porphyriash8r.wordpress.com
Porphyria's Hater | Occupying Porphyria one post at a time.Occupying Porphyria one post at a time.
http://porphyriash8r.wordpress.com/
Occupying Porphyria one post at a time.
http://porphyriash8r.wordpress.com/
TODAY'S RATING
>1,000,000
Date Range
HIGHEST TRAFFIC ON
Thursday
LOAD TIME
0.1 seconds
16x16
32x32
PAGES IN
THIS WEBSITE
16
SSL
EXTERNAL LINKS
16
SITE IP
192.0.78.12
LOAD TIME
0.141 sec
SCORE
6.2
Porphyria's Hater | Occupying Porphyria one post at a time. | porphyriash8r.wordpress.com Reviews
https://porphyriash8r.wordpress.com
Occupying Porphyria one post at a time.
porphyriash8r.wordpress.com
Illuminate! | Porphyria's Hater
https://porphyriash8r.wordpress.com/illuminate
Occupying Porphyria one post at a time. Stay updated via RSS. There’s always a “But”…. Rare Disease Month/Day 2015: You need to be your own activist. Yes, it’s early, but…. Alnylam Is Getting Close! Another Year, Another Missed Opportunity… Again. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out.
May | 2012 | Porphyria's Hater
https://porphyriash8r.wordpress.com/2012/05
Occupying Porphyria one post at a time. Stay updated via RSS. There’s always a “But”…. Rare Disease Month/Day 2015: You need to be your own activist. Yes, it’s early, but…. Alnylam Is Getting Close! Another Year, Another Missed Opportunity… Again. Archive for May, 2012. 8220;When One Must Resort to DIY Means”– Jane Austen meets rare diseases. Posted: May 18, 2012 by Administrator. Physicians and insurance companies require Empirical Tests. Tests, tests, and more tests! That is, of course, if a person is ...
April | 2015 | Porphyria's Hater
https://porphyriash8r.wordpress.com/2015/04
Occupying Porphyria one post at a time. Stay updated via RSS. There’s always a “But”…. Rare Disease Month/Day 2015: You need to be your own activist. Yes, it’s early, but…. Alnylam Is Getting Close! Another Year, Another Missed Opportunity… Again. Archive for April, 2015. There’s always a “But”…. Posted: April 13, 2015 by Administrator. Just to get everyone on the same page on this, let’s start with a quick primer on what is going on in Europe at the moment. We celebrated a bit in the online group when t...
Rare Disease Month/Day 2015: You need to be your own activist. | Porphyria's Hater
https://porphyriash8r.wordpress.com/2015/02/15/rare-disease-monthday-2015-you-need-to-be-your-own-activist
Occupying Porphyria one post at a time. Stay updated via RSS. There’s always a “But”…. Rare Disease Month/Day 2015: You need to be your own activist. Yes, it’s early, but…. Alnylam Is Getting Close! Another Year, Another Missed Opportunity… Again. Rare Disease Month/Day 2015: You need to be your own activist. Posted: February 15, 2015 by Administrator. Raising Rare Disease awareness,. Raising awareness of specific rare diseases and disorders,. Sharing inspirational stories,. There were five results.
Educate! | Porphyria's Hater
https://porphyriash8r.wordpress.com/educate
Occupying Porphyria one post at a time. Stay updated via RSS. There’s always a “But”…. Rare Disease Month/Day 2015: You need to be your own activist. Yes, it’s early, but…. Alnylam Is Getting Close! Another Year, Another Missed Opportunity… Again. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out.
TOTAL PAGES IN THIS WEBSITE
16
Uncategorized | My Porphyria Blog
http://www.myporphyria.com/category/uncategorized
December 24, 2014. This is a wonderful time of year. Time to be thankful for all of our blessings and for the birth of our Lord. Now, to successfully avoid the chocolate and eggnog. October 8, 2014. Awake to pain…glucose…relief…for a bit, darn. September 14, 2014. 1:00 sound asleep, then ouch! June 10, 2014. June 10, 2014. Something else to deal with. It was pointed out to me, by another in the porphyria club, that, not only are sulfites bad for us, they accumulate, too. So, I started looking for...There...
Supplements | My Porphyria Blog
http://www.myporphyria.com/supplements
Taking supplements, to improve health, is real popular. But, how safe is that for porphyria sufferers? I’ve tried a few with marginal to bad results. I am going to share what I’ve experienced or heard; your results may be vastly different. 8211; triggered attacks. 8211; no attack; but, slowed me down greatly. 8211; Caro had problems. September 10, 2014 at 8:28 am. Has anyone tried B supplements? How is everyone with vitamin D? September 10, 2014 at 10:58 am. September 10, 2014 at 1:57 pm. I am ok with vi...
