learningfromfaith.blogspot.com

Learning From Faith

Wednesday, December 10, 2014. And the verdict is. With all of the generous donations our trio to Boston was fully covered with enough left over to give Lilliana a fantastic Christmas and to save for our continual medical costs. I truly cannot thank you all enough for your support. Friday, November 14, 2014. Dr Blume was great and seemed extremly knowledgeable. Although I nearly had a panic attract when she mentioned the plans I have now settled down enough to give it a try. We are going to completely dep...

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Learning From Faith | learningfromfaith.blogspot.com Reviews

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Wednesday, December 10, 2014. And the verdict is. With all of the generous donations our trio to Boston was fully covered with enough left over to give Lilliana a fantastic Christmas and to save for our continual medical costs. I truly cannot thank you all enough for your support. Friday, November 14, 2014. Dr Blume was great and seemed extremly knowledgeable. Although I nearly had a panic attract when she mentioned the plans I have now settled down enough to give it a try. We are going to completely dep...

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1 lilliana faith's story

2 lisa

3 email this

4 blogthis

5 share to twitter

6 share to facebook

7 share to pinterest

8 in boston

9 hello everyone

10 finally some direction

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Learning From Faith | learningfromfaith.blogspot.com Reviews

https://learningfromfaith.blogspot.com

Wednesday, December 10, 2014. And the verdict is. With all of the generous donations our trio to Boston was fully covered with enough left over to give Lilliana a fantastic Christmas and to save for our continual medical costs. I truly cannot thank you all enough for your support. Friday, November 14, 2014. Dr Blume was great and seemed extremly knowledgeable. Although I nearly had a panic attract when she mentioned the plans I have now settled down enough to give it a try. We are going to completely dep...

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learningfromfaith.blogspot.com

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Learning From Faith: Lilliana Faith's Story

http://learningfromfaith.blogspot.com/p/lilliana-faiths-story.html

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Learning From Faith: kindergarten and some updates

http://learningfromfaith.blogspot.com/2014/09/kindergarten-and-some-updates.html

Wednesday, September 3, 2014. Kindergarten and some updates. Hi everyone, sorry for the delay again. We still don't have internet at the new house and updating the blog in my phone is sort of a pain, so ignore the spelling errors :). Well miss Lilliana has started Kindergarten! Switching to a new hospital will be a change, but based on every interaction I've had with Childrens thus far it should be a GREAT decision. I just pray for a safe and HEALTHY time at school for her as long as possible.

3

Learning From Faith: Headed to Boston soon...

http://learningfromfaith.blogspot.com/2014/10/headed-to-boston-soon.html

Wednesday, October 1, 2014. Headed to Boston soon. Once again sorry for the long overdue update, sadly we can’t get any local internet providers at our new house (we are quite good a picking the place right out of service areas) J. So it’s taken me awhile to find time to get on a computer. It’s perfect for her as she gets to be there for the bulk of the learning time and just misses lunch, recess… She is so much happier and LOVES school again vs being a ball of stress and anxiety. Children’s has be...

4

Learning From Faith: In Boston

http://learningfromfaith.blogspot.com/2014/11/in-boston.html

Friday, November 14, 2014. We made it to Boston in one piece. Even with the snowy weather. Thursday was a busy day at the Hospital with a DEXA scan (to check bone density), echo, stomach ultrasound, X-ray, and appointment with our new cardiologist Dr. Blume. We were there from 9am to 5:30pm. Dr Blume was great and seemed extremly knowledgeable. Although I nearly had a panic attract when she mentioned the plans I have now settled down enough to give it a try. He was 16 and he said he thought it was going ...

5

Learning From Faith: And the verdict is...

http://learningfromfaith.blogspot.com/2014/12/and-verdict-is.html

Wednesday, December 10, 2014. And the verdict is. With all of the generous donations our trio to Boston was fully covered with enough left over to give Lilliana a fantastic Christmas and to save for our continual medical costs. I truly cannot thank you all enough for your support. Designed by 17th Avenue.

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heterotaxy.wordpress.com

kristenspyker – Heterotaxy Syndrome

https://heterotaxy.wordpress.com/author/kristenspyker

The Story of a little boy born with Heterotaxy Syndrome. January 15, 2017. January 15, 2017. 4 years later…. Where to even begin. Its been 4 years since I blogged on here. 4 years! Can you believe that? I am now a single Mom. We sold the our family home. I live in a much smaller house that I am renting. I have to go back to work after being a stay at home Mom for almost 9 years. My friends have changed. My family has changed. I home-school my children. I try to remember that. Should I have done less?

heterotaxy.wordpress.com

Heterotaxy Syndrome? – Heterotaxy Syndrome

https://heterotaxy.wordpress.com/what-is-heterotaxy-syndrome

The Story of a little boy born with Heterotaxy Syndrome. Taken from Children’s Hospital of Philadelphia’s website ( www.chop.edu. Heterotaxy syndrome is a rare birth defect that involves the heart and other organs. The beginning of the word (hetero-) means different and the end ( taxy) means arrangement. In heterotaxy syndrome, paired organs, such as the lungs or kidneys, are often mirror images of one another instead of having the unique characteristics of right and left that are normally present. The h...

heterotaxy.wordpress.com

CHD Abreviations – Heterotaxy Syndrome

https://heterotaxy.wordpress.com/chd-abreviations

The Story of a little boy born with Heterotaxy Syndrome. Anomalous Left Coronary Artery From the Pulmonary Artery. AV Canal or AVSD. Coarctation of the Aorta. Complete Atrioventricular Canal Defect. Complete Congenital Heart Block. Congenital Coronary ArterioVenous Fistula. CcTGA Congenitally Corrected Transposition of the Great Arteries (same as ccTGV). Congenitally Corrected Transposition of the Great Vessels (same as ccTGA). Double Chambered Right Ventricle. Double Inlet Left Ventricle. Notify me of n...

heterotaxy.wordpress.com

Dr. Patel Saves the Day! – Heterotaxy Syndrome

https://heterotaxy.wordpress.com/dr-patel

The Story of a little boy born with Heterotaxy Syndrome. Children's Hospital of Boston. December 7, 2010. December 8, 2010. Dr Patel Saves the Day! AND I WILL NOT PUT UP WITH HIM HAVING THAT MUCH DISCOMFORT AGAIN. Larr; Previous Post. Next Post →. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out.

heterotaxy.wordpress.com

The Heterotaxy Network – Heterotaxy Syndrome

https://heterotaxy.wordpress.com/the-heterotaxy-network

The Story of a little boy born with Heterotaxy Syndrome. Dr Pedro Del Nido. November 10, 2011. November 10, 2011. And we are determined to get this site up. The site is going to include a memorial page for our Heterotaxy friends that have passed away, as well as inspiring stories of hope. We are going to get our own forum up so that we can talk and ask each other questions, and have a collective (and current) source for all Heterotaxy related research and publications. Logan has the worst heart defect yo...

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Wednesday, December 10, 2014. And the verdict is. With all of the generous donations our trio to Boston was fully covered with enough left over to give Lilliana a fantastic Christmas and to save for our continual medical costs. I truly cannot thank you all enough for your support. Friday, November 14, 2014. Dr Blume was great and seemed extremly knowledgeable. Although I nearly had a panic attract when she mentioned the plans I have now settled down enough to give it a try. We are going to completely dep...

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