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Living with Motor Neurone Disease - One Day at a Time!

Hi, I'm Mark and I'd like to welcome you to my blog site. Towards the end of 2007 I was diagnosed with one of the cruellest diseases known to mankind - Motor Neurone Disease. Three months later I decided to start up a blog to document my journey so that: my family and friends are…

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Hi, I'm Mark and I'd like to welcome you to my blog site. Towards the end of 2007 I was diagnosed with one of the cruellest diseases known to mankind - Motor Neurone Disease. Three months later I decided to start up a blog to document my journey so that: my family and friends are…
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Living with Motor Neurone Disease - One Day at a Time! | livingwithmnd.wordpress.com Reviews

https://livingwithmnd.wordpress.com

Hi, I'm Mark and I'd like to welcome you to my blog site. Towards the end of 2007 I was diagnosed with one of the cruellest diseases known to mankind - Motor Neurone Disease. Three months later I decided to start up a blog to document my journey so that: my family and friends are…

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livingwithmnd.wordpress.com livingwithmnd.wordpress.com
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Tuesday, June 28th 2011 | Living with Motor Neurone Disease - One Day at a Time!

https://livingwithmnd.wordpress.com/2011/06/30/tuesday-june-28th-2011

Living with Motor Neurone Disease – One Day at a Time! Sunday, June 26th 2011. Tuesday, July 5th 2011 →. Tuesday, June 28th 2011. June 30, 2011. Home again and the beginning of the next phase. I was discharged from St Michaels Hospice at 4 PM this afternoon, four weeks exactly since I was admitted. Over the past 12 months I have spent a total of three whole months (spread over three visits) at the hospice which makes this my second home! Filed under Calendar Entries. Leave a Reply Cancel reply. The other...

2

Resources | Living with Motor Neurone Disease - One Day at a Time!

https://livingwithmnd.wordpress.com/resources

Living with Motor Neurone Disease – One Day at a Time! Click on the links below to open up a new page on that topic. MND Forums and Patient Websites. Places to go to meet with other people living with MND. MND Associations, Institutes, Foundations. MND Related Wikipedia Articles. Books I’ve read about Motor Neurone Disease. Useful Equipment and Software. Things I use that make life that little bit easier. Future Tech for the Disabled. Technology being developed to help those that are physically disabled.

3

R.I.P. Mark Glover: 1960 – 2011 | Living with Motor Neurone Disease - One Day at a Time!

https://livingwithmnd.wordpress.com/2011/09/25/rip-mark-glover-1960-2011

Living with Motor Neurone Disease – One Day at a Time! Sunday, August 28th 2011. RIP Mark Glover: 1960 – 2011. September 25, 2011. On Tuesday 30th August 2011, my dear brother Mark passed away after four years of battling MND. Mark died peacefully in his sleep at home, one final ounce of mercy after four years of battling the cruelty of MND. Of course, I was devastated! I will always be proud knowing that I was Mark’s little brother, or junior as he sometimes called me. Thank you for reading this blog.

4

Tuesday, July 5th 2011 | Living with Motor Neurone Disease - One Day at a Time!

https://livingwithmnd.wordpress.com/2011/07/05/tuesday-july-5th-2011

Living with Motor Neurone Disease – One Day at a Time! Tuesday, June 28th 2011. The other side of motor neurone disease →. Tuesday, July 5th 2011. July 5, 2011. The first week of full-time care. Apart from that the past week has been a busy one for appointments with district nurses and doctors making regular calls. I’ve spent most of that time in bed reading books and magazines during the day and watching TV and video at night. Filed under Calendar Entries. Tuesday, July 5th 2011. July 8, 2011 at 1:48 pm.

5

People & MND | Living with Motor Neurone Disease - One Day at a Time!

https://livingwithmnd.wordpress.com/people-mnd

Living with Motor Neurone Disease – One Day at a Time! How MND touches peoples lives. Click on the links below to open a page on that topic. News stories published on the Internet of people living with MND. Other Blogs on MND. Links to other peoples MND blogs, some of whom are sadly no longer with us but live on in the hearts and minds of those who knew them and in the words and pictures they left behind for the rest of us. Blog at WordPress.com. Get every new post delivered to your Inbox.

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fivepercentodds.blogspot.com fivepercentodds.blogspot.com

The Odds: Working it out

http://fivepercentodds.blogspot.com/2011/05/working-it-out.html

THE ODDS (Debbie Does ALS). Late last October, I enjoyed a brief flirtation with a local Hospice. Several of my PALS pals were involved in and highly praised their own committed, supportive Hospice relationships, so I innocently encouraged the advances of my own suitor when it came a-callin’. I and mine met with their team, we signed this form and that, la-di-dah, I was seduced by promises of care and comfort- how could I resist? The union was blessed and a satisfied moi. Sat back, content. 8221; Separat...

fivepercentodds.blogspot.com fivepercentodds.blogspot.com

The Odds: June 2011

http://fivepercentodds.blogspot.com/2011_06_01_archive.html

THE ODDS (Debbie Does ALS). Love you, Tori. One morning, several weeks ago, I woke up, leaning so far left it warranted a midnight alarm to the neighbors. Rescued and out of harm's way, I wrote a detailed account of the episode, intending to post after some editing. A combination of things got in the way of writing anything, and just as I got through my tangle of issues, the phone rang. Just doesn't make any sense. My heart goes out to her parents. Subscribe to: Posts (Atom). Follow me on Twitter.

