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The Ins and Outs of 1p36 parentingThe life of Tru as told by her mother & her mother's trials to help others like her.
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The life of Tru as told by her mother & her mother's trials to help others like her.
http://phnx1p36tru.blogspot.com/
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The Ins and Outs of 1p36 parenting | phnx1p36tru.blogspot.com Reviews
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The life of Tru as told by her mother & her mother's trials to help others like her.
phnx1p36tru.blogspot.com
The Ins and Outs of 1p36 parenting: January 2010
http://phnx1p36tru.blogspot.com/2010_01_01_archive.html
The Ins and Outs of 1p36 parenting. The life of Tru as told by her mother and her mothers trials to help others like her. Monday, January 4, 2010. It's been so long since I've posted, so I apologize in advance for the long post. So many great things have happened since the last post. Tru. Is thriving in school. Her concentration is starting to really improve. She'll sit down for a task and complete it, even if it takes 20 minutes! My Personal Christmas Wish WAS Granted. I couldn't think of a better Chris...
The Ins and Outs of 1p36 parenting: Springing forth with Spring
http://phnx1p36tru.blogspot.com/2011/03/springing-forth-with-spring.html
The Ins and Outs of 1p36 parenting. The life of Tru as told by her mother and her mothers trials to help others like her. Saturday, March 19, 2011. Springing forth with Spring. Heaven, Phoenix, and Tru - Mesker Park Zoo. The ultimate price of spring has started with allergies, I've stocked up the nurse at school, and unfortunately she now gets drowsy from the meds and likes to nap, just when we'd gotten her stamina up to attend all day long school - this issue is up for some debate, maybe. Even if your n...
The Ins and Outs of 1p36 parenting: ~A Lucky Little Girl~
http://phnx1p36tru.blogspot.com/2011/06/lucky-little-girl.html
The Ins and Outs of 1p36 parenting. The life of Tru as told by her mother and her mothers trials to help others like her. Wednesday, June 22, 2011. A Lucky Little Girl. Had a couple spells were she broke out of the house. 2 There after, she jumped into our pond.TWICE. Was even born. And instead of just reveling in that accomplishment, Tru's. Daddy went out and bought her a pool, it's only waist high on her, but never the less it's another body of water I've got to keep an eye on. Have A Beautiful Day.
The Ins and Outs of 1p36 parenting: October 2010
http://phnx1p36tru.blogspot.com/2010_10_01_archive.html
The Ins and Outs of 1p36 parenting. The life of Tru as told by her mother and her mothers trials to help others like her. Wednesday, October 6, 2010. Time for an upgrade. Well, my darling son has lost all but like 3 of Tru's. Magnets and as I was finding newer pictures and upgrading her PEC. Communication, I found a wonderful site with a pictionary. Speech therapist and I talked about it before the summer started and I did formulate a small pec. Book with 4 signs, but in the book form Tru. Tuesday, Octob...
The Ins and Outs of 1p36 parenting: ~Our fruitful fall~
http://phnx1p36tru.blogspot.com/2011/11/our-fruitful-fall.html
The Ins and Outs of 1p36 parenting. The life of Tru as told by her mother and her mothers trials to help others like her. Tuesday, November 1, 2011. Have a Beautiful Day. Awesome to hear how well she is doing. Love to hear that she is chabbering too. Taylor started like that and now sentences spit out here and there all the time now. It will come just keep encouraging it. Love to hear that she is loving school too. Your an awesome mom! November 16, 2011 at 6:52 AM. Subscribe to: Post Comments (Atom).
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Samuel Bartlett: February 2013
http://samuelbartlett.blogspot.com/2013_02_01_archive.html
Thursday, February 21, 2013. Sammie has had a fantastic year . He is in 1st grade at a lovely school and still loves riding the school bus! His teacher. PT , ST, and OT are all wonderful and have been working him each day and we have seen so much progress! He'll get there.one step at a time! Subscribe to: Posts (Atom). Just the cutest and coolest kiddo on the planet! View my complete profile. Mommy and lilboobers xxoo. 1p36 Deletion Conference Info. I tell him good job anyway! Sammie and Darby feeding th...
Samuel Bartlett: April 2009
http://samuelbartlett.blogspot.com/2009_04_01_archive.html
Saturday, April 25, 2009. Hopefully the link works! Here's a link to an article with info about 1p36. The organization is called Unique and they are based in the UK. The info is put together in a very reader friendly way.for those of us who aren't doctors! Http:/ www.rarechromo.org/information/Chromosome%20%201/1p36%20deletion%20FTNW.pdf. Monday, April 20, 2009. Just a few updates about Sammie's 6 month check-ups. The Sammie saw Dr. Hubble, Otolaringologist (sp? And Sammie's tubes look great! The audiolo...
