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Like A ReedOccasional thoughts and observations on living with Ehlers Danlos and living like the reed-- flexible but strong.
http://rogueneuro.blogspot.com/
Occasional thoughts and observations on living with Ehlers Danlos and living like the reed-- flexible but strong.
http://rogueneuro.blogspot.com/
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Like A Reed | rogueneuro.blogspot.com Reviews
https://rogueneuro.blogspot.com
Occasional thoughts and observations on living with Ehlers Danlos and living like the reed-- flexible but strong.
rogueneuro.blogspot.com
Like A Reed: May 2011
http://rogueneuro.blogspot.com/2011_05_01_archive.html
Occasional thoughts and observations on living with Ehlers Danlos and living like the reed- flexible but strong. Wednesday, May 4, 2011. I am a backward walking Superstar. I had my first real day of Physical Therapy yesterday. ( my evaluation was the week before). I think I am going to love this. We are starting with pool-based therapy, as my left ankle tendinitis is pretty bad and they want to get some weight off the leg while we get better joint stability. I was walking by extending my foot forward, la...
Like A Reed: June 2011
http://rogueneuro.blogspot.com/2011_06_01_archive.html
Occasional thoughts and observations on living with Ehlers Danlos and living like the reed- flexible but strong. Sunday, June 19, 2011. You are not Sick. It is important if you have any collagen defect that you have an echo and /or an ultra sound to make sure that your heart and blood vessels are not dangerously impacted. Talk with your doctor about this and follow the safety limits they give you *. You may have even had doctors tell you this. Feel bad? But YOU ( and I) are NOT sick. Rest is your enemy.
Like A Reed: July 2011
http://rogueneuro.blogspot.com/2011_07_01_archive.html
Occasional thoughts and observations on living with Ehlers Danlos and living like the reed- flexible but strong. Tuesday, July 12, 2011. I am full of Sh! Warning: This is a TMI post. Turn away now if discussions of bodily functions make you a bit squeamish, or you just don't want to know. ;-). After 14 hours of that, I can guarantee that there was NOTHING in my stomach or above. Now where the frack did that come from? Posted by Nan Braun. Subscribe to: Posts (Atom). I am a documented mutant! New doctors ...
Like A Reed: I am a documented mutant !!
http://rogueneuro.blogspot.com/2011/04/i-am-documented-mutant.html
Occasional thoughts and observations on living with Ehlers Danlos and living like the reed- flexible but strong. Friday, April 15, 2011. I am a documented mutant! I got a call from the NorthEast Indiana Genetics Clinic this morning, they had results of my genetic testing for Ehlers Danlos ( classical type) back from the testing lab. Is that this is a relatively new mutation. They said the testing lab said they had seen it in one other case, but with no details). How could that be significant? Than an ala...
Like A Reed: I am full of Sh!t
http://rogueneuro.blogspot.com/2011/07/i-am-full-of-sht.html
Occasional thoughts and observations on living with Ehlers Danlos and living like the reed- flexible but strong. Tuesday, July 12, 2011. I am full of Sh! Warning: This is a TMI post. Turn away now if discussions of bodily functions make you a bit squeamish, or you just don't want to know. ;-). After 14 hours of that, I can guarantee that there was NOTHING in my stomach or above. Now where the frack did that come from? Posted by Nan Braun. January 25, 2012 at 12:31 PM. This too shall pass, dear. New docto...