Greg | My Porphyria Blog
http://www.myporphyria.com/author/admin
Sinus Infection – air filters and hydrogen peroxide to the rescue. December 21, 2015. One of my weaknesses is sinus infections. I am allergic to many things and exposure causes my sinuses to be unhappy; then an infection sets in. For a long time, I have been relying in saline spray (Ocean brand from … Continue reading →. December 7, 2015. March 6, 2015. March 6, 2015. December 24, 2014. November 4, 2014. Every morning I wake up feeling like I have a hangover…and, I don’t drink! Eventually, that eases up ...
Merry Christmas | My Porphyria Blog
http://www.myporphyria.com/2014/12/24/merry-christmas
December 24, 2014. This is a wonderful time of year. Time to be thankful for all of our blessings and for the birth of our Lord. Now, to successfully avoid the chocolate and eggnog. This entry was posted in Uncategorized. Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *. Diagnosing Acute Intermittent Porphyria. Porphyria – The Unknown Disease. American Porphyria Foundation Blog. Heron Herbals – Porphyria page. Mi vida con Porfiria. Dinosaurs and the Bible.
Soup | My Porphyria Blog
http://www.myporphyria.com/2015/03/06/soup-2
My Responsibility →. March 6, 2015. This is the way that I do it; but, you can remove the beef bone and chicken, if need be. Boiling the chicken on the bone and the beef bone draws needed nutrients from the marrow. Many with porphyria believe this is beneficial in that a couple of the heme product steps occur in the marrow. Also, the OMD that I see is very much about adding the bones for everyone. The amount of potatoes, carrots, and mushrooms can be varied to suit taste. I make enough for several meals.
Hangover | My Porphyria Blog
http://www.myporphyria.com/2014/11/04/hangover-2
Merry Christmas →. November 4, 2014. Every morning I wake up feeling like I have a hangover…and, I don’t drink! So, what do you do for a hangover? First, drink plenty of water. Good healthy breakfast. Take a walk. Time. Repeat. How to prevent a hangover? Don’t drink too much. Don’t have porphyria. This entry was posted in General Porphyria Discussion. Merry Christmas →. November 28, 2014 at 12:07 am. December 15, 2014 at 3:05 pm. December 15, 2014 at 5:01 pm. October 6, 2015 at 4:15 am. How about a bad c...
Diet | My Porphyria Blog
http://www.myporphyria.com/category/diet
March 6, 2015. This is the way that I do it; but, you can remove the beef bone and chicken, if need be. Boiling the chicken on the bone and the beef bone draws needed nutrients from the marrow. Many with porphyria believe … Continue reading →. March 6, 2015. September 23, 2014. Food on the Road. March 31, 2014. March 28, 2014. Known Triggers & Known Good. February 9, 2014. I use extreme caution using these terms. For instance, in my family, cucumbers are a know trigger; however, many porphyria suffer...
Snickers | My Porphyria Blog
http://www.myporphyria.com/2014/11/03/snickers
November 3, 2014. The Snickers commercials nailed it. You are not yourself when you’re hungry…especially with porphyria. The effect is many times as strong because the glucose starvation is deeper and then you throw in those nasty porphyrins. This entry was posted in General Porphyria Discussion. November 3, 2014 at 6:08 pm. Years I thought it was normal. Snickers IS right, lol, I’m a monster when I’m hungry. Because I don’t want it to progress into a full-on flare! Leave a Reply Cancel reply.
General Porphyria Discussion | My Porphyria Blog
http://www.myporphyria.com/category/general-porphyria-discussion
Category Archives: General Porphyria Discussion. Sinus Infection – air filters and hydrogen peroxide to the rescue. December 21, 2015. One of my weaknesses is sinus infections. I am allergic to many things and exposure causes my sinuses to be unhappy; then an infection sets in. For a long time, I have been relying in saline spray (Ocean brand from … Continue reading →. December 7, 2015. November 4, 2014. Every morning I wake up feeling like I have a hangover…and, I don’t drink! November 3, 2014. My chest...
Pizza | My Porphyria Blog
http://www.myporphyria.com/2015/03/06/pizza
March 6, 2015. Warning – be careful with ingredients. Dairy products can be a problem (I can manage in small amounts); too much avocado oil can be a problem, too. Sargento sharp cheddar (ultra-thin) change to suit taste. Slice up mushrooms, onions and possibly black olives to size preference. Add small amount of avocado oil, while mixing. Add tomato sauce, cut up fresh oregano, salt, and pepper. If using a stone or skillet, lightly brush avocado oil on surface. Apply sauce to tortillas to taste. Chuck Mi...
