porphyriasupport.org porphyriasupport.org

porphyriasupport.org

PORPHYRIA CAREGIVERS SUPPORT GROUP - HOME

Online Support Group for Caregivers of Porphyria Patients

http://www.porphyriasupport.org/

WEBSITE DETAILS
SEO
PAGES
SIMILAR SITES

TRAFFIC RANK FOR PORPHYRIASUPPORT.ORG

TODAY'S RATING

>1,000,000

TRAFFIC RANK - AVERAGE PER MONTH

BEST MONTH

December

AVERAGE PER DAY Of THE WEEK

HIGHEST TRAFFIC ON

Friday

TRAFFIC BY CITY

CUSTOMER REVIEWS

Average Rating: 3.9 out of 5 with 15 reviews
5 star
6
4 star
6
3 star
1
2 star
0
1 star
2

Hey there! Start your review of porphyriasupport.org

AVERAGE USER RATING

Write a Review

WEBSITE PREVIEW

Desktop Preview Tablet Preview Mobile Preview

LOAD TIME

CONTACTS AT PORPHYRIASUPPORT.ORG

Warren Hudson

6306 Sho●●●●●●●●Dr. West

Au●●in , TX, 78757

US

1.51●●●●5302
Wa●●●●●●●●●●●●@gmail.com

View this contact

Warren Hudson

6306 Sho●●●●●●●●Dr. West

Au●●in , TX, 78757

US

1.51●●●●5302
Wa●●●●●●●●●●●●@gmail.com

View this contact

Warren Hudson

6306 Sho●●●●●●●●Dr. West

Au●●in , TX, 78757

US

1.51●●●●5302
Wa●●●●●●●●●●●●@gmail.com

View this contact

Login

TO VIEW CONTACTS

Remove Contacts

FOR PRIVACY ISSUES

DOMAIN REGISTRATION INFORMATION

REGISTERED
n/a
UPDATED
2013 December 30
EXPIRATION
EXPIRED REGISTER THIS DOMAIN

BUY YOUR DOMAIN

Network Solutions®

NAME SERVERS

1
dns1.register.com
2
dns2.register.com

REGISTRAR

Register.com, Inc. (R71-LROR)

Register.com, Inc. (R71-LROR)

WHOIS : whois.publicinterestregistry.net

REFERRED :

CONTENT

SCORE

6.2

PAGE TITLE
PORPHYRIA CAREGIVERS SUPPORT GROUP - HOME | porphyriasupport.org Reviews
<META>
DESCRIPTION
Online Support Group for Caregivers of Porphyria Patients
<META>
KEYWORDS
1 Porphyria
2 Caregiver
3 Spouse
4 AIP
5 Support Group
6
7 coupons
8 reviews
9 scam
10 fraud
CONTENT
Page content here
KEYWORDS ON
PAGE
news and information,request information,member forum,office hours
CONTENT-TYPE
utf-8
GOOGLE PREVIEW

PORPHYRIA CAREGIVERS SUPPORT GROUP - HOME | porphyriasupport.org Reviews

https://porphyriasupport.org

Online Support Group for Caregivers of Porphyria Patients

INTERNAL PAGES

porphyriasupport.org porphyriasupport.org
1

REQUEST INFORMATION - PORPHYRIA CAREGIVERS SUPPORT GROUP

http://www.porphyriasupport.org/request-information.html

PORPHYRIA CAREGIVERS SUPPORT GROUP. We do not share this information with anyone. However, we request basic data for you to be able to post and share content between other members. Please tell us a little about your experiences, what type of Porphyria your loved one has and what you want from a support group. If you have previously contacted us and received a password to the member forum, you do not need to submit this request.

2

NEWS AND INFORMATION - PORPHYRIA CAREGIVERS SUPPORT GROUP

http://www.porphyriasupport.org/news-and-information.html

PORPHYRIA CAREGIVERS SUPPORT GROUP. EXTERNAL LINKS TO INFORMATION/RESOURCES. Caregiver stress: Tips for taking care of yourself. Top Ten Stress Management Techniques. We want to hear from you. Tell us your success stories or hardships. We want to identify common areas of concern among all of us helping someone with one of the Porphyrias. Your input is important.

3

This area is password protected [401]

http://www.porphyriasupport.org/member-forum.html

This area is password protected. Please enter the password below.

UPGRADE TO PREMIUM TO VIEW 0 MORE

TOTAL PAGES IN THIS WEBSITE

3

OTHER SITES

porphyriaregistry.org porphyriaregistry.org

European Porphyria Registry

Username* (i.e., email address). Don’t have an EPR account? Note that you first have to acquire a Porphyria Centre ID no from your participating Porphyria Centre. Click Here. For further details Sign up. If you don't have an account.

porphyriareviews.wordpress.com porphyriareviews.wordpress.com

porphyriareviews | Just another WordPress.com site

Just another WordPress.com site. Follow Blog via Email. Enter your email address to follow this blog and receive notifications of new posts by email. Took my camera for a wonder…. January 12, 2014. Posted by Laura Tickle on January 12, 2014. Https:/ porphyriareviews.wordpress.com/2014/01/12/liverpool-anglican-cathedral/. The Black Market Review. Please have a nosey through our fifth issue of the publication, and anticipate next years one. Http:/ www.blackmarketreview.com. September 5, 2013. July 20, 2013.

porphyriash8r.wordpress.com porphyriash8r.wordpress.com

Porphyria's Hater | Occupying Porphyria one post at a time.

