Expert insights and perspectives on how to create patient-centric communications and relationships with your rare disease patient community
http://www.rarediseaseperspectives.com/
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Blair Van Brunt
127 W●●●●●n Ave
She●●●orn , Massachusetts, 01770
United States
View this contact
Blair Van Brunt
127 W●●●●●n Ave
She●●●orn , Massachusetts, 01770
United States
View this contact
Blair Van Brunt
127 W●●●●●n Ave
She●●●orn , Massachusetts, 01770
United States
View this contact
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Patient centered communications consulting for any business in rare disease space | rarediseaseperspectives.com Reviews
https://rarediseaseperspectives.com
Expert insights and perspectives on how to create patient-centric communications and relationships with your rare disease patient community
rarediseaseperspectives.com
We have a depth of knowledge in rare disease advocacy with our consortium.
http://rarediseaseperspectives.com/about/team-member-consultants
Founder, Communications Manager. Blair started her career in the advertising and publishing industry in sales and marketing. After having a third child with a rare disease, Shwachman Diamond Syndrome, she got involved in fundraising for research and eventually joined the board of the patient organization, SDS Foundation,and ran it for 10 years. Accomplishments include: funding increased 230%. Her involvement in the rare disease space increased to co-creating the 1.
Founder is a parent of rare disease patient and past president of a Foundation
http://rarediseaseperspectives.com/about
PATIENT ENGAGEMENT: Buzzphrase or Necessity? Engaging with patients at all stages of your business can bring. Lifesaving options to patients and savings options to the companies who are involved with them. Rare Disease Perspectives was started by Blair Van Brunt.
consult to obtain rare disease patient engagement strategies.
http://rarediseaseperspectives.com/services
Rare Disease Perspectives is plugged into the Rare Community. It has relationships with Global Genes, NORD, RDLA, RDUF, many online patient communities and patient groups. These contribute to a broad base to draw from as we strategize the best paths for relationship-building for your company. Our Patient Engagement Strategies. We create/refine/strengthen Patient Engagement Programs. That can build and strengthen partnerships and outreach to include:. Patient advocacy group landscape assessments. And will...
Create or refine relationships with the patient communities that you serve
http://rarediseaseperspectives.com/services/patient-engagement-programs
Unique perspectives will help your company create or refine authentic relationships with the patient communities that you serve. Assess Patient Advocacy Groups (PAGs) landscape to identify Key Opinion Leaders and Patients, staff coordinators, Executive Directors, Board members. Create/refine/strengthen patient advocacy partnerships, outreach and relationship management. Educate on importance of the pediatric-to-adult transition communications.
Rare Disease Perspectives LLC
http://rarediseaseperspectives.com/blog-2
TREND : Turning Anecdote into Evidence – a new platform. March 14, 2016. I am excited to partner with Formed Inc and Mozzo Analytics to bring this new platform, TREND , to the world. Turning Anecdotes into Evidence. I have partnered with Formed Inc and Mozzo Analytics to promote a new,networked platform for patient communities called TREND. Anecdotal data is powerful and can inform all aspects of drug discovery. ANECDOTES RELATIONSHIPS TOOLS = ENGAGEMENT. Call or email me if you would like to learn more.
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Rare disease matters
Recognizing and understanding the value of patient-driven innovation. Why Rare disease matters. Patient-initiated research foundations: A source of funding, but more importantly a continuous source of inspiration. Closing a gap for rare diseases or simply a bridge too far. Dog head transplant by Demichow (1959). Attribution: Bundesarchiv, Bild 183-61478-0004 / Weiß, Günter / CC-BY-SA. To quote the famous 1997 Apple Think different Ad. Does this mean he is right and should advance with his venture? This w...
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Patient centered communications consulting for any business in rare disease space
Our direct patient experience can help you connect. Partnering with patients can reduce overall costs. Patient perspectives can guide strategy. Rare Disease Perspectives is a communications consulting firm directed to foster and create communications, relationships and trust between patients, patient advocacy groups and the industries involved with them. LISTEN TO LIVE TO LEARN. As such we at the BioPontis Alliance Rare Disease Foundation.
Plateforme Maladies Rares - Home
Since 2001, the Rare Disease Platform is a place that brings together over a hundred employees and many volunteers, mobilised to advance the fight against rare diseases and to improve the lives of patients and their families. Institut des maladies rares. Maladies Rares Info Services.
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