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Lgmd's Blog | Just another WordPress.com weblog | lgmd.wordpress.com Reviews
https://lgmd.wordpress.com
Just another WordPress.com weblog
lgmd.wordpress.com
Lite fakta | Lgmd's Blog
https://lgmd.wordpress.com/2009/10/01/lite-fakta
Just another WordPress.com weblog. En heterogen grupp ärftliga muskeldystrofier som kan vara antingen autosomalt dominanta eller autosomalt recessiva. Det finns många former som inbegriper gener, vilka kodar för muskelmembranproteiner som t ex sarkoglykankomplexet, som samverkar med dystrofin. Sjukdomstillståndet kännetecknas av fortskridande förtvining och svaghet hos armarnas och benens proximala muskler kring höfter och skuldror. De vanligaste typerna i Sverige är LGMD 2 A, 2 C-F och 2I. On oktober 1,...
Dålig uppdatering! | Lgmd's Blog
https://lgmd.wordpress.com/2009/10/01/dalig-uppdatering
Just another WordPress.com weblog. Oj vad jag har varit dålig. På att uppdatera, men ska från och med nu bli bättre på detta! Det har hänt en del sedan senast. Jag har varit i Linköping och fått fart på saker! Läkaren i Linköping remitterade mig för att göra undersökning av hjärta och lungor, då min sjukdom kan påverka dessa organ. Har dock inte fått svar på undersökningarna ännu. Jag har fått kontakt med vuxen hab igen, vilket känns jätte skönt. Men va fan tror hon? Hmm, ja vad tycker ni? Sen är det ju ...
Tycka synd om eller empati? | Lgmd's Blog
https://lgmd.wordpress.com/2009/10/07/tycka-synd-om-eller-empati
Just another WordPress.com weblog. Tycka synd om eller empati? Jag inte att folk ska tycka synd om mig men jag vill att folk ska ha empati gentemot min sjukdom! Jag har flera gånger upplevt att människor har sagt att de tycker synd om mig pga. min sjukdom. Men det är inte synd om mig. Jag lever ju det liv jag lever. Jag har en underbar familj och härliga vänner och jag känner mig varje dag väldigt glad och ”blessed” för det! Nu säger jag absolut inte att det är så här, det är bara så jag tänker! Fyll i d...
Gör det igen! | Lgmd's Blog
https://lgmd.wordpress.com/2009/10/15/gor-det-igen
Just another WordPress.com weblog. Hehe* nu gör jag det igen, byter blogg. Denna gången är det för att wordpress suger! Man kan lixom inte designa bloggen som man vill och man kan inte lägga in google översättare som jag vill ha för att min släkt i USA ska kunna förlja med! Sååå, nya adressen är:. Http:/ lgmd.blogg.se/. Hoppas att ni följer med! On oktober 15, 2009 at 12:18 e m Kommentera. To TrackBack this entry is:. Https:/ lgmd.wordpress.com/2009/10/15/gor-det-igen/trackback/. Skriv din kommentar här.
Från början… | Lgmd's Blog
https://lgmd.wordpress.com/2009/10/14/fran-borjan
Just another WordPress.com weblog. Som alla andra morgnar vaknade jag idag, gick upp, satte på tv:n , satte på datorn, hämtade vatten och satte mig i soffan. Jag loggade in på min blogg där jag fått två nya kommentarer, Ohh va kul! Men kommentarerna var inte från nån jag trodde, utan från Maja! Och med Maja som inspiationskälla, ska jag nu försöka skriva ner min berättelse, för jag vill och jag vågar och jag kan! Min berättelse grundar sig till största del på det som min mamma har berättat för mig. Du ko...
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Little Helpers | Healing and Happiness
https://espritcurieux.wordpress.com/2011/11/13/little-helpers
The Thrills and Chills of LGMD. Door Dilemmas →. November 13, 2011. As my muscles get weaker, my students become more helpful, more responsible, more aware. Or perhaps it’s just that they have more opportunities to show their caring nature. Every day, I’m touched by their kind gestures. It’s a good feeling, being surrounded by so much enthusiastic kindness! This entry was posted in Disability. Limb Girdle Muscular Dystrophy. The Thrills and Chills of LGMD. Door Dilemmas →. December 2, 2011 at 7:57 am.