Occupying Porphyria one post at a time. Stay updated via RSS. There’s always a “But”…. Rare Disease Month/Day 2015: You need to be your own activist. Yes, it’s early, but…. Alnylam Is Getting Close! Another Year, Another Missed Opportunity… Again. There’s always a “But”…. Posted: April 13, 2015 by Administrator. Just to get everyone on the same page on this, let’s start with a quick primer on what is going on in Europe at the moment. We celebrated a bit in the online group when this was found and posted ...

porphyriaslover.tripod.com porphyriaslover.tripod.com

Porphyria's Lover, Vastly Misunderstood R. Browning Poetry

Porphyria's Lover; Vastly Misunderstood Poetry. Porphyria's Lover - Essay. Porphyria's Lover on Trial. By Robert Browning is a rather famous Victorian era poem. Click on the "essay page" of this website (on your left) to access J.T. Best's analysis relative to that famous Robert Browning poem. Into account as opposed to focusing upon a few selected passages. In early November 2005, J.T. Best began in earnest to have his more logical analysis of. The interpretative essay J.T. Best wrote regarding. After r...

porphyriasuicide.tumblr.com porphyriasuicide.tumblr.com

Porphyland

Mangling other languages on t-shirts because they’re cool is one of the greatest cross-cultural phenomenons ever. As a person who lives in a country where English isn’t the first language and these types of clothes exist in almost every clothing store, I think this is beautiful. I finally finished this! You can get her on a T-SHIRT on Tee Public (for $14 for the next 72 hours! You can get prints on Inprnt:. Http:/ www.inprnt.com/gallery/savannahhorrocks/pastel-rex/. Cats who survived and became beloved!

porphyriasupport.org porphyriasupport.org

PORPHYRIA CAREGIVERS SUPPORT GROUP - HOME

PORPHYRIA CAREGIVERS SUPPORT GROUP. We are a support group that focuses on the needs of caregivers. Our focus is assisting spouses, friends and loved ones devoted to those who suffer from one of the Porphyrias, We want to help create a community of people who share information and experiences. In addition, we want to encourage better mental and physical health for those who take on the caregiver’s role. We are affiliated with the American Porphyria Foundation ( GO TO WEBSITE. 4900 Woodway, Suite 780.

porphyriasxrose.deviantart.com porphyriasxrose.deviantart.com

porphyriasXrose (Kayla.) - DeviantArt

Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')" class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Join DeviantArt for FREE. Forgot Password or Username? Deviant for 10 Years. This deviant's full pageview. Last Visit: 397 weeks ago. This is the place where you can personalize your profile! Favour...

porphyriatalk.blogspot.com porphyriatalk.blogspot.com

Porphyria Talk

Wednesday, December 10, 2008. CPOX HCP And Mercury. CPOX is the gene location for Hereditary Coproporphyria and CPOX4 is located on that gene. Until now I had no idea there was a variation of HCP, just thought you either had gentic or acquired Porphyria and never had a clue there would be a twist like a mutation for Mercury. So if "genetic" Porphyria and Mercury caused Porphyria are on the same gene isn't it logical that BOTH are gentic? And isn't Mercury implicated in MCS? ROS Melatonin And Porphyria.

porphyrie-forum.de porphyrie-forum.de

Porphyrie Forum • Foren-Übersicht

Berliner Leberring e.V. (Beratungsstelle für Hepatitis-Betroffene auf dem Charité-Campus Benjamin Franklin, 12203 Berlin-Steglitz). Der Berliner Leberring e.V. wurde 1997 von Mitgliedern einer Selbsthilfegruppe gegründet. www.berliner-leberring.de. Sei fair und deaktiviere deinen Werbeblocker! Dieser Dienst finanziert sich durch die Schaltung von Werbung, welche du durch deinen Werbeblocker beeinträchtigst! In diesem Forum werben. Über 200.000 Impressionen täglich. Mehr als 11.000 Foren registriert.

porphyrie-info.com porphyrie-info.com

porphyrie porphyria porphyries information definition traitementPORPHYRIE PORPHYRIA

Ce site n'est pas un site médicale! Mais un site de vulgarisation dans lequel vous trouverez toutes sortes d'infos concernant cette maladie qu'est la porphyrie aiguë intermittente- acute intermittent porphyria. L'essai de l'enzyme est en cours! Il y a des informations techniques :. Vous trouverez dans ce site quelques précisions sur les porphyries : leurs définitions, leur mode de transmission etc. Le diagnostic des porphyries. Est une étape clé dans la prise en charge de la maladie.

porphyrie-selbsthilfe.de porphyrie-selbsthilfe.de

Willkommen - Porphyrie Selbsthilfe

Onclick="window.open(this.href,'win2','status=no,toolbar=no,scrollbars=yes,titlebar=no,menubar=no,resizable=yes,width=640,height=480,directories=no,location=no'); return false;" rel="nofollow". Wir sind eine Selbsthilfegruppe. Und begrüßen Sie sehr herzlich auf unserer Homepage. Diese ist noch im Aufbau, wir bitten um Ihr Verständnis. Finden Sie Verlinkungen, die nicht funktionieren, sind wir Ihnen für einen Hinweis dankbar. Wir freuen uns, wenn Sie uns bald wieder besuchen.