TOTAL LINKS TO THIS WEBSITE
16
Porphyrian - web & media development
Skip to page content. Web and media development. Growing with the digital landscape. Give us a call at 318-445-8440. Social Media/Web 2.0. We offer comprehensive web development, website design/redesign and maintenance, database integration, content management systems, social media widgets, as well as desktop and mobile applications. Porphyrian recently designed and delivered a Logo Standards Package for the law firm of Bolen, Parker, Brenner, Lee and Engelsman. Their new signage is now up at their V...
porphyriarabbit.deviantart.com
PorphyriaRabbit (Porphyria Pierre) - DeviantArt
Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')" class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Join DeviantArt for FREE. Forgot Password or Username? Traditional Art / Hobbyist. Deviant for 3 Years. 1 Month Core Membership. Daily Pageviews ». Last Visit: 3 days ago. Why," you ask? I'm trying ...
European Porphyria Registry
Username* (i.e., email address). Don’t have an EPR account? Note that you first have to acquire a Porphyria Centre ID no from your participating Porphyria Centre. Click Here. For further details Sign up. If you don't have an account.
European Porphyria Registry
Username* (i.e., email address). Don’t have an EPR account? Note that you first have to acquire a Porphyria Centre ID no from your participating Porphyria Centre. Click Here. For further details Sign up. If you don't have an account.
porphyriareviews.wordpress.com
porphyriareviews | Just another WordPress.com site
Just another WordPress.com site. Follow Blog via Email. Enter your email address to follow this blog and receive notifications of new posts by email. Took my camera for a wonder…. January 12, 2014. Posted by Laura Tickle on January 12, 2014. Https:/ porphyriareviews.wordpress.com/2014/01/12/liverpool-anglican-cathedral/. The Black Market Review. Please have a nosey through our fifth issue of the publication, and anticipate next years one. Http:/ www.blackmarketreview.com. September 5, 2013. July 20, 2013.
Porphyria's Hater | Occupying Porphyria one post at a time.
Occupying Porphyria one post at a time. Stay updated via RSS. There’s always a “But”…. Rare Disease Month/Day 2015: You need to be your own activist. Yes, it’s early, but…. Alnylam Is Getting Close! Another Year, Another Missed Opportunity… Again. There’s always a “But”…. Posted: April 13, 2015 by Administrator. Just to get everyone on the same page on this, let’s start with a quick primer on what is going on in Europe at the moment. We celebrated a bit in the online group when this was found and posted ...
Porphyria's Lover, Vastly Misunderstood R. Browning Poetry
Porphyria's Lover; Vastly Misunderstood Poetry. Porphyria's Lover - Essay. Porphyria's Lover on Trial. By Robert Browning is a rather famous Victorian era poem. Click on the "essay page" of this website (on your left) to access J.T. Best's analysis relative to that famous Robert Browning poem. Into account as opposed to focusing upon a few selected passages. In early November 2005, J.T. Best began in earnest to have his more logical analysis of. The interpretative essay J.T. Best wrote regarding. After r...
Porphyland
Mangling other languages on t-shirts because they’re cool is one of the greatest cross-cultural phenomenons ever. As a person who lives in a country where English isn’t the first language and these types of clothes exist in almost every clothing store, I think this is beautiful. I finally finished this! You can get her on a T-SHIRT on Tee Public (for $14 for the next 72 hours! You can get prints on Inprnt:. Http:/ www.inprnt.com/gallery/savannahhorrocks/pastel-rex/. Cats who survived and became beloved!
PORPHYRIA CAREGIVERS SUPPORT GROUP - HOME
PORPHYRIA CAREGIVERS SUPPORT GROUP. We are a support group that focuses on the needs of caregivers. Our focus is assisting spouses, friends and loved ones devoted to those who suffer from one of the Porphyrias, We want to help create a community of people who share information and experiences. In addition, we want to encourage better mental and physical health for those who take on the caregiver’s role. We are affiliated with the American Porphyria Foundation ( GO TO WEBSITE. 4900 Woodway, Suite 780.
porphyriasxrose.deviantart.com
porphyriasXrose (Kayla.) - DeviantArt
Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')" class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Join DeviantArt for FREE. Forgot Password or Username? Deviant for 10 Years. This deviant's full pageview. Last Visit: 397 weeks ago. This is the place where you can personalize your profile! Favour...
Porphyria Talk
Wednesday, December 10, 2008. CPOX HCP And Mercury. CPOX is the gene location for Hereditary Coproporphyria and CPOX4 is located on that gene. Until now I had no idea there was a variation of HCP, just thought you either had gentic or acquired Porphyria and never had a clue there would be a twist like a mutation for Mercury. So if "genetic" Porphyria and Mercury caused Porphyria are on the same gene isn't it logical that BOTH are gentic? And isn't Mercury implicated in MCS? ROS Melatonin And Porphyria.
