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The MPD Foundation Blog

Tuesday, May 10, 2011. Come join us at our new blog. Friday, April 15, 2011. Changing a name to fit the science. The MPD Foundation has changed its name to MPN Research Foundation. But don't worry; you'll still be able to reach us at our current web address and email addresses, at least for the foreseeable future. And consider giving the fact that this research is funded primarily by MPN patients around the world. They will be responsible for the next advancement in treatments. MPD Foundation's staff and...

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The MPD Foundation Blog | mpdfoundation.blogspot.com Reviews

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Tuesday, May 10, 2011. Come join us at our new blog. Friday, April 15, 2011. Changing a name to fit the science. The MPD Foundation has changed its name to MPN Research Foundation. But don't worry; you'll still be able to reach us at our current web address and email addresses, at least for the foreseeable future. And consider giving the fact that this research is funded primarily by MPN patients around the world. They will be responsible for the next advancement in treatments. MPD Foundation's staff and...

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we have moved,wwwmpnrf blogspot com,posted by michelle,no comments,email this,blogthis,share to twitter,share to facebook,share to pinterest,why the change,labels myeloproliferative neoplasms,labels mpd foundation,myeloproliferative,saghi ghaffari,here

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The MPD Foundation Blog | mpdfoundation.blogspot.com Reviews

https://mpdfoundation.blogspot.com

Tuesday, May 10, 2011. Come join us at our new blog. Friday, April 15, 2011. Changing a name to fit the science. The MPD Foundation has changed its name to MPN Research Foundation. But don't worry; you'll still be able to reach us at our current web address and email addresses, at least for the foreseeable future. And consider giving the fact that this research is funded primarily by MPN patients around the world. They will be responsible for the next advancement in treatments. MPD Foundation's staff and...

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mpdfoundation.blogspot.com

1

The MPD Foundation Blog: Changing a name to fit the science

http://mpdfoundation.blogspot.com/2011/04/changing-name-to-fit-science.html

Friday, April 15, 2011. Changing a name to fit the science. The MPD Foundation has changed its name to MPN Research Foundation. But don't worry; you'll still be able to reach us at our current web address and email addresses, at least for the foreseeable future. And consider giving the fact that this research is funded primarily by MPN patients around the world. They will be responsible for the next advancement in treatments. Subscribe to: Post Comments (Atom). This blog has moved! Promote Your Page Too.

2

The MPD Foundation Blog: July 2010

http://mpdfoundation.blogspot.com/2010_07_01_archive.html

Thursday, July 22, 2010. Meeting of the minds for MPD researchers. MPD Foundation grantees meet at ASH. Tuesday, July 13, 2010. MPD Foundation distributes brochures through NORD's Medical Meetings initiative. A benefit of membership in NORD is participation in their Medical Meetings initiative. As part of this program NORD collects and distributes brochures of member organizations to pertinent meetings. The MPD Foundation utilized this service by forwarding the MPD patient brochure. Friday, July 2, 2010.

3

The MPD Foundation Blog: June 2010

http://mpdfoundation.blogspot.com/2010_06_01_archive.html

Monday, June 28, 2010. MPD Patient Symposia Educate and Empower. This fall, the MPD Foundation will host a symposium in San Diego, California. Please continue to check our Events page. For updates on the next MPD symposium. Wednesday, June 23, 2010. Our hope is that as research advances and more treatments are approved insurers and Medicare develop the flexibility to address orphan diseases like myeloproliferative disorders in a manner that works for patients. Friday, June 18, 2010. The MPD Foundation is...

4

The MPD Foundation Blog: We have moved! Come join us at our new blog.

http://mpdfoundation.blogspot.com/2011/05/we-have-moved-come-join-us-at-our-new.html

Tuesday, May 10, 2011. Come join us at our new blog. Subscribe to: Post Comments (Atom). This blog has moved! MPD Foundation has changed its name to MPN Research Foundation. Continue reading about the world of MPN at mpnrf.blogspot.com. Promote Your Page Too. There was an error in this gadget. Come join us at our new blog. I'm Here for the Glamour. September is the month for Blood Cancer Awareness. Iron Jak: Bad Blood x 2. Life with Essential Thrombocytosis. 12/28/12 As time goes by. Trek for a Cure.

5

The MPD Foundation Blog: Spotlight on New Investigators

http://mpdfoundation.blogspot.com/2011/02/spotlight-on-new-investigators.html

Wednesday, February 23, 2011. Spotlight on New Investigators. MPD Foundation's staff and board are constantly revisiting what it means to fund research that produces results. We look at the various ways the work we fund affects patients - from available treatments to increasing their understanding of the scientific underpinnings of their disorder. On that note we'd like to introduce some of our newest grant recipients:. Wei Tong, PhD, Children's Hospital of Pennsylvania. Dr Kawakami's project is titled "...

