clldiary.blogspot.com
CLL Diary: Red cell rebound
http://clldiary.blogspot.com/2013/01/red-cell-rebound.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Thursday, January 03, 2013. I knew I was feeling more energetic recently when, after going up and down the stairs moving a dozen cardboard boxes, I didn't feel especially winded. Contrast this with not all that long ago, when just getting myself up the 14 steps was challenge enough. I'll also ask him about possible maintenance treatments and/or treatments at relapse, including what may be available in clinical...
clldiary.blogspot.com
CLL Diary: Bendamustine and rituximab: the verdict
http://clldiary.blogspot.com/2013/03/bendamustine-and-rituximab-verdict.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, March 17, 2013. Bendamustine and rituximab: the verdict. The results are in. After five cycles of bendamustine (Treanda) and rituximab, which ended in mid-November, I can report that the treatment worked better than I expected. I have to admit that I just about fell out of my chair upon hearing the news. I was hoping, at best, for maybe 20% CLL in the marrow, a significant reduction, to be sure....
clldiary.blogspot.com
CLL Diary: April nightmare; May resolve
http://clldiary.blogspot.com/2013/06/april-nightmare-may-resolve-part-1.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, June 02, 2013. April nightmare; May resolve. When last I wrote. Things were looking pretty good. I had gotten a better-than-expected result from bendamustine and rituximab. I was planning on seeing expert Dr. Thomas Kipps at UC San Diego on April 25 to discuss maintenance ideas or what to do at relapse; perhaps one of the BTK inhibitor trials would be a possibility. Now, for those who don't know. A dro...
clldiary.blogspot.com
CLL Diary: The road ahead
http://clldiary.blogspot.com/2014/02/the-road-ahead.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Thursday, February 13, 2014. I've met with my transplant/CLL doctor, Jose Leis, at the Mayo Clinic in Phoenix. He was pleased with my response to Ibrutinib - dramatic shrinkage of abdominal nodes - and laid out the course I will be following in the coming months. And get those nodes down. Meanwhile, a donor has been found. Somewhere out there is a man in his 40s. With most varieties of CLL, time is not of the ...
clldiary.blogspot.com
CLL Diary
http://clldiary.blogspot.com/2014/04/my-beloved-soulmate-david-died-on-march.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Friday, April 04, 2014. My beloved soulmate, David, died on March 6. I'll post details when I'm emotionally able. Carolina Creations - Jan and Michael Francoeur. Oh Marilyn we are so sorry. April 4, 2014 at 6:50:00 PM MST. May he rest in peace. April 4, 2014 at 7:20:00 PM MST. April 5, 2014 at 5:28:00 AM MST. Skin Plus plastic surgery facility and consult with an experienced breast lift delhi. Dear Marilyn ,.
clldiary.blogspot.com
CLL Diary: August 2013
http://clldiary.blogspot.com/2013_08_01_archive.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, August 25, 2013. The cancer survivors park. Marilyn and I ran across a sculpture garden devoted to cancer survivors in a park near downtown Santa Rosa, California. It's properly known as the Richard and Annette Bloch Cancer Survivors Plaza at Fremont Park. Was an unexpected pleasure and an inspirational place. Links to this post. Subscribe to: Posts (Atom). ME AND MY DIARY. And so, my life has changed&...
clldiary.blogspot.com
CLL Diary: I'm finally not feeling like crap
http://clldiary.blogspot.com/2013/07/im-finally-not-feeling-like-crap.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Wednesday, July 17, 2013. I'm finally not feeling like crap. Greetings from the cancer ward. During the weeks prior to treatment, as my belly grew, pain grew with it. The burgeoning tumors put stress on my lower back, pushing against nerves there. This required that I sleep sitting up in a chair, and even then it took oxycodone to be pain-free. Laying on my back was an invitation to torture. I could have put u...
updates.clltopics.org
CLL Topics Updates » Au revoir, not good-bye.
http://updates.clltopics.org/4751-au-revoir-not-good-bye
Au revoir, not good-bye. October 6th, 2012. I have been doing this for so long, I can barely remember the person I was before I started writing about CLL, back in 2002. It has been a pretty wild ride! I would like to think. This is just a “so long” and not a “good-bye”. Before you freak out, I want to make sure you understand we are. Not (repeat, not). Shutting down the websites. And Harvey’s Journal. Websites will continue to be hosted and available. You know who you are! You are not just “members...
updates.clltopics.org
CLL Topics Updates » Time to say good-bye
http://updates.clltopics.org/4874-time-to-say-good-bye
Time to say good-bye. June 23rd, 2013. All things come to an end. My “sabbatical” has ended, it has now become full fledged retirement. Today is a particularly poignant day for me to say my farewells to all of you. It has been exactly five years since my husband PC died. I have tried to document his transplant journey. For those of you who might find it interesting or helpful in your own future travels. Several months ago I read a book titled Year of magical thinking. One of my reasons for walking away f...