proteus-uk.org

proteus family uk

Family Weekend 2015 at Aylesbury Bucks.BOOK NOW.01785 661263. Welcome to the UK support group for families and individuals affected by Proteus syndrome. We hope that you will take some time to browse our pages and find out a bit about this rare syndrome and what we as a support group do. You can also read a personal perspective on Proteus Syndrome in Your Stories. If you have any comments or would like further information, you can contact us at: info@proteus-uk.org. Are you an adult with Proteus Syndrome?

http://www.proteus-uk.org/

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CONTACTS AT PROTEUS-UK.ORG

Proteus Family Network UK

Jean Harrison

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Proteus Family Network UK

Jean Harrison

31 Ba●●●●● Lane

Sta●●●ord , ST17 0BH

GB

44.1●●●●4953

jh●●●●●●●●@aol.com

View this contact

Proteus Family Network UK

Jean Harrison

31 Ba●●●●● Lane

Sta●●●ord , ST17 0BH

GB

44.1●●●●4953

jh●●●●●●●●@aol.com

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proteus family uk | proteus-uk.org Reviews

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Family Weekend 2015 at Aylesbury Bucks.BOOK NOW.01785 661263. Welcome to the UK support group for families and individuals affected by Proteus syndrome. We hope that you will take some time to browse our pages and find out a bit about this rare syndrome and what we as a support group do. You can also read a personal perspective on Proteus Syndrome in Your Stories. If you have any comments or would like further information, you can contact us at: info@proteus-uk.org. Are you an adult with Proteus Syndrome?

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proteus family uk | proteus-uk.org Reviews

https://proteus-uk.org

Family Weekend 2015 at Aylesbury Bucks.BOOK NOW.01785 661263. Welcome to the UK support group for families and individuals affected by Proteus syndrome. We hope that you will take some time to browse our pages and find out a bit about this rare syndrome and what we as a support group do. You can also read a personal perspective on Proteus Syndrome in Your Stories. If you have any comments or would like further information, you can contact us at: info@proteus-uk.org. Are you an adult with Proteus Syndrome?

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proteus-uk.org

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proteus family uk :: glossary

http://www.proteus-uk.org/glossary.html

Glossary of Terms Associated with Proteus Syndrome and related conditions. X-ray examination of blood vessels after injection of a dye. Teeth that have failed to develop. Simple (benign) tumour composed of blood vessels and connective tissue. Simple (benign) tumour composed of blood or lymphatic tissue. Multiple angiomas of the skin and other organs. An organ or part of the body missing at birth. A disease or disorder involving a joint. Of arteries or veins. Wasting of any tissue or organ. A condition wh...

2

proteus family uk :: links

http://www.proteus-uk.org/links.html

We hope to build up a good selection of website links regarding Proteus Syndrome, and related conditions. If you have any links that we are missing and you think we should include on this site, please contact us. Provides advice,information and support to parents and families who care for children with any disability or special need. Campaigns to improve services and support for carers and also provides CarersLine, an information and advice line for carers. 01785 661263, jean@proteus-uk.org.

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proteus family uk

http://www.proteus-uk.org/index.html

Family Weekend 2015 at Aylesbury Bucks.BOOK NOW.01785 661263. Welcome to the UK support group for families and individuals affected by Proteus syndrome. We hope that you will take some time to browse our pages and find out a bit about this rare syndrome and what we as a support group do. You can also read a personal perspective on Proteus Syndrome in Your Stories. If you have any comments or would like further information, you can contact us at: info@proteus-uk.org. Are you an adult with Proteus Syndrome?

4

proteus family uk

http://www.proteus-uk.org/about.html

Who are Proteus Family Network UK? We have been established as a support group since 1998 and are a registered UK Charity. Our aim is to:. Preserve and protect the health and promote the welfare of persons affected by Proteus Syndrome and associated conditions. To advance the education of the medical profession and the general public on the subject of Proteus Syndrome, Klippel Trenaunay and associated conditions and its implication for the individual and their family. What do we do? Provide contact detai...

5

proteus family uk :: your stories

http://www.proteus-uk.org/yourstories.html

In August 1993 our son was born and was diagnosed with a rare condition known as Proteus Syndrome. It is a congenital condition ie. the abnormalities are defined at birth, although some may not be fully apparent and will develop with age. He is fortunate in that his legs are not unduly affected, however, a lot of children have severe overgrowth of a leg / foot which gives them great difficulty in walking - a foot can easily become distorted to a difference in shoe size of 4 -5 sizes, in length and circum...

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birthmarksupportgroup.org.uk

Birthmark Support Group

http://birthmarksupportgroup.org.uk/useful-links.aspx

Skip to content (press enter). Skip to main navigation (press enter). Skip to footer navigation (press enter). Stalk bite/salmon patch/angel kiss. Capillary malformation (Port wine stain/PWS). Congenital melanocytic naevus (CMN). How can you help? We want our website to be the best possible resource it can be. If you have found any interesting links that you would like to see here, please email Jo Webb. And we can include them. British Association of Dermatologists. British Association of Skin Camouflage.

kinetic-nursing.co.uk

Nhs Continuing Healthcare - Kinetic Nursing

http://kinetic-nursing.co.uk/useful-links

We try to help you as much as we can, below are some links to other website that might be able to help you further. Proteus Family Network UK. Association of Spina Bifida and Hydrocephalus. Action on Elder Abuse. Royal National Institute for the Blind. The Cure Parkinson's Trust. Direct Gov Benefit Guide. Read more ►. Read more ►. To all the carers at Kinetic Nursing who helped to care for Mr. Mottram, We would like to thank you for all your care and support though this difficult time. Mr and Mrs Calow.

svenskaktsnatverket.se

Länkar | Svenska KTS Nätverket

http://www.svenskaktsnatverket.se/länkar-7276709

Tillsammans är vi starka. Tillsammans är vi starka. Svenska KTS nätverket på Facebook. Klippel Trenanunay Syndrom på socialstyrelsens hemsida. Klippel Trenanunay Syndrom på wikipedia. Michael Politzer hade en mycket svår form av KTS och att ha det i samma grad som honom är mycket ovanligt! Har ni några frågor så tveka aldrig att höra av er till någon utav kontaktpersoner i nätverket, våra uppgifter hittar Ni under "Styrelsen". Dokumentär om Michael Politzer Del 1/3. Dokumentär om Michael Politzer Del 2/3.

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Proteus Marketing Communications #proteus #proteusbristol

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proteus-uk.org

proteus family uk

Family Weekend 2015 at Aylesbury Bucks.BOOK NOW.01785 661263. Welcome to the UK support group for families and individuals affected by Proteus syndrome. We hope that you will take some time to browse our pages and find out a bit about this rare syndrome and what we as a support group do. You can also read a personal perspective on Proteus Syndrome in Your Stories. If you have any comments or would like further information, you can contact us at: info@proteus-uk.org. Are you an adult with Proteus Syndrome?

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