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lifewithet.wordpress.com

Bone Marrow Biopsy | Life with Essential Thrombocytosis

https://lifewithet.wordpress.com/2011/06/22/bone-marrow-biopsy

Life with Essential Thrombocytosis. Living the life with ET. June 22, 2011. I’ve been wanting to share my experience with Bone Marrow Biopsy procedure since I underwent it last year (2010). Hope that this gives an overall picture on how the procedure works and why I went for the biopsy. Image Source: Mayo Clinic. Please ensure that you consult your Doctor or Hematologist if you need to undergo this procedure. Your Doctor or Hematologist will advice if this is necessary. July 15, 2011 at 2:37 pm. Glad you...

ironjak.blogspot.com

Iron Jak: Bad Blood x 2: Discouraged, encouraged...the HHC swings.

http://ironjak.blogspot.com/2009/03/discouraged-encouragedthe-big-swings.html

Iron Jak: Bad Blood x 2. Polycythemia Vera, Huntsman Cancer Institute, PV, MPD, Myeloproliferative Disease, Chemotherapy, Chemo. Sunday, March 22, 2009. Discouraged, encouraged.the HHC swings. Iron Jak finally updates the blog. After a rocky emotional start on this journey, the results have been felt and the mood is decidedly UP! Take heart - that dark cloud has turned into rain and the skies in the HHC direction are turning brighter shades of blue. Posted by Iron Jak. Subscribe to: Post Comments (Atom).

ourbeautifulandmessylife.blogspot.com

Our Beautiful and Messy Life: March 2015

http://ourbeautifulandmessylife.blogspot.com/2015_03_01_archive.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. March 31, 2015. Essential Thrombocythemia Platelet Count Update. I am so sorry that I have not updated this blog in a very long time. I have had so much going on with my five kids, etc. The greatest symptoms I experience when my platelet counts are high are the following: pins and needles in my hands, feet and on the top of my head and also I become very fatigued. I am often scared when I think ab...

ironjak.blogspot.com

Iron Jak: Bad Blood x 2: Up and DOWN and UP...

http://ironjak.blogspot.com/2010/11/up-and-down-and-up.html

Iron Jak: Bad Blood x 2. Polycythemia Vera, Huntsman Cancer Institute, PV, MPD, Myeloproliferative Disease, Chemotherapy, Chemo. Thursday, November 4, 2010. Up and DOWN and UP. Although I have been on new medication since June, the doctor says that I am under-medicated which explains the constantly increasing blood counts. They have been going UP. Approaching levels which could be dangerous for stroke or heart attack. I've been a little DOWN. Today I got an e-mail from the study coordinator, which said:.

ourbeautifulandmessylife.blogspot.com

Our Beautiful and Messy Life: March 2013

http://ourbeautifulandmessylife.blogspot.com/2013_03_01_archive.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. March 8, 2013. ET New Doctor - Be Your Own Advocate. It's been a while since I've had time to post on this blog. I started seeing a new Hem/Onco doctor, I like him much better than my last doctor. I don't feel dismissed when I have questions, I feel like I get more than my fifteen minutes worth so to speak. Every week is different. I am past the freaking out stage now that I am 2 years into de...

ourbeautifulandmessylife.blogspot.com

Our Beautiful and Messy Life: Essential Thrombocythemia Update & Platelet Counts

http://ourbeautifulandmessylife.blogspot.com/2013/07/essential-thrombocythemia-update.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. July 30, 2013. Essential Thrombocythemia Update and Platelet Counts. It's been a really long time since I updated my blog. It's been a busy time for our family. So my dose was put back to 5 pills/2,500 mg of Hydrea everyday and two baby aspirins everyday (it really helps with the pins and needles I experience from the E.T.)! We're meeting up with my husband's side of the family for a family reunio...

ourbeautifulandmessylife.blogspot.com

Our Beautiful and Messy Life: Essential Thrombocythemia Platelet Count Update

http://ourbeautifulandmessylife.blogspot.com/2015/03/essential-thrombocythemia-platelet.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. March 31, 2015. Essential Thrombocythemia Platelet Count Update. I am so sorry that I have not updated this blog in a very long time. I have had so much going on with my five kids, etc. The greatest symptoms I experience when my platelet counts are high are the following: pins and needles in my hands, feet and on the top of my head and also I become very fatigued. I am often scared when I think ab...

ourbeautifulandmessylife.blogspot.com

Our Beautiful and Messy Life: June 2011

http://ourbeautifulandmessylife.blogspot.com/2011_06_01_archive.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. June 17, 2011. I went to the oncologist (I still can't believe I have an oncologist in my 30's! I told the doctor that all five kids will be home with me this summer, (no summer camp here, we are just trying to keep up with the bills), and he said I don't have to come in for another two months. LOL! Hopefully, in two months time, my numbers will have come down enough to reduce my dose of HU! To qu...

ourbeautifulandmessylife.blogspot.com

Our Beautiful and Messy Life: September 2011

http://ourbeautifulandmessylife.blogspot.com/2011_09_01_archive.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. September 9, 2011. In Hospital - Blood Clotting, Chest Pains, Aggrenox. I was in the hospital two weeks ago for about three days. We called an ambulance. For information about signs of a heart attack, please visit this website:. Http:/ www.heart.org/HEARTORG/Conditions/Conditions UCM 305346 SubHomePage.jsp. AGGRENOX - http:/ www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001061/. Take Care - Shayna. Life w...

ourbeautifulandmessylife.blogspot.com

Our Beautiful and Messy Life: May 2011

http://ourbeautifulandmessylife.blogspot.com/2011_05_01_archive.html

Our Beautiful and Messy Life. The ramblings of a mother of five, living life with Essential Thrombocythemia. May 30, 2011. True heroism is remarkably sober, very undramatic. It is not the urge to surpass all others at whatever cost, but the urge to serve others at whatever cost. - Arthur Ashe. Thank you is not enough to say to all those who serve our country and who have served our country and paid the ultimate price. We remember you and think of you and your loved ones everyday! Monday, May 30, 2011.

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Tuesday, May 10, 2011. Come join us at our new blog. Friday, April 15, 2011. Changing a name to fit the science. The MPD Foundation has changed its name to MPN Research Foundation. But don't worry; you'll still be able to reach us at our current web address and email addresses, at least for the foreseeable future. And consider giving the fact that this research is funded primarily by MPN patients around the world. They will be responsible for the next advancement in treatments. MPD Foundation's staff and...

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