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Rafaella

Our hope is that the stem cell transplant will change Rafi's destiny. We strongly believe the cost of doing nothing is too great and success is in the doing. Tab above you’ll be able to read our daily journal. Jackie and/or I will be posting as frequently as possible. Sign the guestbook and send us email, we would love to hear from you as we go through this journey. Plus, and we think most importantly, later in Rafi’s life we want to show her how many people cared about her.

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Rafaella | rafisworld.com Reviews
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Our hope is that the stem cell transplant will change Rafi's destiny. We strongly believe the cost of doing nothing is too great and success is in the doing. Tab above you’ll be able to read our daily journal. Jackie and/or I will be posting as frequently as possible. Sign the guestbook and send us email, we would love to hear from you as we go through this journey. Plus, and we think most importantly, later in Rafi’s life we want to show her how many people cared about her.
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1 about rafi
2 learn about
3 daily updates
4 pictures/video
5 guestbook
6 helpful links
7 coupons
8 reviews
9 scam
10 fraud
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Rafaella | rafisworld.com Reviews

https://rafisworld.com

Our hope is that the stem cell transplant will change Rafi's destiny. We strongly believe the cost of doing nothing is too great and success is in the doing. Tab above you’ll be able to read our daily journal. Jackie and/or I will be posting as frequently as possible. Sign the guestbook and send us email, we would love to hear from you as we go through this journey. Plus, and we think most importantly, later in Rafi’s life we want to show her how many people cared about her.

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1

All comment « RafisWorld.com

http://www.rafisworld.com/2010/01/27/guestbook

Epidermolysis Bullosa, stem cell transplant, EB. Laquo; News travels fast is an understatement………. Day -15………and Counting ». We would love for you to leave a comment for Rafi. We may not be able to get back to you as fast as we like, but we are sure you understand. Thanks……. This entry was posted on Wednesday, January 27th, 2010 at 6:57 am and is filed under Uncategorized. You can follow any responses to this entry through the RSS 2.0. Feed You can leave a response. From your own site. Knowing Rafi is do...

2

Helpful Links « RafisWorld.com

http://www.rafisworld.com/helpful-links

Epidermolysis Bullosa, stem cell transplant, EB. Here is the site for the Dystrophic Epidermolysis Bullosa Research of America (DEBRA.org). This is the only national not for profit organization dedicated to supporting research for a cure and treatment for EB as well as providing services to those families who are dealing with EB on a daily basis. I currently sit on the Board of Trustees of the organization. Bread & Chocolate Bakery. Click here to cancel reply. Mail (will not be published).

3

About Rafi « RafisWorld.com

http://www.rafisworld.com/about-rafi

Epidermolysis Bullosa, stem cell transplant, EB. Click here to cancel reply. Mail (will not be published). RafisWorld.com is proudly powered by WordPress.

4

Pictures/Video « RafisWorld.com

http://www.rafisworld.com/picturesvideo

Epidermolysis Bullosa, stem cell transplant, EB. NEW VIDEOS OF RAFI PLAYING GUITAR IN EARLY MAY. This video was shot ten minutes after we walked back in the door from our one month stay in the hospital. It was the second time we were discharged, and hopefully our last. Here Rafi was playing the guitar the next day. The video is a little longer and just shows off her musical talent. SOME NEW PICTURES FOR YOU AS OF MARCH 10. Click either photo for a larger view. Rafi and the Snowman. Wrapped Up in the NICU.

5

Daily Updates « RafisWorld.com

http://www.rafisworld.com/daily-updates

Epidermolysis Bullosa, stem cell transplant, EB. One Response to “Daily Updates”. Tweets that mention Rafaella - Topsy.com. April 14, 2010 at 5:11 am. 8230;] This post was mentioned on Twitter by Helen Baldwin, Patrice Williams. Patrice Williams said: Please pray for Rafi. Shes Day 53 BMT and has severe pneumonia and is now intubated and will be for weeks. May be GVHD. http:/ bit.ly/aAgxk2. Click here to cancel reply. Mail (will not be published). RafisWorld.com is proudly powered by WordPress.

