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Home - International Ovarian and Testicular Stromal Tumor Registry

Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? *** Cord Stromal Tumors. For Patients and Families. What will the Registry collect? *** Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. Advance Research, Early Detection and Treatment for Rare Tumors. The conference included presentations of the unique histology of DICER1 tumors; genetics of the DICER1 syndrome...

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Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? *** Cord Stromal Tumors. For Patients and Families. What will the Registry collect? *** Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. Advance Research, Early Detection and Treatment for Rare Tumors. The conference included presentations of the unique histology of DICER1 tumors; genetics of the DICER1 syndrome...
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Home - International Ovarian and Testicular Stromal Tumor Registry | otstregistry.org Reviews

https://otstregistry.org

Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? *** Cord Stromal Tumors. For Patients and Families. What will the Registry collect? *** Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. Advance Research, Early Detection and Treatment for Rare Tumors. The conference included presentations of the unique histology of DICER1 tumors; genetics of the DICER1 syndrome...

INTERNAL PAGES

otstregistry.org otstregistry.org
1

Resources - International Ovarian and Testicular Stromal Tumor Registry

https://www.otstregistry.org/resources

Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? Sex Cord Stromal Tumors. For Patients and Families. What will the Registry collect? Sex Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. Http:/ www.ppbregistry.org/. Http:/ ppb.cancer.gov/. Http:/ www.ovarian.org/.

2

Background - International Ovarian and Testicular Stromal Tumor Registry

https://www.otstregistry.org/who-we-are/background

Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? Sex Cord Stromal Tumors. For Patients and Families. What will the Registry collect? Sex Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. What does the Registry do? Enrolling in the Registry.

3

For Doctors - International Ovarian and Testicular Stromal Tumor Registry

https://www.otstregistry.org/for-doctors

Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? Sex Cord Stromal Tumors. For Patients and Families. What will the Registry collect? Sex Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. The Registry collects information on:. Sex Cord Stromal Tumors. What will the Registry collect?

4

OTST Blog - International Ovarian and Testicular Stromal Tumor Registry

https://www.otstregistry.org/who-we-are/otst-blog

Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? Sex Cord Stromal Tumors. For Patients and Families. What will the Registry collect? Sex Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. The 29th annual Pine Tree Apple Tennis Classic raised more than $200,000 for Childhood Cancer Research and the International OTST Registry! June 2014 National News story. Janua...

5

Who We Are - International Ovarian and Testicular Stromal Tumor Registry

https://www.otstregistry.org/who-we-are

Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? Sex Cord Stromal Tumors. For Patients and Families. What will the Registry collect? Sex Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. The specific aims of the Registry are:. To advance research for patients with ovarian and testicular stromal tumors and similar rare tumors. To determine the DICER1. To establi...

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ppbregistry.org ppbregistry.org

Forms, Schemas, and Roadmaps - The International Pleuropulmonary Blastoma Registry

http://www.ppbregistry.org/health-professionals/forms-schemas-and-roadmaps

Basic Facts About PPB. PPB Types: I, II and III. Age at Diagnosis, Gender, Laterality. Constitutional and Familial Issues: Genetics of PPB. A Very Rare Disease: Enrolling Patients in the Registry. Cerebral Metastases in PPB - Surveillance Recommended. Genetic Study of PPB. PPB Associated with Cystic Nephroma and Other Renal Tumors. Type I PPB: Treatment Issues. Type II and III THERAPY RECOMMENDATION CHANGE. Constitutional/Syndrome and Familial Disease. The Child with PPB. The Family of the Child with PPB.

ppbregistry.org ppbregistry.org

Health Professionals - The International Pleuropulmonary Blastoma Registry

http://www.ppbregistry.org/health-professionals

Basic Facts About PPB. PPB Types: I, II and III. Age at Diagnosis, Gender, Laterality. Constitutional and Familial Issues: Genetics of PPB. A Very Rare Disease: Enrolling Patients in the Registry. Cerebral Metastases in PPB - Surveillance Recommended. Genetic Study of PPB. PPB Associated with Cystic Nephroma and Other Renal Tumors. Type I PPB: Treatment Issues. Type II and III THERAPY RECOMMENDATION CHANGE. Constitutional/Syndrome and Familial Disease. The Child with PPB. The Family of the Child with PPB.

ppbregistry.org ppbregistry.org

Constitutional/Syndrome & Familial Disease - The International Pleuropulmonary Blastoma Registry

http://www.ppbregistry.org/health-professionals/constitutional-syndrome-and-familial-disease

Basic Facts About PPB. PPB Types: I, II and III. Age at Diagnosis, Gender, Laterality. Constitutional and Familial Issues: Genetics of PPB. A Very Rare Disease: Enrolling Patients in the Registry. Cerebral Metastases in PPB - Surveillance Recommended. Genetic Study of PPB. PPB Associated with Cystic Nephroma and Other Renal Tumors. Type I PPB: Treatment Issues. Type II and III THERAPY RECOMMENDATION CHANGE. Constitutional/Syndrome and Familial Disease. The Child with PPB. The Family of the Child with PPB.

