sallyjustme.blogspot.com
Just ME: Well enough to drink coffee?
http://sallyjustme.blogspot.com/2015/05/well-enough.html
ME - Myalgic Encephalomyelitis - not just fatigue. Views expressed are not to be taken as medical advice. 10 Things ME patients need NOW! Tuesday, 12 May 2015. Well enough to drink coffee? Often people find it hard to understand why ME folk can do something once but not repeatedly. I used to think that way too. Before I was ill, I remember hearing a comment about a colleague who was off work on long-term sick leave:. Some-one said, "If he's well enough to be out drinking coffee, he should be back in work!
patientperspektiv.wordpress.com
POTS och NMH – Patientperspektiv
https://patientperspektiv.wordpress.com/potsnmh
Livet som skedräknande funkisfeminist. Läs vad andra skriver. NPF – Neuropsykiatriska funktionsskillnader. Visuell pedagogik och bildstöd. POTS står för Postural Orthostatic Tachycardia Syndrome och NMH står för Neurally Mediated Hypotension. Är en brittisk patientförening, här kan du läsa deras symtomöversikt. Finns en guide för dig. Nedan ser du en video om POTS, hypermobilitetssyndrom och ME/CFS därDr. Peter C. Rowe, Johns Hopkins Children’s Center, USA berättar om sin forskning. Här. Du kommenterar m...
patientperspektiv.wordpress.com
Övriga kategorier – Patientperspektiv
https://patientperspektiv.wordpress.com/kategorier
Livet som skedräknande funkisfeminist. Läs vad andra skriver. NPF – Neuropsykiatriska funktionsskillnader. Visuell pedagogik och bildstöd. Lämna gärna en kommentar. Avbryt svar. Skriv din kommentar här. Fyll i dina uppgifter nedan eller klicka på en ikon för att logga in:. Adressen lämnas aldrig ut). Du kommenterar med ditt WordPress.com-konto. ( Logga ut. Du kommenterar med ditt Twitter-konto. ( Logga ut. Du kommenterar med ditt Facebook-konto. ( Logga ut. Meddela mig om vidare kommentarer via e-post.
patientperspektiv.wordpress.com
Funkisfeministen (fd Patientperspektiv) – Patientperspektiv
https://patientperspektiv.wordpress.com/author/patientperspektiv
Livet som skedräknande funkisfeminist. Läs vad andra skriver. NPF – Neuropsykiatriska funktionsskillnader. Visuell pedagogik och bildstöd. Författare: Funkisfeministen (fd Patientperspektiv). Det här blir det sista inlägget på den här bloggen, i stället hittar du mig på funkisfeministen.wordpress.com. Anledningen är att det tidigare i år startades en förening med namnet PatientPerspektiv och eftersom vi är helt oberoende av varandra så kan det bli förvirrande för omvärlden. Välkommen in! December 22, 2015.
thoughtsaboutme.com
CFSAC Comments August 2015: Ampligen Price Increase on Shaky Ground | Thoughts About M.E.
https://thoughtsaboutme.com/2015/08/14/cfsac-comments-august-2015-ampligen-update
Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. 267% Price Increase for Ampligen. Oops, they did it again! CFSAC violates FACA →. CFSAC Comments August 2015: Ampligen Price Increase on Shaky Ground. August 14, 2015. I looked into the Ampligen issue–the exorbitant 267% price increase by Hemispherx. CFSAC Meeting August 18. Public Comments by Jeannette Burmeister. Submitted on August 13, 2015. Below are two letters I sent to Dr. Woodcock on August 11, 2015 and today (August 13, 2015) wit...
thoughtsaboutme.com
CFS | Thoughts About M.E.
https://thoughtsaboutme.com/tag/cfs
Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term Disability Benefits. March 21, 2016. Many ME/CFS* sufferers are covered by employer-sponsored long-term disability ( LTD ) policies. These policies almost universally limit LTD benefits to 24 months for disability caused or even just contributed to by a mental/nervous disorder. The following language is taken from a current policy … Continue reading →. February 21, 2016.
katharineandme.blogspot.com
Katharine and M.E.: February 2014
http://katharineandme.blogspot.com/2014_02_01_archive.html
Saturday, 22 February 2014. A while ago I came across Voices from the Shadows. A film “born of desperation” made by the mother and brother of a severe ME sufferer. It tells the true stories of several ME patients and the injustices and abuse they and their families have been subjected to. An introduction. Today, in the twenty-first century. From the Sam and M.E. blog. So, while I may not be big enough, powerful enough (or, indeed, healthy enough) to change the world and its opinion of my illness, I can.
katharineandme.blogspot.com
Katharine and M.E.: On a life-long love of reading
http://katharineandme.blogspot.com/2015/03/on-life-long-love-of-reading.html
Thursday, 5 March 2015. On a life-long love of reading. We all spend our lives telling them - about this, about that, about people. Some stories are so good we wish they'd never end. They're so gripping that we'll go without sleep just to see a little bit more. Some stories bring us laughter and sometimes they bring us tears. But isn't that what a great story does? It makes you feel. Stories that are so powerful, they really are with us forever. To being unable to pick up a book, let alone read it. M...
carolecarrick.wordpress.com
November | 2014 | Carole...
https://carolecarrick.wordpress.com/2014/11
8230;speaking through art, poetry and humour…oh and politics too! Archive for November 2014. A Conversation with a Jobcentre Advisor. I want to say shocking but unfortunately hearing more and more like this…the comments and replies on here are worth reading too. Like many people I have been in and out of work over the past couple of years. Every job is temporary, or low paid, or unspecified hours, or all of them together. And all of the jobs come to an end. November 24, 2014 at 7:06 am. 2,142 more words.