fivepercentodds.blogspot.com
The Odds: Working it out
http://fivepercentodds.blogspot.com/2011/05/working-it-out.html
THE ODDS (Debbie Does ALS). Late last October, I enjoyed a brief flirtation with a local Hospice. Several of my PALS pals were involved in and highly praised their own committed, supportive Hospice relationships, so I innocently encouraged the advances of my own suitor when it came a-callin’. I and mine met with their team, we signed this form and that, la-di-dah, I was seduced by promises of care and comfort- how could I resist? The union was blessed and a satisfied moi. Sat back, content. 8221; Separat...
fivepercentodds.blogspot.com
The Odds: June 2011
http://fivepercentodds.blogspot.com/2011_06_01_archive.html
THE ODDS (Debbie Does ALS). Love you, Tori. One morning, several weeks ago, I woke up, leaning so far left it warranted a midnight alarm to the neighbors. Rescued and out of harm's way, I wrote a detailed account of the episode, intending to post after some editing. A combination of things got in the way of writing anything, and just as I got through my tangle of issues, the phone rang. Just doesn't make any sense. My heart goes out to her parents. Subscribe to: Posts (Atom). Follow me on Twitter.
fivepercentodds.blogspot.com
The Odds: March 2011
http://fivepercentodds.blogspot.com/2011_03_01_archive.html
THE ODDS (Debbie Does ALS). Little Miss Stella is a ravishing beauty; who among us has seen her and not fallen victim to her wiles, her charms? Few, if any. I succumbed within the first moments of our acquaintance. Before long I was wrapped around her fluffy little paws, allowing myself to disregard all the proprieties, even (GASP! Secure in the belief that her kisses have won my heart yet again, she settles herself on my lap and waits, all the while staring at my MOUTH! One morning last week, Stella did...
fivepercentodds.blogspot.com
The Odds: I believe...
http://fivepercentodds.blogspot.com/2011/04/i-believe.html
THE ODDS (Debbie Does ALS). I miss my hands and arms most of all. If I could move my arms and flex my fingers, I'd have a much easier time operating the joystick on my wheelchair- my substitute legs. I'd be able to type QUICKLY in my text-to-speech program- my substitute voice. I'd feed myself, wash myself, adjust my own bra straps, put on makeup, swat bugs, sign my name, raise and lower my bed's raise-able and lower-able parts. Put toothpaste on my toothbrush, lotion on my arms, polish on my nails.
fivepercentodds.blogspot.com
The Odds: December 2010
http://fivepercentodds.blogspot.com/2010_12_01_archive.html
THE ODDS (Debbie Does ALS). Watching Jeopardy tonight was an exercise in frustration. Why? Because the sweet little old lady (who ultimately won) took FOREVER to select the next category. Very unkindly, I yelled at the tv and told the cow to speed it up. Jenny and John started laughing and offered up an hilarious image of ALS patients as Jeopardy contestants, the funniest image was how long it would take the contestants to push the button to ring in. We are all twisted. Out of the mouths of babes. Until ...
fivepercentodds.blogspot.com
The Odds: September 2010
http://fivepercentodds.blogspot.com/2010_09_01_archive.html
THE ODDS (Debbie Does ALS). I saw my pulmonologist on Monday for my quarterly checkup. In the early days of my disease these visits made me very anxious; I started out with an FVC. Of 104% and hated each time the number dropped. In June, when it dropped from 70% to 49%, I wasn't anxious anymore. Rather, I pretty much expected it. When I went to the doctor on Monday I also expected a drop but I have to confess I didn't think it would be such a big one. I don't know how long I will be able to brush my teet...
fivepercentodds.blogspot.com
The Odds: November 2010
http://fivepercentodds.blogspot.com/2010_11_01_archive.html
THE ODDS (Debbie Does ALS). What I am not looking forward to is the chest congestion that ALWAYS follows a sore throat, at least that is my experience. My cougher isn't coughing so well these days. One of my favorite recipes (a recipe for dasister). 2 strawberry champagne cupcakes. 1 bowl of popcorn (with extra butter). Mix all together and warm at room temperature for six hours. These are the ingredients for a perfectly wonderful day. Thank you, Wendy. I love you. I let her win. Not in a tree. A couple ...
motor-neuron.com
Motor Neuron Diseases
http://www.motor-neuron.com/mnd-blogs.php
A classic by Berlin. One Day at a Time. Hi, I'm Mark and I'd like to welcome you to my. Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. The Rambling Man of ALS. Was diagnosed in 2004, and continues to be challenged by ALS. "In my life I have had my share of dark days, but none darker than Jan., 2004, the day that three letters changed my life.". Patrick the incurable optimist. John Saunders - My. And he is trying to raise money to help other people get better. Archive Fresh hope for.
disabilitymatters.blogspot.com
Disability Matters: Tony Lived Before He Died
http://disabilitymatters.blogspot.com/2010/09/tony-lived-before-he-died.html
Thursday, September 9, 2010. Tony Lived Before He Died. Two years ago, on a visit to South Africa,. I met a most extraordinary man. Tony had lived in a hospice for several years completely immobilized by Motor Neuron Disease, except for being able to move his eyes, talk, and swallow. There were jokes, both light and decidedly dark while Tony enjoyed a cocktail or two. He was a gentleman. My last words to Tony were: “I promise you, I’ll see you again.”. Was several months too late to fulfill my promise.
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