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LINKS TO THIS WEBSITE

wellwelcometomyworld.blogspot.com wellwelcometomyworld.blogspot.com

Well, welcome to my world: July 2010

http://wellwelcometomyworld.blogspot.com/2010_07_01_archive.html

Well, welcome to my world. Wednesday, July 14, 2010. Such a busy life I lead. Things have just been so busy around here. Started with my boys graduation and today I don't know if I will make it out of my jammies. We have been going full speed and I am wiped out. So, I hope you like the new blog. I messed with the other one so much that I think I broke it. I really HAD to make this new one because I am not computer savvy and this was the next best option. More to come soon! Subscribe to: Posts (Atom).

wellwelcometomyworld.blogspot.com wellwelcometomyworld.blogspot.com

Well, welcome to my world: Here is what I have added to etsy

http://wellwelcometomyworld.blogspot.com/2010/05/here-is-what-i-have-added-to-etsy.html

Well, welcome to my world. Sunday, May 23, 2010. Here is what I have added to etsy. I have also added the hair bow holders. Please feel free to go take a look! Let me know what you think. I am going to work on some aprons next. Just trying to find my niche. I really enjoy making the bows though. Everything is for sale except for the baby. I need to keep her. She is my heart. Http:/ www.etsy.com/shop/Dianelynn2004. Subscribe to: Post Comments (Atom). The awesome blogs I check on daily.

wellwelcometomyworld.blogspot.com wellwelcometomyworld.blogspot.com

Well, welcome to my world: I think I may be crafty shmafty after all.

http://wellwelcometomyworld.blogspot.com/2010/05/i-think-i-may-be-crafty-shmafty-after.html

Well, welcome to my world. Saturday, May 29, 2010. I think I may be crafty shmafty after all. Here are my newest additions to etsy. Both come with matching hair bows. May 31, 2010 at 5:55 AM. Diane, if only I had a little girl to put in that dress.I love it! May 31, 2010 at 9:42 AM. Maybe one of these days, Courtney! I will make a sweet little dress when you have some baby girls! June 2, 2010 at 9:23 AM. See how much money I am going to save you in fabric! June 2, 2010 at 10:12 AM. You Spin Me Right Round.

wellwelcometomyworld.blogspot.com wellwelcometomyworld.blogspot.com

Well, welcome to my world: June 2010

http://wellwelcometomyworld.blogspot.com/2010_06_01_archive.html

Well, welcome to my world. Thursday, June 10, 2010. This post is for my sister. In the meantime though, I REALLY miss my sister. I miss you, girl. I wish we could have lunch together and cookouts. girls night out and some therapeutic shopping. I dream about hanging out at your house with your annoying. Subscribe to: Posts (Atom). The awesome blogs I check on daily. The Pioneer Woman - Full RSS Feed. Vintage Geo Measuring Cup Set by Ree. The Spohrs Are Multiplying. You Spin Me Right Round. I am just Diane...

wellwelcometomyworld.blogspot.com wellwelcometomyworld.blogspot.com

Well, welcome to my world: This post is for my sister

http://wellwelcometomyworld.blogspot.com/2010/06/this-post-is-for-my-sister.html

Well, welcome to my world. Thursday, June 10, 2010. This post is for my sister. In the meantime though, I REALLY miss my sister. I miss you, girl. I wish we could have lunch together and cookouts. girls night out and some therapeutic shopping. I dream about hanging out at your house with your annoying. June 10, 2010 at 9:14 PM. Your relationship with your sister sounds wonderful - even though you dont live close and you miss her so much! June 11, 2010 at 6:21 AM. You know, growing up we didnt get along a...

