mldfoundation.org

bobbi-livelaughlove.blogspot.com

Live. Laugh. Love.: July 2012

http://bobbi-livelaughlove.blogspot.com/2012_07_01_archive.html

Live Laugh. Love. I hope you will join me on a positive road where we can share stories of inspiration, motivation and life. Sunday, July 8, 2012. Tonight however, I'd like to write about the bravest little boy I know. Dylan Flinchum is a 3 year old with MLD. MLD stands for metachromatic leukodystrophy. Being that I want to ensure that no misinformation is given, to find out more about MLD PLEASE be sure to go to the. Website to learn more about this rare genetic condition and help spread awareness.

rarediseasesnetwork.org

Lysosomal Disease Network

http://www.rarediseasesnetwork.org/LDN/index.htm

Rare disease research groups. Stay Connected - Join the Contact Registry. For Researchers and Healthcare Professionals. Conference on Clinical Research for Rare Diseases 2016. Other Rare Disease Initiatives. Spotlight on Rare Diseases Newsletter. What is the RDCRN? Data Management And Coordinating Center (DMCC). About the Lysosomal Disease Network. Alpha-Mannosidosis types I / II. Batten disease, late infantile. Galactosialidosis types I / II. Sialidosis types I / II. Sialuria, Salla disease. A Historica...

coripalooza.org

CoriPalooza 2014

http://www.coripalooza.org/directions.php

Houston, TX 77092. Take Clay Rd east past Beltway 8 to Hempstead Rd, turn right and drive southeast for approximately 3 miles. Live Oak will be on the left. Take Shepherd Dr north to Washington Ave, turn left to go west. At the traffic circle, take the first exit onto Westcott St. Continue north on Washington Ave, after 1 mile Washington becomes Hempstead Rd. Live Oak will be on the right after 2.5 miles. 169; 2014 Caring for Cori Sue. Site design by Jamie Marie New Media Communications.

dailystruggleswithmld.blogspot.com

Daily Struggles with MLD: Don't judge me

http://dailystruggleswithmld.blogspot.com/2015/02/dont-judge-me.html

Daily Struggles with MLD. Thursday, February 12, 2015. Hahaha She looked gorgeous and she earned all of the money herself for the tickets and the ice cream I didn't have to spend any money on it. I was worried about what people would say to me about letting her go and then I decided that when people walk a mile in my shoes then they can judge me. February 14, 2015 at 10:23 PM. What a great kudos to have her write about that! February 22, 2015 at 11:57 AM. Subscribe to: Post Comments (Atom).

adamsfamily1981.blogspot.com

Adams Family: Forever and Always

http://adamsfamily1981.blogspot.com/2009/05/forever-and-always.html

Thursday, May 28, 2009. My nephew and his family were sealed in the Bountiful Temple on April 29th, it was such a special day and I feel so blessed that I was able to be there with them. Their 3 little ladies in their white dresses looked like little angels. Subscribe to: Post Comments (Atom). Copy and Paste This Code:. Those we love don't go away, they walk beside us everyday. Unseen, unheard, we know their near. Still loved, still missed, and forever dear. Loving Husband and Dad 1958-1996.

todddaniels.blogspot.com

Todd Daniels: October 2006

http://todddaniels.blogspot.com/2006_10_01_archive.html

His Battle with Metachromatic Leukodystrophy. Tuesday, October 10, 2006. Metachromatic Leukodystrophy web site links. Metachromatic Leukodystrophy web site links:. Http:/ www.ninds.nih.gov/disorders/metachromatic leukodystrophy/metachromatic leukodystrophy.htm. Http:/ www.emedicine.com/ped/topic2893.htm. Http:/ healthlink.mcw.edu/article/921440824.html. Http:/ www.mldfoundation.org/. Http:/ www.wrongdiagnosis.com/m/metachromatic leukodystrophy/intro.htm. Http:/ www.myelin.org/. Links to this post.

adamsfamily1981.blogspot.com

Adams Family: " 4th " of July Fun!!

http://adamsfamily1981.blogspot.com/2009/07/4th-of-july-fun.html

Wednesday, July 15, 2009. 4th " of July Fun! We started off the day at the Kaysville parade,. All the little ones had plenty of candy by the. Time it was over. Then we went to My parents. For a BBQ we had alot of good food it was alot of fun! Then we went and watched the fireworks on the. Lawn at Kaysville Jr. High. It was a fun day! Kinzee and Haedyn hanging out! Kinzee rode on the Bowman's float throwing candy! Haedyn got a prize at the parade! Everybody watching the parade. Copy and Paste This Code:.

adamsfamily1981.blogspot.com

Adams Family: On The Road Again!!!

http://adamsfamily1981.blogspot.com/2009/05/on-road-again.html

Thursday, May 28, 2009. On The Road Again! Kinzee feeding Gage she can't get enough of this little guy. Taz was a little concerned about this little person that took over his house for the weekend. He kept a pretty close eye on him. He is such a good baby, he slept all night every night, and he wakes up smiling in the morning! What more could grandma ask for. Subscribe to: Post Comments (Atom). Copy and Paste This Code:. Loving Husband and Dad 1958-1996. Our Precious Angel. 1984-2000. My sweet grand baby.

lensesforlove.com

Lenses for Love » providing priceless memories for deserving families

http://www.lensesforlove.com/blog

Stephanie Smith Meet Gemma. December 12, 2016. Posted in Donated Sessions. Gemma is the definition of. She was born 15 weeks early due to severe preeclampsia on June 23rd, 2016. Her parents were warned that she might not survive delivery and that they shouldn’t expect to hear her cry, but after an emergency c-section, she let out a brief but loud cry. From that moment, her parents knew they had a fighter on their hands. Gemma has proved her resilience and strength every day since she was born. Jake is th...