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transballad: Ugh. Ugh.
http://transballad.blogspot.com/2013/01/ugh-ugh.html
Poetry, professorial ambitions and collagenopathy. Wednesday, January 16, 2013. I'm not as good at denial as my parents, although I'm still pretty good. Ignore it, maybe it'll go away. I dragged through the holidays, barely getting out of my pajamas. I slept in the basement so I wouldn't keep my sister up because I'd stopped sleeping though the night long ago. It's like, what, the constipation, urinary retention, tachycardia, low blood pressure, nausea, vomiting and months-long headache weren't enough?
transballad: My first video blog!
http://transballad.blogspot.com/2012/11/my-first-video-blog.html
Poetry, professorial ambitions and collagenopathy. Sunday, November 11, 2012. My first video blog! I am so sorry you are going through this pain without the support that you need from your doctors. I hope that you get answers and treatment soon and that in the meantime you manage to stay as peaceful and hopeful as you can. I too have EDS and am starting to deal with regular severe headaches. It is overwhelming to have yet another symptom added to the pile. Sending love from Scotland,. My Life with EDS.
transballad: State of the Union
http://transballad.blogspot.com/2013/02/state-of-union.html
Poetry, professorial ambitions and collagenopathy. Saturday, February 2, 2013. State of the Union. My brother is in the army and will shortly deploy for S. Korea. I will miss him so much, but I'm very proud of him. I'm proud of my little sister too. My sibs are so talented. I wish I knew what vitamin or mineral I wasn't getting enough of so I could try to eat more of it! I guess I should find a new GI doctor and gets some tests or who knows what else will happen. I'm at my limit. Got into a modest argume...
transballad: Lonely Stories
http://transballad.blogspot.com/2012/11/lonely-stories.html
Poetry, professorial ambitions and collagenopathy. Thursday, November 29, 2012. N and I met on an archetypically beautiful August day. The day was beautiful. I was beautiful. He was beautiful. The confluence of these things drew the attention of people as we walked by. Typically, people ignored me no matter how dressed up I was but when N. and I were together, people seemed to be able to sense my beauty. I don't know how. It did feel nice. And I couldn't shut up. Are you sure this isn't mental? After we ...
transballad
http://transballad.blogspot.com/2012/10/i-had-disastrous-few-days-in-hospital.html
Poetry, professorial ambitions and collagenopathy. Monday, October 15, 2012. Subscribe to: Post Comments (Atom). I'm a Cleveland born and bred poet who loves fashion. And I have Ehlers-Danlos Syndrome. View my complete profile. A morning kitchen quiet. Brilliant Mind Broken Body. I Could Not Make This Stuff Up. My Life with EDS. Pity Reached By Sound. Watermark template. Powered by Blogger.
transballad: This is Why I Hate Doctors
http://transballad.blogspot.com/2012/10/this-is-why-i-hate-doctors.html
Poetry, professorial ambitions and collagenopathy. Wednesday, October 17, 2012. This is Why I Hate Doctors. If hope is a thing with feathers, despair is a thing with teeth. I was gazing at the fall finery one afternoon, when despair got a grip on me. I am never going to get better. I had actually realized this before, though I'm not sure where. It might have been in the ER during the five hour wait to be seen, or in the small, dark hospital room with the neurology resident. In any case, surely it is true.
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Like A Reed
Occasional thoughts and observations on living with Ehlers Danlos and living like the reed- flexible but strong. Tuesday, July 12, 2011. I am full of Sh! Warning: This is a TMI post. Turn away now if discussions of bodily functions make you a bit squeamish, or you just don't want to know. ;-). After 14 hours of that, I can guarantee that there was NOTHING in my stomach or above. Now where the frack did that come from? Posted by Nan Braun. Sunday, June 19, 2011. You are not Sick. It is important if you ha...
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Queen Of Hearts - X-men CMV - Romy. Aug 22nd, 2016 at 1:14 AM. A little Rogue Gambit CMV we filmed earlier this year :D. Dec 4th, 2012 at 12:22 AM. Made some Marvel and DC comic icons :). X-Men Evo Fic: The Smallest Moments. Nov 26th, 2012 at 5:44 PM. I own nothing but the way the words fit together. X-Men and its characters belong to Marvel, Stan Lee, etc. The Smallest Moments {Can Change Your Life}. A series of moments leading up to Rogue and Gambit becoming official. A couple of Romy drabbles :).
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