lovingbabydaylon.blogspot.com lovingbabydaylon.blogspot.com

Baby Daylon: November 2011

http://lovingbabydaylon.blogspot.com/2011_11_01_archive.html

Tuesday, November 15, 2011. First off I want to say that I was blown away by the response EB awareness week got! I am so impressed and so thankful to have such wonderful people in my life, such as you all, that have taken on the task of spreading awareness. From the bottom of my heart, Thank you! You can find the article HERE. Go away. I can't even process the possibility of a kidney transplant. My mind just won't allow it. Who knows? I can't even tell you how. He stayed on the sidewalk and couldn't care...

lovingbabydaylon.blogspot.com lovingbabydaylon.blogspot.com

Baby Daylon: Dance Central 2

http://lovingbabydaylon.blogspot.com/2012/06/dance-central-2.html

Monday, June 18, 2012. Posted by Jennifer Edling. When do you guys head for Minnesota? That was the cutest little dancer Ive ever seen. Adorable! June 18, 2012 at 11:23 PM. Its interesting to see music is what gets him on his feet. We have a daughter that did not walk for a long time for different reasons, but music is what got her on her feet. June 19, 2012 at 10:42 AM. Absolutely LOVE a Daylon video! Will be watching for updates on your trip to MN. Praying from Waterford, MI. June 21, 2012 at 9:03 AM.

lovingbabydaylon.blogspot.com lovingbabydaylon.blogspot.com

Baby Daylon: January 2012

http://lovingbabydaylon.blogspot.com/2012_01_01_archive.html

Monday, January 16, 2012. As many of you know, Tripp. Has returned home and is no longer in pain. Brian and I are heartbroken for his wonderful mama, Courtney but we're so grateful that he is enjoying the peace that we've all prayed for. He was such a great fighter and will never be forgotten. He has touched all of our hearts. He will be missed, but never forgotten. Posted by Jennifer Edling. Links to this post. Monday, January 9, 2012. It's been almost 2 months since my last post! Frustrated that he can...

lovingbabydaylon.blogspot.com lovingbabydaylon.blogspot.com

Baby Daylon: February 2012

http://lovingbabydaylon.blogspot.com/2012_02_01_archive.html

Thursday, February 16, 2012. Posted by Jennifer Edling. Links to this post. Subscribe to: Posts (Atom). Get email updates when we post! Help with the cure. I'm giving up my birthday for PUCK! To donate towards a cure, click here! Follow Daylon's EB friends. Lake Elsinore, CA, United States. This is the story of our sweet baby Daylon, and life with EB. View my complete profile. Create your own visitor map.

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Mot de passe :. J'ai oublié mon mot de passe. Raphaël tout simplement =P. Adresse Msn : rafiStyledu60@live.fr. Prénom : Raphaël ou rafi pour les intimes . Age : 14 Bouglies. Viile : Sacy ciitYY. Sii tu me connais pas besoins d'en savoir plus xD. Sacy le grand (60). Mise à jour :. Abonne-toi à mon blog! Salut Tous Le Monde. Titi , Raphii . Sacy ciity - '. Voilà tu saii Tou sur moii alors vas y décris toii en 5 com's ;-). Ou poster avec :. Posté le mercredi 05 mai 2010 08:22. Ou poster avec :. N'oublie pas...

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400 S Glenoaks Blvd. Los Angeles CA, 91502. 11:00 AM - 3:00 PM. 10:00 AM - 8:00 PM. 10:00 AM - 8:00 PM. 10:00 AM - 8:00 PM. 10:00 AM - 8:00 PM. 10:00 AM - 8:00 PM. 10:00 AM - 8:00 PM. Chicken Breast Kabob Plate. Beef Lule Kabob Plate. 400 S Glenoaks Blvd. Los Angeles CA, 91502. 2015 GrubHub Holdings Inc. Rafi's Village is a leading Los Angeles Sandwich.

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Rafaella

Our hope is that the stem cell transplant will change Rafi's destiny. We strongly believe the cost of doing nothing is too great and success is in the doing. Tab above you’ll be able to read our daily journal. Jackie and/or I will be posting as frequently as possible. Sign the guestbook and send us email, we would love to hear from you as we go through this journey. Plus, and we think most importantly, later in Rafi’s life we want to show her how many people cared about her.

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