Healing and Happiness | Page 2
https://espritcurieux.wordpress.com/page/2
Newer posts →. Pushed and Pulled by the Winds of Change. March 23, 2010. At different points in our life, a gust of inspiration might lure us off the raft and onto uncertain banks. A trail ahead may seem rough and steep, but we hardly notice the effortful trek because the strong winds of desire pull us along. Other timesour little raft might meander through a foul-smelling swamp or get swept up in treacherous waters and we’re forced into making a decision, taking a new direction. Yet, after we officially...
Infectious Attitudes | Healing and Happiness
https://espritcurieux.wordpress.com/2010/05/29/infectious-attitudes
The Thrills and Chills of LGMD →. May 29, 2010. If you had passed by my classroom during recess last week, the sight of half a dozen little girls huddled around a table and cradling something tiny in their hands might have stopped you in your tracks. You might have approached them to see what was causing the cooing and giggles, and squeals of delight. What was the object of such sweet affectionate chatter? Oh, mine’s tickling my hand. Hihihi. This is so fun. Look at this one, it’s so small! Amazing, I th...
Door Dilemmas | Healing and Happiness
https://espritcurieux.wordpress.com/2011/11/19/door-dilemmas
An Evolution of Mobility Devices (Part 2) →. November 19, 2011. The other problem was that I had to cram myself and my cart in the little space between the cement block and the wall to clear the way for the door to open. It was awkward. These automatic doors were turning out to be more problematic than the manual doors. Then I went away to visit my family and forgot all about the automatic doors. I didn’t have to worry about them the day I returned because my parents were with me. But my worrying was poi...
TABLE OF CONTENTS | Healing and Happiness
https://espritcurieux.wordpress.com/table-of-contents
Blogging for the first time. 8211; The reason I started blogging. 8211; The history of my life in cycles of seven. 8211; Dreams people have had of me healed. 8211; Describing my fear of falling and a possible solution. 8211; I can be happy even with MD. 8211; Commenting on the confusion between MS and MD and describing Muscular Dystrophy. 8211; Commenting on the awkwardness that surrounds people with disabilities. Tips and Tricks for LGMD. 8211; My solutions for coping with Limb-Girdle Muscular Dystrophy.
Good luck? Bad luck? | Healing and Happiness
https://espritcurieux.wordpress.com/2010/05/08/good-luck-bad-luck
An Evolution of Mobility Devices (Part 1? Infectious Attitudes →. May 8, 2010. Last week, a series of unfortunate, or rather fortunate events reminded me of the ancient Taoist parable about the poor farmer and his son who were working their land alongside their horse. The horse was spooked and ran off into the mountains. Maybe, maybe not, responded the farmer. A few days later, the horse returned followed by a herd of wild mares. Exclaimed the son, we will be rich with all these horses! When I called his...
The Thrills and Chills of LGMD | Healing and Happiness
https://espritcurieux.wordpress.com/2011/10/23/the-thrills-and-chills-of-lgmd
Little Helpers →. The Thrills and Chills of LGMD. October 23, 2011. Halloween is in the air, with horror movies playing everywhere, haunted houses luring in thrill-seekers, and radio hosts interviewing experts about why we love to be terrified. Well I don’t like it one bit! Yet dread and fright are my pesky companions every day. The pitter patter of a joyous child bounding up behind me paralyzes me with terror as I brace myself for a possible hug that might send me tumbling to the ground. Even the wind r...
An Evolution of Mobility Devices (Part 2) | Healing and Happiness
https://espritcurieux.wordpress.com/2011/11/29/an-evolution-of-mobility-devices-part-2
An Evolution of Mobility Devices (Part 2). November 29, 2011. The week after I wrote about the thrills and chills of LGMD. My anxiety mysteriously evaporated. Perhaps the iron and B12 supplements I had started taking had kicked in, or my body simply needed rest, or maybe I had dispelled my fears by writing about them. In any case, it felt absolutely wonderful to be able to walk as fast and steady as a turtle again. When I tested the rollator, I found that it swivelled too easily, throwing me slightly off...
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Information 'hub' for Limb Girdle Muscular Dystrophy (LGMD)
The information 'hub' for the Limb Girdle Muscular Dystrophy community. Dare to Bust A Move. About LGMD Awareness Day. Proclamations – Volunteers Needed. Lime Green for LGMD. What is Limb Girdle Muscular Dystrophy (LGMD)? A term used for a GROUP of rare neuromuscular diseases which are inherited and known to cause muscle weakness and wasting. The muscles most affected are those closest to the body (proximal muscles), specifically the muscles of the shoulders, upper arms, pelvic area, and thighs. For some...
