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Taj's Journey – Over coming challenges a rare disease presents.

Over coming challenges a rare disease presents.

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Taj's Journey – Over coming challenges a rare disease presents. | tajsjourney.wordpress.com Reviews

https://tajsjourney.wordpress.com

Over coming challenges a rare disease presents.

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Taj’s Birthday Party – Taj's Journey

https://tajsjourney.wordpress.com/2016/12/12/tajs-birthday-party

Over coming challenges a rare disease presents. Taj’s Birthday Party. What a busy time of the year and especially for Taj its his birthday month, how exciting is that! It is one week away until Taj turns twelve. Taj is supper excited and loves this time of the year, before his bothers arrival into this world December was always all about him. He loved it he seemed to just constantly be getting gifts.Birthday and Christmas gifts what I’m sure felt like a daily event. Darth Vader Chest Plate Cake made by me.

2

Jasmine – Taj's Journey

https://tajsjourney.wordpress.com/author/jasntagmailcom

Over coming challenges a rare disease presents. Could you please leave our lives? Is it at all possible for you to not be here anymore? Because every day you create stress and worry to all those that care for Taj. You keep us on our toes and keep us from focusing on so many other things that many get to worry about. We continue back on our daily routine all the while we keep a close eye on our sleeping Taj, hoping you’re not going to revisit us again that day or anytime soon. March 3, 2017. Leave a comme...

3

Introduction – Taj's Journey

https://tajsjourney.wordpress.com/2016/09/23/introduction

Over coming challenges a rare disease presents. A life journey like no other! Taj has a rare disease which causes many other issues. Taj rare disease is Pachygyria (lissencephaly), for those that have no idea what this means, it is simple Taj’s brain didn’t form correctly. His cortex (outer layer) doesn’t have as many ridges/bumps (see image bellow. Image A is a pachy brain and image B is a fully formed normal brain). Taj is a nerd at heart and I love that about him, it suites him. Star wars, Dr Who ...

4

Christmas Time! – Taj's Journey

https://tajsjourney.wordpress.com/2016/12/27/christmas-time

Over coming challenges a rare disease presents. We as a family wish every single one of you a very Merry Christmas and hope you have had a wonderful time celebrating and spending the holidays with loved ones. For those who don’t celebrate Christmas I hope you enjoyed the time with family and loved ones celebrating in your own way. Taj making reindeer food. Yes he still believe and its beautiful he still does. December 27, 2016. 1 thought on “Christmas Time! Leave a Reply Cancel reply. You are commenting ...

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thelongchain.wordpress.com thelongchain.wordpress.com

Acceptance, accessibility and attitude | The long chain

https://thelongchain.wordpress.com/2015/06/17/acceptance-accessibility-and-attitude

Taking every precious day as it comes. Acceptance, accessibility and attitude. So when I was asked I’m not sure if it was ironically or strategically to take part in a committee focusing on gender equality in the work place, I was very happy to contribute. The first test of equality I proposed was that the only way I could make committee meetings was to bring Benjamin with me. Click to share on Twitter (Opens in new window). Share on Facebook (Opens in new window). It will get easier. It could be you.

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It will get easier | The long chain

https://thelongchain.wordpress.com/2015/06/03/it-will-get-easier

Taking every precious day as it comes. It will get easier. It will get easier, they said. Once he gets past the ‘two year old functioning as a new-born’ phase and into the ‘five year old functioning as a one year old’ phase it will be more rewarding, less thankless, more. Of course, there’s no guarantee he ever will move on from his present stage of development. He may stay like this for his lifetime. He may regress. But it got me thinking: When will it start to get easier? There’s no point wishing these...

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Highs and lows of a feeding tube | The long chain

https://thelongchain.wordpress.com/2015/06/26/highs-and-lows-of-a-feeding-tube

Taking every precious day as it comes. Highs and lows of a feeding tube. It’s been a few weeks now since Benjamin got his mic-key button fitted. The operation went smoothly and we were home in a couple of days. Beforehand, I asked. Will this give me my happy little boy back? With all the research on earth we weren’t going to know the answer to that question without trying it. Here’s what we’ve found out so far. On the plus side. It’s easier to get him to take his medications. On the minus side. I can no ...

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ahdavey | The long chain

https://thelongchain.wordpress.com/author/ahdavey

Taking every precious day as it comes. It could be you. We’ve all been there, right? Grabbing your changing bag you rush him into the bathroom and plonk him on the changing table, holding him with one hand to stop him wriggling off while with the other hand you rifle through the changing bag and silently pray that you remembered to repack some spare clothes after the last incident. Not every nappy explosion has such a happy ending. What do you do? What happened to health and safety? Some disabled people ...

