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ros1positive | Facing terminal cancer at age 26.

Facing terminal cancer at age 26. (by Emily)

http://ros1positive.wordpress.com/

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ros1positive | Facing terminal cancer at age 26. | ros1positive.wordpress.com Reviews

https://ros1positive.wordpress.com

Facing terminal cancer at age 26. (by Emily)

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Funerals, Memorials, Cremation, blah blah blah | ros1positive

https://ros1positive.wordpress.com/2014/10/05/funerals-memorials-cremation-blah-blah-blah

Facing terminal cancer at age 26. Skip to primary content. About Burton (and his cancer history). Funerals, Memorials, Cremation, blah blah blah. October 5, 2014. The past couple days have been spent contemplating life and funerals and memorials. I realized funerals/memorials are much like weddings – you can do anything you want! The problem is, I’ve gone to about ten weddings and I’ve never gone to any funerals. I don’t know how it works at all. And Death Shall Have No Dominion. We put up even more phot...

2

“I think he’s dying.” | ros1positive

https://ros1positive.wordpress.com/2014/09/26/i-think-hes-dying/comment-page-1

Facing terminal cancer at age 26. Skip to primary content. About Burton (and his cancer history). 8220;I think he’s dying.”. September 26, 2014. As soon as we can get an application in. It’s a beautiful place, a renovated San Francisco Victorian with six bedroom and a garden. This entry was posted in Uncategorized. 21 thoughts on “ “I think he’s dying.”. September 26, 2014 at 11:03 am. Aunt Margie and Uncle Mark. September 26, 2014 at 11:19 am. September 26, 2014 at 12:20 pm. September 26, 2014 at 1:25 pm.

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This new life I have to face | ros1positive

https://ros1positive.wordpress.com/2014/10/09/this-new-life-i-have-to-face

Facing terminal cancer at age 26. Skip to primary content. About Burton (and his cancer history). This new life I have to face. October 9, 2014. I’ve been staring at this blinking cursor for a couple hours now, not sure what to write. I can’t believe it’s only been four days since Burton left us. It feels like it’s been years. I feel tired and old. I still need to call them). And of course, some of his favorite beverages: pumpkin beers, PBRs and old fashioneds. What if nobody wants to speak and share?

4

Still holding on – and a wedding in Tiburon! | ros1positive

https://ros1positive.wordpress.com/2014/10/14/still-holding-on-and-a-wedding-in-tiburon

Facing terminal cancer at age 26. Skip to primary content. About Burton (and his cancer history). Still holding on – and a wedding in Tiburon! October 14, 2014. Burton’s memorial is going to be this weekend. It’s soon. Despite me wanting to keep it small, there will be about 70 people there, and that’s totally okay. I just have to make sure we have enough food! Martin and Molly, plus the beautiful fall inspired table settings! And lots of wine! Amazing menu for the night! 2) It’s hard for me to hav...

5

August | 2014 | ros1positive

https://ros1positive.wordpress.com/2014/08

Facing terminal cancer at age 26. Skip to primary content. Skip to secondary content. About Burton (and his cancer history). Monthly Archives: August 2014. Treatment progress and Burning Man. August 17, 2014. I’ve been so busy with work and Burning Man (more on that later) that it’s been incredibly hard to do anything else. But here I am for an update! We’re officially headed to Burning Man! Alrightback to prepping, this tent isn’t gonna seal itself! August 6, 2014. A bit of good news though – Burt...

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thrivingwithlungcancer.com thrivingwithlungcancer.com

Three biopsies in eight months | thrivingwithlungcancer

https://thrivingwithlungcancer.com/2014/01/31/three-biopsies-in-eight-months

Life with advanced lung cancer: tips, tricks, insights, and inspirations. 8220;So, you’re cured? Living with lung cancer: Respect the fatigue →. Three biopsies in eight months. January 31, 2014. In my first post, “Lung Cancer: What I Wish I’d Known in the First 72 Hours,”. I said I wished I had known to ask the doctor to take extra tissue in the initial biopsy. It might have helped me avoid having two more biopsies in the next eight months. So I had a second biopsy in March 2013. Cores: one for the PD-L1...

thrivingwithlungcancer.com thrivingwithlungcancer.com

Living with lung cancer: Respect the fatigue | thrivingwithlungcancer

https://thrivingwithlungcancer.com/2014/02/03/living-with-lung-cancer-respect-the-fatigue

Life with advanced lung cancer: tips, tricks, insights, and inspirations. Three biopsies in eight months. A brief pause for research →. Living with lung cancer: Respect the fatigue. February 3, 2014. A friend who’d been through cancer and chemotherapy brought us gifts: a soft, fleecy blanket and a pillow for each of us. “Whenever you need a nap, take one,” she said. “These are to remind you.”. During the weeks between diagnosis and treatment, my doctors had me take steroids as a stopgap measure. Fall...