ppb.cancer.gov ppb.cancer.gov

PPB | Study Team

https://www.ppb.cancer.gov/team.html

Skip to Main Content. What is the study about? Who is on the study team? What is a clinical study? Who is on the study team? Syndrome Study team is made up of researchers from these collaborating institutions:. National Cancer Institute (NCI). Douglas Stewart, MD. Study Director/Principal Investigator) is an internist and medical geneticist at NCI's Clinical Genetics Branch. Dr. Stewart has a special interest in familial cancer syndromes. Ann Carr, MS, CGC. Rosamma Decastro MSN, CRNP. Leslie Doros, MD,.

ppbregistry.org ppbregistry.org

Genetic Study of PPB - The International Pleuropulmonary Blastoma Registry

http://www.ppbregistry.org/health-professionals/critical-issues/genetic-study-of-ppb

Basic Facts About PPB. PPB Types: I, II and III. Age at Diagnosis, Gender, Laterality. Constitutional and Familial Issues: Genetics of PPB. A Very Rare Disease: Enrolling Patients in the Registry. Cerebral Metastases in PPB - Surveillance Recommended. Genetic Study of PPB. PPB Associated with Cystic Nephroma and Other Renal Tumors. Type I PPB: Treatment Issues. Type II and III THERAPY RECOMMENDATION CHANGE. Constitutional/Syndrome and Familial Disease. The Child with PPB. The Family of the Child with PPB.

ppbregistry.org ppbregistry.org

Donate - The International Pleuropulmonary Blastoma Registry

http://www.ppbregistry.org/index.php/donate

Basic Facts About PPB. PPB Types: I, II and III. Age at Diagnosis, Gender, Laterality. Constitutional and Familial Issues: Genetics of PPB. A Very Rare Disease: Enrolling Patients in the Registry. Cerebral Metastases in PPB - Surveillance Recommended. Genetic Study of PPB. PPB Associated with Cystic Nephroma and Other Renal Tumors. Type I PPB: Treatment Issues. Type II and III THERAPY RECOMMENDATION CHANGE. Constitutional/Syndrome and Familial Disease. The Child with PPB. The Family of the Child with PPB.

ppbregistry.org ppbregistry.org

The Family of the Child with PPB - The International Pleuropulmonary Blastoma Registry

http://www.ppbregistry.org/health-professionals/constitutional-syndrome-and-familial-disease/the-family-of-the-child-with-ppb

Basic Facts About PPB. PPB Types: I, II and III. Age at Diagnosis, Gender, Laterality. Constitutional and Familial Issues: Genetics of PPB. A Very Rare Disease: Enrolling Patients in the Registry. Cerebral Metastases in PPB - Surveillance Recommended. Genetic Study of PPB. PPB Associated with Cystic Nephroma and Other Renal Tumors. Type I PPB: Treatment Issues. Type II and III THERAPY RECOMMENDATION CHANGE. Constitutional/Syndrome and Familial Disease. The Child with PPB. The Family of the Child with PPB.

ppbregistry.org ppbregistry.org

Surgery - The International Pleuropulmonary Blastoma Registry

http://www.ppbregistry.org/health-professionals/surgery

Basic Facts About PPB. PPB Types: I, II and III. Age at Diagnosis, Gender, Laterality. Constitutional and Familial Issues: Genetics of PPB. A Very Rare Disease: Enrolling Patients in the Registry. Cerebral Metastases in PPB - Surveillance Recommended. Genetic Study of PPB. PPB Associated with Cystic Nephroma and Other Renal Tumors. Type I PPB: Treatment Issues. Type II and III THERAPY RECOMMENDATION CHANGE. Constitutional/Syndrome and Familial Disease. The Child with PPB. The Family of the Child with PPB.

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Home - International Ovarian and Testicular Stromal Tumor Registry

Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? Sex Cord Stromal Tumors. For Patients and Families. What will the Registry collect? Sex Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. Advance Research, Early Detection and Treatment for Rare Tumors. OTST Registry FAMILY MEETING 2015: Registration is open. The 2015 PPB and OTST Family Meeting. GO TEAL and GOLD.

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Children's Hospitals and Clinics of Minnesota. Children's National Medical Center. What does the Registry do? Enrolling in the Registry. What will the Registry collect? Sex Cord Stromal Tumors. For Patients and Families. What will the Registry collect? Sex Cord Stromal Tumors. Enrolling in the Registry. Other rare eligible tumors. Advance Research, Early Detection and Treatment for Rare Tumors. The conference included presentations of the unique histology of DICER1 tumors; genetics of the DICER1 syndrome...

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