Samuel Bartlett: 2010
http://samuelbartlett.blogspot.com/2010/02/2010.html
Monday, February 22, 2010. Been a little bit since my last Sammie Blog! I apologize but we have been super busy like everyone else on the planet =). Sammie is doing great! Preschool is going wonderfully! He just finished a weeks vacation.that I think he enjoyed! I didn't have vacastion so we didn't get real crazy but did enjoy some down time while it lasted! He also brings his leg up when in front of stairs, he steps up on the stair, and with as much weight as he can he'll go up the stair! Sammie loves h...
lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: October 2009
http://lexislifewith1p36.blogspot.com/2009_10_01_archive.html
Lexi's Life with 1p36. Oct 14, 2009. A lot has happened since my last post. Alexis has started school in a new classroom with a new teacher. So far so good. We have been meeting with Family and Children Services to see what resources are available to Alexis. We have had a prescription written for Alexis' overnight incontinence needs. We have yet to receive them. Alexis has a new brother. He was born on September 2. See our family blog. Subscribe to: Posts (Atom). In her element - catching flakes.
lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: June 2010
http://lexislifewith1p36.blogspot.com/2010_06_01_archive.html
Lexi's Life with 1p36. Jun 24, 2010. Bathing has been made a lot easier. Eating isn't so messy. She just seems to still not want to use her arm. We will have to work on that. Jun 22, 2010. Alexis had her second outing with her worker (I don't remember the official title). She took Alexis out to the Humane Society. While there they worked on Alexis not talking to strangers and not touching other people. Alexis had a good time. She bugged me all morning until it was time for her to go. Jun 21, 2010. The su...
Samuel Bartlett: January 2015
http://samuelbartlett.blogspot.com/2015_01_01_archive.html
Wednesday, January 14, 2015. Another year of growth! It has been a longtime since I've posted about Sammie.I feel neglectful. Though I'm not sure who reads anyway! How wonderful that he is able to recognize the sound, determine where it is coming from, pull himself up to locate it and be rewarded with seeing the "truck"! Sammie enjoys eating and is actually able to consume lots of food and it continues to baffle me as to where it goes? Subscribe to: Posts (Atom). View my complete profile. I swear sometim...
The "Perfect" Gift: An Update
http://abbiegrace1p36.blogspot.com/2009/03/update.html
All things created by God are perfect even if we don't see it that way. Abbie was created to be our "perfect" 1p36 gift! James 1:17 "Every good gift and perfect gift is from above.". Tuesday, March 10, 2009. Abbie has been doing well. She will be three on Monday March 16 and I will post a big update then. For now a few things. He will be another yearly Doctor. Look for the new update next week after Abbie is the BIG 3! In case I forget next week, Happy Birthday Abbie! You look great in the pictures Abbie!
lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: November 2009
http://lexislifewith1p36.blogspot.com/2009_11_01_archive.html
Lexi's Life with 1p36. Nov 20, 2009. Alexis loves her siblings. Here is a moment with Mikey before Halloween. Labels: Lexi and Mikey. Nov 6, 2009. Alexis loves music. Her favorite soundtrack is Disney's Cinderella. We always get the play by play on what part of the movie the music is playing. It always makes her giggle. Music brings her great joy. Most times music will bring peace into our home. I have found that when I play quiet peaceful music, Alexis becomes more calm. Subscribe to: Posts (Atom).
The "Perfect" Gift: October 2008
http://abbiegrace1p36.blogspot.com/2008_10_01_archive.html
All things created by God are perfect even if we don't see it that way. Abbie was created to be our "perfect" 1p36 gift! James 1:17 "Every good gift and perfect gift is from above.". Wednesday, October 22, 2008. The Loss of Little Ones. Monday, October 13, 2008. FROM 30 MIN.OLD TO THE FIRST HEART SUGERY. THE FIRST TIME I GOT TO HOLD ABBIE SHE WAS RIGHT AT 24 HRS. OLD. SHE WAS SO TINY AND I DID NOT WANT TO EVER LET GO OF HER! I could not even hold her for the first 24 hrs. The cadiologist visited a few ti...
The "Perfect" Gift: March 2009
http://abbiegrace1p36.blogspot.com/2009_03_01_archive.html
All things created by God are perfect even if we don't see it that way. Abbie was created to be our "perfect" 1p36 gift! James 1:17 "Every good gift and perfect gift is from above.". Tuesday, March 10, 2009. Abbie has been doing well. She will be three on Monday March 16 and I will post a big update then. For now a few things. He will be another yearly Doctor. Look for the new update next week after Abbie is the BIG 3! Monday, March 9, 2009. Subscribe to: Posts (Atom). View my complete profile. Ato T's 5...
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The Ins and Outs of 1p36 parenting
The Ins and Outs of 1p36 parenting. The life of Tru as told by her mother and her mothers trials to help others like her. Tuesday, November 1, 2011. Have a Beautiful Day. Monday, June 27, 2011. How far is too far to push the envelope? What difference could it really make? Is it worth the time and effort? What am I really asking for? At difference could it really make? Is it worth the time and effort? How is this even fair? How is this acceptable and even worse the reality? What am I asking for? Sparing t...
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