and Sacroiliac Joint pain. This is often treatable and curable. However occasionally this is not always the case and just the start of something more serious. Unfortunately the latter was true for me, and in April 2010 I was finally diagnosed with Ankylosing Spondylitis. Click to s...

endlesstrax.com endlesstrax.com

Friday’s Focus: An Interview With Gerry Dance |

https://endlesstrax.com/2014/03/28/fridays-focus-gerry-dance

My Endless struggle with Ankylosing Spondylitis, and the things that keep me straight. Friday’s Focus: An Interview With Gerry Dance. March 28, 2014. Today I am talking to Gerry Dance. Who does remarkable things, despite his Ankylosing Spondylitis. AS) You can follow Gerry on Twitter. You can also support him by sponsoring him in his fundraising efforts. Lets jump right into it. Gerry Dance – London Marathon 2013. Thank you Gerry for taking time to answer a few questions. A 1965 Triumph Tiger 90). Mandy ...

endlesstrax.com endlesstrax.com

Ankylosing Spondylitis |

https://endlesstrax.com/ankylosing-spondylitis

My Endless struggle with Ankylosing Spondylitis, and the things that keep me straight. All information is taken from the NASS website. And their wonderful guidebook for patients. Follow the links for more information about Ankylosing Spondylitis, and the great work NASS do). What is Ankylosing Spondylitis? Ankylosing Spondylitis (AS) is a painful, progressive form of inflammatory arthritis. It mainly affects the spine but can also affect other joints, tendons and ligaments. What happens in AS? Repetition...

endlesstrax.com endlesstrax.com

Making Trax — Walk Your A.S. Off 2015 |

https://endlesstrax.com/2015/04/08/makingtrax2015

My Endless struggle with Ankylosing Spondylitis, and the things that keep me straight. Making Trax — Walk Your A.S. Off 2015. April 8, 2015. In Walk Your AS Off. Walk Your A.S. Off 2015. The time is upon us again. Yes that’s right, it’s time for this years. 8216;Walk Your AS Off’. If you don’t know what the WYASO campaign is, then check out the brief guide I wrote last year. There are also several different challenges in which you can take part in apart from the. 8216;main event’. The team name is. Click...

endlesstrax.com endlesstrax.com

#NASStweetup |

https://endlesstrax.com/2014/06/04/nasstweetup

My Endless struggle with Ankylosing Spondylitis, and the things that keep me straight. June 4, 2014. Social media has done wonderful things for those with chronic illnesses. It helps people who may otherwise be isolated connect with others who share the same problems, who understand what it is others are going through, and know the challenges they face. Through platforms like Twitter. It’s called a Tweetup. And I am organising such a thing. On the 21st of June. The National Ankylosing Spondylitis Society.

endlesstrax.com endlesstrax.com

General |

https://endlesstrax.com/category/general

My Endless struggle with Ankylosing Spondylitis, and the things that keep me straight. 2016 Calendar – Raising Money for Auto-Immune Arthritis. May 8, 2015. Something amazing has happened. Something I would have never dreamed could happen to me. Guessed it yet? That’s right, I’m now a pin up calendar model! Well maybe not exactly […]. Read Article →. Even the most solitary pawn can do the most extraordinary things. And so can you! March 19, 2015. Read Article →. The Ambivalence of Change. June 13, 2014.

endlesstrax.com endlesstrax.com

Friday’s Focus: An Interview With Rob Cobb |

https://endlesstrax.com/2014/03/14/interview-rob-cobb

My Endless struggle with Ankylosing Spondylitis, and the things that keep me straight. Friday’s Focus: An Interview With Rob Cobb. March 14, 2014. Rob Cobb supporting NASS. Today sees the start of a new feature to the EndlessTrax blog. Friday’s Focus. Each week. I will be posting interviews and sharing articles on people who are making a difference. Whether it’s by running awareness campaigns, fundraising, or anything else that helps to raise the profile of Ankylosing Spondylitis. And why did you choose ...

endlesstrax.com endlesstrax.com

Walk Your AS Off |

https://endlesstrax.com/category/walk-your-as-off

My Endless struggle with Ankylosing Spondylitis, and the things that keep me straight. Category Archives: Walk Your AS Off. WYASO Finish Line 2015. June 6, 2015. How can it be June already? Seriously. Did I sleep through the spring? Well with the end of May comes the end of the Walk Your AS Off awareness campaign […]. Read Article →. Walk Your AS Off. Making Trax — Walk Your A.S. Off 2015. April 8, 2015. If you don’t know what the WYASO campaign is, then […]. Read Article →. Walk Your AS Off. May 8, 2013.

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Friday, September 25, 2009. Change is good.You are good.We are good.Family is good. AND being thankful and contented is good too. You didnt need me to tell you to change,neither did you need an elder.You needed to see it for yourself.And you did. Does sadness equals good posts? Screamed @ 12:53 AM. Friday, January 30, 2009. Not in a perfect world. In a better world.i would be treated right.my pillows wouldnt be wet. Screamed @ 12:31 PM. Wednesday, January 28, 2009. And just like that,. But each time you ...