sudepaware.org
Campaign materials & events
http://www.sudepaware.org/msos_materials.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). The eToolkit is a set of documents designed to improve understanding of SUDEP and to facilitate its discussion among families, healthcare providers, death investigation professionals and researchers. If you would like to add your organizations logo/details to these brochures, please contact us. Rather than download it to your site. The first compo...
sudep-registry.org
Resources – North American SUDEP Registry (NASR)
http://sudep-registry.org/resources
North American SUDEP Registry (NASR). Please forgive our site's appearance. We are currently undergoing site maintenance. Research & Tissue Donation. Coordinated by the Epilepsy Foundation of America, the SUDEP Institute is a collaboration of nonprofit organizations, medical professionals, parent advocates, and government agencies. It offers SUDEP education for families and doctors; counseling for bereaved families; and supports research into the causes of and ways to prevent SUDEP. PAME is a four-day le...
sudepaware.org
SUDEP support
http://www.sudepaware.org/sudep_support.html
Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Understands how terribly alone SUDEP-bereaved families can feel in their plight for information and to find out what happened to their loved one. Or call toll-free on 1-855-85-SUDEP (78337). Further information and support is also available from the following agencies:. And Internationally on SUDEP and other epilepsy-related deaths.
rosiemeryl.com
Cart - Rosie Meryl
http://www.rosiemeryl.com/cart
Your basket is currently empty. Rosie Meryl will be donating £5 from every item sold to epilepsy related charities. Hi My name is Emma Carter and my family and I have created this brand in memory of my late daughter Rosie Meryl Carter. Who sadly passed away as a result of SUDEP or Sudden Unexpected Death in Epilepsy. Delivery & Returns. Terms & Conditions.
epilepsyinessex.org
Links
http://www.epilepsyinessex.org/page8.html
Banishing Fear With Understanding. S E Essex Epilepsy Support Group does not endorse any products, websites or services listed here, nor accept responsibility for their quality. UK Epilepsy & Pregnancy Register. International Bureau for Epilepsy. Southend Association of Voluntary Services. Southend University Hospital NHS Foundation.
epilepsyhere.org.uk
Epilepsy - What it does
http://epilepsyhere.org.uk/index.php/epilepsy-what-it-does
Onclick="window.open(this.href,'win2','status=no,toolbar=no,scrollbars=yes,titlebar=no,menubar=no,resizable=yes,width=640,height=480,directories=no,location=no'); return false;" rel="nofollow". EPILEPSY - What it does. Epilepsy is a tendency to recurrent seizures which occur due to an abnormal disorganised burst of electrical activity in the brain. Some people refer to these as "fits" but others find the term offensive. For their explanation of MRI click here. And for EEG click here. For up to 70% of pat...
epilepsyhere.org.uk
Epilepsy Websites
http://epilepsyhere.org.uk/index.php/epilepsy-websites
Onclick="window.open(this.href,'win2','status=no,toolbar=no,scrollbars=yes,titlebar=no,menubar=no,resizable=yes,width=640,height=480,directories=no,location=no'); return false;" rel="nofollow". Is the working name of. National Society for Epilepsy. Which is the largest medical charity for the care and treatment of people with epilepsy. They have a telephone help line on 44 (0)1494601400 from overseas or 01494 601400 in the UK. Which was formed in the early 1990s to provide information about S.U.D...Has m...
epilepsy.ie
Links - Epilepsy Ireland
http://www.epilepsy.ie/index.cfm/spKey/links.html
Brainwave – The Irish Epilepsy Association. Shedding a light on epilepsy. Follow epilepsy ireland on facebook. Follow epilepsy ireland on Twitter. You are here: Home. Be a TEAM Player. International Bureau for Epilepsy (IBE). An umbrella body for epilepsy organisations all over the world. Links to member organisations are available. Joint Epilepsy Council of U.K. and Ireland (JEC). International League Against Epilepsy (ILAE). Global Campaign Against Epilepsy. The Epilepsy Care Foundation was founded in ...
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