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Voices Silenced by Lung Cancer | #LCSM

https://lcsmchat.com/lung-cancer-resources/voices-silenced-by-lung-cancer

Profiles in Lung Cancer 2015. Lung Cancer in the Media. Voices Silenced by Lung Cancer. Voices Silenced by Lung Cancer. The bloggers in this list bravely shared their lung cancer stories. Although their voices have now been silenced by the disease, their words still offer valuable insights into living with lung cancer. We thanks them for generously allowing us into their world, and hold them in our hearts. Stage IV NSCLC EGFR. Sample: “Finding NED Devine”. Stage IV NSCLC EGFR. Dx February 2013 at age 60.

lil-lytnin.blogspot.com lil-lytnin.blogspot.com

A Lil Lytnin' Strikes Lung Cancer: Sharing Our Story

http://lil-lytnin.blogspot.com/2014/10/sharing-our-story.html

A Lil Lytnin' Strikes Lung Cancer. Living, Loving, and Momming It Up with Stage IV Lung Cancer. Other Lung Cancer Blogs. Saturday, October 04, 2014. I almost titled this post "Sharing My Story," but realized that this is much bigger than me. Today I had the honor of speaking at the Peter A. Kaylor Lung Cancer Walk in Allegan, Michigan. I know how lucky I am to be able to speak out about this disease, when so many others who have gone before me are no longer able to do so. The cancer was shrinking, but no...

thrivingwithlungcancer.com thrivingwithlungcancer.com

long-term survival | thrivingwithlungcancer

https://thrivingwithlungcancer.com/tag/long-term-survival

Life with advanced lung cancer: tips, tricks, insights, and inspirations. Tag Archives: long-term survival. Life beyond lung cancer. April 7, 2014. A strange thing has happened in the past couple of months: I’ve become intensely involved in finishing my final qualifying exam and my dissertation proposal, which have nothing whatsoever to do with lung cancer. I’ve been working with a coach … Continue reading →. 8220;So, you’re cured? January 30, 2014. January 25, 2014. January 18, 2014. January 9, 2014.

thrivingwithlungcancer.com thrivingwithlungcancer.com

“So, you’re cured? Or in remission?” | thrivingwithlungcancer

https://thrivingwithlungcancer.com/2014/01/30/so-youre-cured-or-in-remission

Life with advanced lung cancer: tips, tricks, insights, and inspirations. Patient engagement: a powerful tool with a powerful history. Three biopsies in eight months →. 8220;So, you’re cured? January 30, 2014. I recently attended an event where I saw a number of people I hadn’t seen in several years. Many hadn’t known I had cancer. When I tried to explain, my story didn’t always seem to compute. 8220;So you’re all better now? 8221; I’m doing very well on a new medication, and I feel good. Click to share ...

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clinical trials | thrivingwithlungcancer

https://thrivingwithlungcancer.com/tag/clinical-trials

Life with advanced lung cancer: tips, tricks, insights, and inspirations. Tag Archives: clinical trials. Clinical trials and their role in lung cancer treatment: a brief introduction. January 21, 2014. Banner photo by Jamie B. Stroud. Diagnosis and beginning treatment. Genetic mutations in lung cancer. Top Posts and Pages. Even with stage IV lung cancer, long-term survival is possible. Lung cancer: What I wish I’d known in the first 72 hours. Chemotherapy tips: EMLA cream. Blogs by lung cancer survivors.

thrivingwithlungcancer.com thrivingwithlungcancer.com

thrivingwithlungcancer | Life with advanced lung cancer: tips, tricks, insights, and inspirations | Page 2

https://thrivingwithlungcancer.com/page/2

Life with advanced lung cancer: tips, tricks, insights, and inspirations. Newer posts →. Patient engagement: a powerful tool with a powerful history. January 29, 2014. You might hear the term participatory medicine, coined by Gilles Frydman (see http:/ participatorymedicine.org/. Patient engagement and participatory medicine are, of course, not really new at all. DeBronkart gives credit to hippies (he was one himself, and Tom Ferguson was the medical editor of the best-selling Whole Earth Catalog. Conver...

thrivingwithlungcancer.com thrivingwithlungcancer.com

Uncategorized | thrivingwithlungcancer

https://thrivingwithlungcancer.com/category/uncategorized

Life with advanced lung cancer: tips, tricks, insights, and inspirations. When you take a pill, drink ALL the water! June 30, 2015. I’m prone to swallowing my pills with just a tiny sip of water, or, in a pinch, none at all. It makes me feel like the BOSS of pill taking. This is not such a good approach, as I recently … Continue reading →. 5K for lung cancer research. October 19, 2014. Acquired Resistance Patient Forum. August 2, 2014. 11 months and counting. August 1, 2014. I just had another beautiful ...

thrivingwithlungcancer.com thrivingwithlungcancer.com

11 months and counting | thrivingwithlungcancer

https://thrivingwithlungcancer.com/2014/08/01/11-months-and-counting

Life with advanced lung cancer: tips, tricks, insights, and inspirations. Life beyond lung cancer. Acquired Resistance Patient Forum →. 11 months and counting. August 1, 2014. Progression-free survival is just what it sounds like: the amount of time a patient is able to survive without the cancer progressing, or growing. It’s not the same as overall survival, which is the length of life after diagnosis. Right now my overall survival is about 19 months. I’ve been working out with weights twice a wee...

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ros1positive | Facing terminal cancer at age 26.

Facing terminal cancer at age 26. Skip to primary content. Skip to secondary content. About Burton (and his cancer history). October 23, 2014. Saturday was beautiful. We had the memorial on Ocean Beach. I expected cloudy skies and at least wind (OB is notorious for having crap weather), but it was beautiful out. 70-75, sunny, no clouds and a light breeze. And death shall have no dominion. Dead men naked they shall be one. With the man in the wind and the west moon;. Though they go mad they shall be sane,.

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