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Pinning my hopes on a button | The long chain

https://thelongchain.wordpress.com/2015/05/12/pinning-my-hopes-on-a-button

Taking every precious day as it comes. Pinning my hopes on a button. Last night, as I was kissing Benjamin goodnight, he smiled at me. Just last month this would have been no big deal: whatever happened during the day, I knew I could rely on getting a smile as I leaned in for a kiss before turning out his light. Yesterday, it was a rare glimpse of my once-contented little boy, a chink of light at the end of our present, particular tunnel. Day If he isn’t feeding (or vomiting) he is sleeping. His brea...

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Hypothetical questions | The long chain

https://thelongchain.wordpress.com/2015/01/09/hypothetical-questions

Taking every precious day as it comes. I almost didn’t post this. It’s personal, a bit controversial, very selfish; it may upset some readers. It doesn’t even come to any conclusions. However, I needed to write it to clarify my own thoughts and, having written it, it seemed hypocritical not to publish. I’ve written before about wanting another child, and I know it’s an issue many SWAN. I want one of those. Okay, so forget the fancy test-tubes. Why not just get pregnant, terminate the pregnancy if any...

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Gambling | The long chain

https://thelongchain.wordpress.com/2015/08/18/gambling

Taking every precious day as it comes. Image Ralf Roletschek [GFDL ( http:/ www.gnu.org/copyleft/fdl.html. Or CC BY-SA 3.0 ( http:/ creativecommons.org/licenses/by-sa/3.0. 5D, via Wikimedia Commons. I haven’t blogged for several weeks. I couldn’t. My mind and body have been consumed with something that I and my family weren’t yet ready to share. And now here I am, carrying that baby, for as long as it takes and hopefully longer. Click to share on Twitter (Opens in new window). Click to share on Google (O...

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RE/MAX Pennsylvania & Delaware - Taj Simmons

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Taj Mahal Restaurant at Singleton - Home

Taj Mahal Restaurant at Singleton. Sunday: 6pm - 8pm (8:30pm for take-away). Tuesday: 6pm - 8:30pm (9pm for take-away). Wednesday: 6pm - 8:30pm (9pm for take-away). Thursday: 6pm - 8:30pm (9pm for take-away). Friday: 6pm - 9pm. Saturday: 6pm - 9pm. Send your enquiry to enquiries@tajsingleton.com. Note that we are not accepting online bookings until further notice. Taj Mahal Indian Restaurant. 218 John Street, Singleton. 02) 65 722 959.

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Taj's Journey – Over coming challenges a rare disease presents.

Over coming challenges a rare disease presents. A life journey like no other! Taj has a rare disease which causes many other issues. Taj rare disease is Pachygyria (lissencephaly), for those that have no idea what this means, it is simple Taj’s brain didn’t form correctly. His cortex (outer layer) doesn’t have as many ridges/bumps (see image bellow. Image A is a pachy brain and image B is a fully formed normal brain). Taj is a nerd at heart and I love that about him, it suites him. Star wars, Dr Who ...

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Diamant Tradicionalna Tajska Masaža v Kopru. Come arrivare da noi. Nova spletna stran. Klikni na spodnjo sliko. Naš slogan je kvalitetno opravljati izvirno tajsko masažo, ki temelji na dolgoletni družinski tradiciji. Še kako dobro se zavedamo, da je dolgoročen posel možno graditi le na vrhunski kvaliteti in na zadovoljstvu strank. Naše maserke in maserji izvirajo iz iste družine, ki se na Tajskem tradicionalno. Facebook: Diamant - Tradicionalna Tajska Masaža. Obiščite nas v Kopru. Create a free website.

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Cenik tajskih masaž in darilnih bonov. Jana Husa 3, Ljubljana Kodeljevo. Najbolj priljubljena masaža ne glede na starost in spol. Masaža z aroma. olji. Pri masaži se koristijo bombažne bombice, napolnjene z mešanico zelišč, ki so segrete na pari. Čudovito diši. Odpre vse pore na koži. Deluje protivnetno. Masaža s toplimi zelišči. Nekoliko močnejša masaža pri kateri ste oblečeni v majčko in hlačke - oboje dobite pri nas v salonu. Tajska masaža za nosečnice. Vljudno vabljeni. ย นด ต อนร บ. Tajska masaža je...