LGMD
Let's Go My Dream. Zasada działania, parametry,. Tracheotomia, dekaniulacja,. Wentylacja, wspomaganie kaszlu. Droga do praktycznej wiedzy. Krzysiek Maziarz .
lgmd - Tankar och funderingar kring livet med en funktionsnedsättning ...
Tankar och funderingar kring livet med en funktionsnedsättning . 21 mars 2018, 15:14. Tänker att jag ska börja blogga så smått igen. Har sagt det innan också men då har jag tappat det igen. Tänker att jag mår bra av att skriva, reflektera och kanske höra ifrån andra. Hur klarar sig en muskelsjuk människa med ett ben mindre när man knappt klarar sig med två? Ett år efter känner jag att jag är tillbaka igen, det tog lång tid, men det var en nyttig upplevelse. 3 mars 2016, 17:54. Inte ett skit, som jag tolk...
Welcome to Ecole Nationale Polytechnque!
Welcome to Ecole Nationale Polytechnique! For online informations www.enp.edu.dz. Thank you for visiting our web sites.
LGMD`Let's Go My Dream
LGMD É æ ô. Å B i [ Flgmd.nao@gmail.com j. Þ ÍLimb-Girdle Muscular Dystrophy Á Ä a C Å B ª ÆLGMD B. LGMD Í A ñ È ª ð ç í uLet's Go! My Dream ô v Ì ª Å à è Ü B. Ì Ø Ò Ì û Í º Ð Acom-pass Ì y [ W à B. Com-pass Ø Ò Ì ï ÌHP. A J Ì Ø W X g t B [ ï ª µ Ä é uQUEST v Ì L ð ó E f Ú é u O ð ì è Ü µ B. QUEST i ú { ê Å j.
Lgmd's Blog | Just another WordPress.com weblog
Just another WordPress.com weblog. Hehe* nu gör jag det igen, byter blogg. Denna gången är det för att wordpress suger! Man kan lixom inte designa bloggen som man vill och man kan inte lägga in google översättare som jag vill ha för att min släkt i USA ska kunna förlja med! Sååå, nya adressen är:. Http:/ lgmd.blogg.se/. Hoppas att ni följer med! On oktober 15, 2009 at 12:18 e m Kommentera. Men kommentarerna var inte från nån jag trodde, utan från Maja! Men medvetenheten började krypa sig tätt inpå mig oc...
LGMD2A Calpainopathy - Global Patient Registry
Patient registration form for those diagnosed with limb-girlde muscular dystrophy type 2A - calpain-3 deficiency. LGMD2A Global Patient Registry. Registry of people who have been diagnosed with limb-girdle muscular dystrophy (LGMD) type 2A, or calpain-3 deficiency (calpainopathy). Have you been diagnosed with calpainopathy? Facilitate better estimates of the number of people living with LGMD2A, and draw attention to the cause. Help with fundraising and awareness efforts. This is an international database...
LGMD2D Foundation
Alpha Sarcoglycan Gene and Protein Information. The LGMD2D Foundation is working with Dr. Jerry Mendell on a gene therapy clinical trial for LGMD2D. You can help make history by donating today! Have you been diagnosed with LGMD2D? Join the patient registry to be alerted of upcoming trials and to help draw attention to the disease. Learn more about the alpha sarcoglycan gene, mRNA and protein as well as the scientific resources available for studying the protein.
Limb Girdle Muscular Dystrophy type 2i - Limb-Girdle
Limb Girdle Muscular Dystrophy type 2i. Limb Girdle Muscular Dystrophy. Thank you for visiting my website! What is Limb Girdle Muscular Dystrophy? LGMD primarily affects the muscles around the hips and shoulders. Limb Girdle Muscular Dystrophy (LGMD) isn’t really one disease. It’s a group of disorders affecting voluntary muscles, mainly those around the hips and shoulders — the pelvic and shoulder girdles, also known as the limb girdles. You also may hear the term. What tests are used to diagnose LGMD?
Limb Girdle Muscular Dystrophy 2I - Limb-Girdle
Limb Girdle Muscular Dystrophy 2I. Create a free website.
LGMD2i Research Fund | For the Cure for Limb Girdle Muscular Dystrophy 2I
Information on the Disease. News & Events. What is the LGMD2I Research Fund? Our Mission is to expedite the development of a treatment or cure for Limb Girdle Muscular Dystrophy 2I (LGMD2I). We do that by building a comprehensive view of the entire LGMD2I research landscape, supporting the most promising research projects, and coordinating and managing the scientific process. News & Events. Check here for upcoming events and news in the LGMD2I community. News & Events. News & Events. News & Events.