fivepercentodds.blogspot.com fivepercentodds.blogspot.com

The Odds: March 2011

http://fivepercentodds.blogspot.com/2011_03_01_archive.html

THE ODDS (Debbie Does ALS). Little Miss Stella is a ravishing beauty; who among us has seen her and not fallen victim to her wiles, her charms? Few, if any. I succumbed within the first moments of our acquaintance. Before long I was wrapped around her fluffy little paws, allowing myself to disregard all the proprieties, even (GASP! Secure in the belief that her kisses have won my heart yet again, she settles herself on my lap and waits, all the while staring at my MOUTH! One morning last week, Stella did...

fivepercentodds.blogspot.com fivepercentodds.blogspot.com

The Odds: I believe...

http://fivepercentodds.blogspot.com/2011/04/i-believe.html

THE ODDS (Debbie Does ALS). I miss my hands and arms most of all. If I could move my arms and flex my fingers, I'd have a much easier time operating the joystick on my wheelchair- my substitute legs. I'd be able to type QUICKLY in my text-to-speech program- my substitute voice. I'd feed myself, wash myself, adjust my own bra straps, put on makeup, swat bugs, sign my name, raise and lower my bed's raise-able and lower-able parts. Put toothpaste on my toothbrush, lotion on my arms, polish on my nails.

fivepercentodds.blogspot.com fivepercentodds.blogspot.com

The Odds: December 2010

http://fivepercentodds.blogspot.com/2010_12_01_archive.html

THE ODDS (Debbie Does ALS). Watching Jeopardy tonight was an exercise in frustration. Why? Because the sweet little old lady (who ultimately won) took FOREVER to select the next category. Very unkindly, I yelled at the tv and told the cow to speed it up. Jenny and John started laughing and offered up an hilarious image of ALS patients as Jeopardy contestants, the funniest image was how long it would take the contestants to push the button to ring in. We are all twisted. Out of the mouths of babes. Until ...

fivepercentodds.blogspot.com fivepercentodds.blogspot.com

The Odds: September 2010

http://fivepercentodds.blogspot.com/2010_09_01_archive.html

THE ODDS (Debbie Does ALS). I saw my pulmonologist on Monday for my quarterly checkup. In the early days of my disease these visits made me very anxious; I started out with an FVC. Of 104% and hated each time the number dropped. In June, when it dropped from 70% to 49%, I wasn't anxious anymore. Rather, I pretty much expected it. When I went to the doctor on Monday I also expected a drop but I have to confess I didn't think it would be such a big one. I don't know how long I will be able to brush my teet...

fivepercentodds.blogspot.com fivepercentodds.blogspot.com

The Odds: November 2010

http://fivepercentodds.blogspot.com/2010_11_01_archive.html

THE ODDS (Debbie Does ALS). What I am not looking forward to is the chest congestion that ALWAYS follows a sore throat, at least that is my experience. My cougher isn't coughing so well these days. One of my favorite recipes (a recipe for dasister). 2 strawberry champagne cupcakes. 1 bowl of popcorn (with extra butter). Mix all together and warm at room temperature for six hours. These are the ingredients for a perfectly wonderful day. Thank you, Wendy. I love you. I let her win. Not in a tree. A couple ...

motor-neuron.com motor-neuron.com

Motor Neuron Diseases

http://www.motor-neuron.com/mnd-blogs.php

A classic by Berlin. One Day at a Time. Hi, I'm Mark and I'd like to welcome you to my. Fighting Progressive Bulbar Palsy A type of Lou Gehrig's Disease. The Rambling Man of ALS. Was diagnosed in 2004, and continues to be challenged by ALS. "In my life I have had my share of dark days, but none darker than Jan., 2004, the day that three letters changed my life.". Patrick the incurable optimist. John Saunders - My. And he is trying to raise money to help other people get better. Archive Fresh hope for.

disabilitymatters.blogspot.com disabilitymatters.blogspot.com

Disability Matters: Tony Lived Before He Died

http://disabilitymatters.blogspot.com/2010/09/tony-lived-before-he-died.html

Thursday, September 9, 2010. Tony Lived Before He Died. Two years ago, on a visit to South Africa,. I met a most extraordinary man. Tony had lived in a hospice for several years completely immobilized by Motor Neuron Disease, except for being able to move his eyes, talk, and swallow. There were jokes, both light and decidedly dark while Tony enjoyed a cocktail or two. He was a gentleman. My last words to Tony were: “I promise you, I’ll see you again.”. Was several months too late to fulfill my promise.

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Living with Motor Neurone Disease - One Day at a Time!

Living with Motor Neurone Disease – One Day at a Time! Hi, I’m Mark and I’d like to welcome you to my blog site. Towards the end of 2007 I was diagnosed with one of the cruellest diseases known to mankind – Motor Neurone Disease. Three months later I decided to start up a blog. To document my journey so that:. My family and friends are kept informed of my current progress. To raise awareness of this little understood disease. Useful equipment and software. There’s even an audio blog. We thank everyone fo...

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